before and after of hemangioma before and after of PWS before and after of venous malformation before and after of AVM before and after of lymphatic malformation CMTC sturge-weber syndrome kts PHACE

Expert's Corner

Ask The Vascular Birthmark Expert
Dr. WanerVBF is proud to announce that Dr. Waner, the leading birthmark surgeon and treatment specialist will be answering emails regarding birthmark treatment.
Ask the PWS Expert
Dr.Nelson VBF welcomes Dr. Stuart Nelson of the Beckman Laser Institute as another one of our medical experts. Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

Ask the Surgeon
Dr.LevitinMeet Dr. Gregory Levitin, partner to Dr. Milton Waner. Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors. VBF's Ask the Surgeon!

Ask the AVM Expert
Dr. BerensteinVBF is proud to have the world renown expert, Dr. Alex Berenstein as its expert in AMVs. Send your questions concerning AVMs to him.
Ask the Wound Care Expert
Dr. SerenaVBF is proud to add Dr. Thomas Serena as our wound care expert. Please send Dr. Serena your questions regarding wound care for an ulcerated hemangioma or other vascular birthmark, tumor, or syndrome that requires wound care.
Ask the KTS Surgery Expert
Dr. GiangolaVBF is proud to welcome Dr. Giangola of NYC as our KTS surgical expert. If you have questions concerning the surgical treatment of KTS or other vascular lesions of the arms, legs, or trunk, contact him.
Ask the Lymphatic Malformation Expert
Dr. EdmondsVBF is proud to announce the addition of an expert who treats Lymphatic Malformations. Ask Dr. Edmonds your questions related to this vascular lesion.
Ask the Military Surgeon
Dr. ThompsonVBF is proud to welcome Dr. Steve Thompson as our Military surgeon to answer questions about vascular birthmarks to our military families. He is currently working with Dr. Waner in NYC.
Ask the Eye Specialist
Dr. FayDr. Aaron Fay joins VBF as our eye specialist VBF's Eye Specialist will answer questions concerning eye problems and birthmarks.
Ask the Research Expert
Dr.MihmVBF is proud to showcase Dr. Martin Mihm, Jr. as our Research Expert. Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.
Ask the AVM and Extremities Expert
VBF Welcomes Dr. Bob Rosen as our expert for all non-brain AVMs and vascular lesions of the arms and legs. Dr. Rosen welcomes your questions concerning these lesions.
Ask the Internal Lesions Expert
Dr. FishmanVBF is proud is welcome Dr. Steven Fishman of Boston Children's Hospital as our Ask the Internal Lesions Expert. Ask Dr. Fishman your questions about liver and other internal vascular lesions.
Ask the Doctor in Spanish, Portugese, or Italian
VBF is excited to have a multilingual expert. Dr. Piris is from Boston and can answer your questions in Spanish, Portugese, and Italian and of course English. Please send your questions concerning your vascular birthmark or tumor to Dr. Piris.
Ask the Interventional Radiologist
Dr. KonezVBF is proud to add Dr. Orhan Konez as our expert Interventional Radiologist. Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.
Ask the European Surgeon
Dr. TomrisVBF is proud to add Dr. Tombris as a European surgeon expert. He treats all forms of hemangomas, port wine stains and malformations.
Ask the SWS Expert
Dr. ComiVBF is proud to announce that Dr. Anne Comi, one of the leading experts on Sturge Weber Syndrome will be responding to your questions concerning this syndrome. Read more about Dr. Comi and ask her expert advice on SWS.
Ask the KT Expert
Dr. DelfanianVBF is proud to welcome Dr. Delfanian as our Klippel-Trenaunay expert. Send your questions concerning KT Syndrome to Dr. Delfanian.
Ask the PHACES Expert
Dr. MetryVBF is proud to welcome Dr. Denise Metry as our PHACES expert. If you have any questions regarding this syndrome, please ask Dr. Metry.
Ask the Laser Doctor
Dr.AstnerVBF is proud to offer to our families a new service. VBF's Ask the Laser Doctor offers expert advice on laser treatments for all vascular birthmarks by Dr. Susie Astner.
Ask the Doctor's Expert
Dr. WilliamsVBF is proud to announce that Dr. Edwin F. Williams III will be answering emails from physiciansregarding the diagnosis and treatment of individuals with a vascular birthmark.
This form is intended for physicians ONLY. Parents who need assistance should ask an expert. Only physicians will receive a reply.
Ask the Pharmacy Doc
Helen FiggeVBF is proud to offer the services of a Pharmacy Doc who worked for many years at a Vascular Birthmarks Clinic. If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.
Ask the Airway Expert
Dr. MouzakesVBF is proud to announce that Dr. Jason Mouzakes from Upstate New York has joined us as our airway expert. Email Dr. Mouzakes with questions regarding airway hemangiomas and other vascular lesions in the airway (throat area).
Ask Dr. Linda, VBF's President and Founder
Ask the VBF FounderVBF Announces "Ask Dr. Linda." Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.
Ask the CMTC Expert
Lex van der Heijden, Chairman, CMTCVBF is proud to have Lex van der Heijden, Chairman, CMTC, as our Cutis Marmorata Telangiectatica Congentica expert. If you or your child has CMTC, please contact Lex with your questions.
Ask the CMTC Doctor
VBF is proud to announce the addition of Dr. Marilyn Liang of Boston Children's Hospital as our Ask the CMTC expert. Send your questions regarding CMTC to Dr. Liang
Ask the Insurance Appeal Expert
Barbara JoyceVBF is proud to add Barbara (Basia) Joyce as our insurance appeal expert. Please send your questions regarding your appeal or request for out-of-network treatment to Basia.
Ask the Family Services Expert
VBF is proud to have Corinne Barinaga, our Administrative Director, to answer emails concerning family advocacy or treatment issues.
Ask the Developmental Specialist
Elissa Uretsky- Rifkin, M.Ed. CMHC is a trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa  
Ask the Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to leslie    
Ask the Adult Rep in Spanish
AliciaVBF is proud to add Alicia as our Adult with an AVM who can translate your spanish questions to one of our docs and can answer back to you in spanish.
Ask the Makeup Expert
Ask the Makeup ExpertVBF is happy to provide you with an expert opinion regarding the use of make-up to cover a birthmark. Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

Contact the Oral and Dental Experts


Physician to Physician Case Study Forum created by Dr. Orhan Konez

 

VBF NEEDS LANGUAGE TRANSLATORS - SPANISH, PORTUGESE, AND ASIAN LANGUAGES

Babies with Birthmarks™

Babies with BirthmarksOur newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention.

Recent Medical Papers and Research

VBF has a great deal of research available, including a bibliography for offline research.

Countdown to 2007 Port Wine Stain and Vascular Birthmarks Conference:
2007-11-02 00:00:00 GMT+00:00


The Vascular Birthmarks Foundation
along with the

Present the 2007 Port Wine Stain and Vascular Birthmarks Conference

The Vascular Birthmarks Foundation (VBF) is very excited to announce that the 2007 Port Wine Stain and Vascular Birthmarks Conference will be held on Friday, November 2nd and Saturday November 3rd. This conference will take place at the Beckman Laser Institute in Irvine, California and at The Island Hotel minutes away in Newport Beach.

Dr. J. Stuart Nelson, along with the Beckman Laser Institute will be co-sponsors of this year’s conference. The theme is Research Holds the Key.

This conference will be unlike any other conference because the first 100 families that register will receive lodging at a significantly discounted rate for the first night. The first 50 families of those 100 families will receive that same discounted rate for the second night also. The meals that are included are the welcome reception on Friday night, and breakfast and lunch on Saturday. Lodging will be at The Island Hotel www.theislandhotel.com. In addition, the conference fee is only $50 per family and the clinic fee is only $50 per family. Anyone who cannot pay the clinic or conference fee can request that the fees be waived. A $25 deposit is required for each family registering for the conference and this fee cannot be waived. This deposit is non-refundable.

On Friday night, the keynote address will focus on the latest research findings. Dr. Nelson and Dr. Martin Mihm will speak regarding some exciting news about the treatment of port wine stains. In addition, Dr. Milton Waner and Dr. Lou Fink will be presenting on their research concerning hemangiomas, which is also exciting news. Another first will be a presentation on Saturday by Linda Rozell-Shannon (VBF President and Founder). She will be presenting the results from her PhD study concerning how families are impacted by hemangiomas. Breakout sessions on Friday evening will be available to patients and their families. Drs. Nelson and Mihm will facilitate the Port Wine Stain team, Dr. Waner will facilitate the Hemangioma team, Dr. Alex Berenstein will facilitate the Vascular Malformations team, and Dr. Kamiab Delfanian and Dr. Anne Comi will facilitate the Syndrome team.

On Saturday, speakers and topics include:

  • Dr. Nelson – Current trends in the diagnosis and treatment of port wine stains
  • Dr. Mihm – Histopathology of port wine stains
  • Dr. Waner - Latest developments in the diagnosis and management of hemangiomas
  • Dr. Comi – New developments in Sturge-Weber Syndrome
  • Dr. Delfanian – Managing Klippel-Trenaunay Syndrome
  • Dr. Berenstein – Treating vascular malformations
  • Linda Rozell-Shannon – Assessing the burden of hemangiomas on the family system


There will be four teams for the clinic sessions on Saturday:

· Team A – Port Wine Stains – Drs. Nelson and Mihm
· Team B – Hemangiomas – Dr. Waner
· Team C – Sturge-Weber/Klippel-Trenaunay Syndromes – Drs. Comi and Delfanian
· Team D – Vascular Malformations - Dr. Berenstein

The tentative agenda for the weekend includes:

Friday, November 2, 2007

5:00pm-6:30pm Early Registration and Welcome Reception – The Island Hotel

6:30pm-6:50pm Opening Remarks – Linda Rozell-Shannon and Dr. Nelson

6:50pm-7:00pm Remarks by Stephen Dale, founder of the Stephen Dale Project

7:00pm-7:20pm Keynote Address – Drs. Nelson and Mihm

7:20pm-7:40pm Latest Research Concerning Hemangiomas – Drs. Waner and Fink

7:45pm-9:00pm Breakout Sessions

9:00pm-10:00pm VBF Annual Board Meeting

Saturday, November 3, 2007

7:30am-8:30am Early Registration. A complimentary continental breakfast will be served at this time

8:00am-8:30am Daycare Registrations. (Note: The Beckman Laser Institute will provide daycare services at no charge to the families)

8:30am-12:10pm Conference – Agenda to be published at a later date, when it is confirmed

12:10pm-1:00pm Lunch Provided

1:00pm-6:00pm Clinic Appointments at the Beckman Laser Institute (Note: Each family will be given 10-15 minute clinic appointment with a team of birthmark specialists. Please bring films, medical reports and photos to the appointment)

1:00pm-6:00pm Make up sessions available. Please register with Paige at BASPASTS@cs.com

1:00pm-6pm Insurance Appeal/Out of Network Meeting Sessions available. Please register with Basia at BasiaJim99@nycap.rr.com

Important Note: It is very important that you register as early as possible. The first 100 families to register and to send a $25 registration fee will be guaranteed lodging at a discounted rate for the first night (one room) and meals (welcome reception on Friday, and breakfast and lunch on Saturday). The first 50 families of those 100 will be guaranteed lodging for the second night also at a discounted rate. The registration form includes more detail. We will be collecting names of all families that register beyond the initial registrants and will be attempting to get additional funding to cover all meals/lodging. However, at this time, there is only enough funding to pay for those families that register early. The hotel will also offer an extended discounted rate for three days prior to the conference and three days after. These dates include October 30, 31, November 1, and November 4, 5, and 6.

Food is easily accessible at the hotel and at nearby restaurants for all families who wish to attend, but who do not qualify for early registration benefits. No one will be turned away from attending the conference and/or clinic, but everyone who wishes to attend must register and pay a $25 registration fee. The early registrants will be notified by mail that meals and lodging are included. When the early registrant spaces are filled, a notification will be posted on the website. Please visit www.birthmark.org for updates or call Paige Salvador at 856-234-2126.

The Airport for the conference is John Wayne Airport - Airport Code is SNA.

The hotel does not supply transportation from the airport. Please make arrangements. The average cost each way is $10.00.

You may download the registration form from the link below and send it in with your $25 registration fee as soon as possible to VBF, PO Box 106, Latham, NY 12110. Registrations will not be taken over the phone unless you are using a credit card to register. To register by phone with a credit card, contact Paige Salvador, VBF Executive Director, at 856-234-2126. If you have any questions, please e-mail Paige at BASPASTS@cs.com.

As of October 15, 2007, all registrations must be taken by phone. Please call Paige Salvador to register at:

Home: 856-234-2126
Cell: 518-209-6915

   

Tiffany, before laser treatment and intralesional steriod injections by Dr. Stuart Nelson, after treatment, and with her family. Come hear Dr. Nelson talk about the new developments in laser treatments for hemangiomas and port wine stains.

The VBF's 2007 Port Wine Stain and Vascular Birthmarks Conference is sponsored by Cynosure. You can visit them at http://www.cynosure.com


Ethan's t-shirt reads "I put the He Man in Hemangioma"

 

 

Find a PhysicianFind a Parent ResourceBuddy Booby
Meet Buddy Booby, VBF's Officical Mascot

  

Mothers' Day is May 11th
Order flowers ... VBF receives 12% from each order

Help support VBF by purchasing your flowers from Flowerpetal.com.

Beauty Comes From Within
Purchase a pendant or pin….$29.95
Order online or by mail

Vascular Birthmark Support .com offers beautiful jewelry as well as key chains and picture frames with proceeds going to benefit vascular birthmark awareness and fundraising. Visit Vascular Birthmark Support. com today!
Pendant

Purchase silicone bracelets….$5.00
Order online or by mail

Purchase a Buddy Booby Book….$15.99 softcover and $21.99 hardcover

Birthmark Book FREE with $24.95 donation!
Donate online or by mail

Purchase a Birthmark Buddy $15.00
Order online or by mail
VBF Birthmark Bear

Greeting Cards to Benefit VBFGreeting Card Image

 

Purchase Videos from Previous Conferences
Order online or by mail

Use goodsearch…. VBF gets one penny per search
Good Search
www.goodsearch.com


Make Your United Way Pledge to VBF


Go GREEN and Support VBF! Vascular Birthmarks Foundation is partnering with Recycling for Charities, a non-profit organization aimed at reducing electronic waste. By donating your old cell phones, pagers, and other electronic devices you have the unique opportunity to help keep the environment clean and support VBF at the same time! Please click here to learn more about this exciting program and remember to designate VBF as your charity of choice.

VBF NEEDS LANGUAGE TRANSLATORS - SPANISH, PORTUGESE, AND ASIAN LANGUAGES

If you can volunteer your time to translate VBF's key informational pages into one of the above mentioned languages, or in any other language not indicated, contact VBF President and Founder Linda Rozell-Shannon at hvbf@aol.com. There are approximately 24 key pages. Please put "Language Translation" in the subject line. This is very important for our families all over the world to be able to have the highest quality of information and to have it in their own language. We can make a difference, but we need your help to continue to help families all over the world that are affected by vascular birthmarks.

How to Appeal an Insurance Denial or
Request Out-of-Network Treatment
(pdf)

The Catalanotto FamilyPlease join the VBF and Texas Rangers outfielder Frank Catalanotto and his wife Barbara as we team up to strike out vascular birthmarks!

Donna and Evan Ducker and Buddy Booby Make it Big...

CBS Early Show

VBF Gets Referenced in Buddy Booby Birthmark Articles

CBS Early Show

Information for Parents

If you think your child has a hemangioma Click Here...
hemangioma
If you think you or your child has a port wine stain Click Here...
Before and after of port wine stain
If you think you or your child has a venous malformation Click Here...
Before and after of venous malformation

Information on syndromes associated with vascular birthmarks

Multifocal Lymphangioendotheliomatosis with Thrombocytopenia
Read about Jadyn's Journey with this rare vascular syndrome

Multifocal Lymphangioendotheliomatosis With Thrombocytopenia
A Newly Recognized Clinicopathological Entity

Article Located at Archives of Dermatology

Multifocal Lymphangioendotheliomatosis With Thrombocytopenia:
A Rare Cause of Gastrointestinal Bleeding in the Newborn Period

Article Located at Pediatrics

Please Note:
Dr. Waner's Office Has Moved To:
Vascular and Birthmark Institute of New York
126 West 60th Street
New York, NY 10023
Contact Clinical Coordinator directly at:

Corey R. Tournay, R.N., Clinical Coordinator
Vascular Birthmark Institute of New York
126 West 60th Street, Ground Floor
New York, NY 10023
Tel: 212-636-3974
Fax: 212-636-3979
CTournay@chpnet.org

If you have an appointment or are trying to make an appointment please make sure you know that he is now at a new location but still in Manhattan.

VBF is Making a Difference

What Our Families Are Saying



75 Minute Miracle - Anna before and after surgery done by Dr. Waner in 75 minutes

Chapters of the VBF

VBF
VBF Europe
VBF Latin American
VBF New Zealand
VBF Australia
VBF India
VBF Africa
VBF Asia
Sturge-Weber Syndrome Community
SWSC-Canada

Partners

Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks

Participate in our Annual Day of Awareness
Pariticpate in our Annual Book Reading of Buddy's Booby Birthmark Book
Participate in our Kids Who Care Program
Participate in Glens Gang newsletter for kids with birthmarks

See Dr. Waner in Europe
If you are a patient of Dr. Waner's, we are in need of before and after photos. Click here.

YOU CAN HELP - PARTICIPATE IN VARIOUS VASCULAR BIRTHMARKS STUDIES
Research Studies

New! Our list of research studies for vascular birthmark related research.

Low-Dose Aspirin Study for people with SWS

NEW PHACES Study

PWS Study

Use of the Atkins diet for children with Sturge-Weber Syndrome

PHACE Syndrome Registry. Parents of children with PHACE Syndrome registry

The Effect of Facial Hemangiomas on Psycho-Social Development

 

Publications for Parents
Find helpful documents for families

MAKE UP FOR BIRTHMARK COVERING
Nancy Roberts of www.smartcover.com will send anyone who wants to cover a birthmark a gift certificate. Write directly to our Ask the Make-up Expert on our experts corner and receive a free gift certificate for $15.00 towards the purchase of any Smart Cover make up product.


Read Kay's Story (VBF Europe Rep)
Kay before SmartCover and Kay after SmartCover
Make-up by Stacey Craven
Aesthetician/Makeup Artist

Do you have any suggestions to improve the services we offer to our VBF families? Send us your comments and suggestions!

Christine, today Linda Rozell-Shannon and her daughter Christine- The Founder of VBF Tells Her Personal Story

Meet the Webmistress
Missy Scott
Missy has worked with VBF for seven years and is responsible for all technical and design issues of this site. If you have a question or concern about VBF's website, please contact her.

Nevus Clinic (Non-Vascular Birthmarks) Starts at Mass. General Hospital
Dr. Martin Mihm and his team will be seeing patients with congenital nevus (giant hairy, moles, pigmented lesions, etc.) and all other non-vascular birthmarks (Mongolian spots, Spitz Nevus, etc.) in addition to Vascular Birthmarks, at the Saturday clinics at the Mass. General Hospital in Boston. Dr. Mihm is combining the Vascular Birthmarks Clinic with the Congenital Nevus clinic to form the first combined vascular and non-vascular birthmarks clinic. Linda Shannon will be the clinic coordinator at these combined clinics. This clinic is for adults and children. To schedule an appointment, call Andrea at 617-724-1350.