Day of Awareness Events
VBF Board Members
VBF Parent Rep Natalie and Treasurer Brian Bolinger – Texas,
October 2009 – Silent Auction and Texas Hold ‘Em –
Annual event and largest Day of Awareness fundraiser. Their daughter
Nicole had a hemangioma.
VBF Secretary/SWSC Co-Director - Tiffany Ethington and son Glen
Ethington. Tiffany and Glen have an annual interview on noon news
to raise awareness. Glen has Sturge-Weber syndrome/facial Port Wine
Stain, and organized a newsletter and pen pal group for kids with
birthmarks and their siblings/friends called “Glen’s
Gang”. VBF Chapter Director/SWSC Co-founder Glenda Ethington
also helped organize this annual event.
VBF Executive Assistant Basia Joyce – VBF Walk/Run organizer.
Basia’s daughter Anna had a hemangioma.
VBF Director of Musicians with Birthmarks Jenny Legary –
Jenny is putting on a show in NY. Jenny has port wine stain.
VBF Parent Rep Danielle Vlahos – Each year Danielle hosts
a “Jeans Day” at her workplace. Danielle’s son
Cole had a hemangioma.
VBF Parent Rep Lianne Chase – Team running in the VBF
Walk/Run in NY. Lianne’s son Cody has a lymphatic malformation.
VBF Legal - Barbara Rothaupt – VBF Walk/Run organizer
VBF President Dr. Linda Shannon and daughter Christine Shannon
– VBF Walk/Run organizer. Christine had a hemangioma on her
lip and was the inspiration for the organization of VBF.
VBF Parent Rep Elysa Baron and her daughter VBF Student Rep
Saige Cavayero – Selling VBF Kids Who Care bracelets and organizing
a team for the VBF Walk/Run. Saige was the inspiration for the bracelets.
She designed them as a fundraiser for the first VBF Day of Awareness.
Glen’s Gang and the VBF Kids Who Care program used Saige’s
original design for adult bracelets and designed a blue/white swirl
bracelet for children. Saige had extensive facial hemangioma.
Family and Volunteer Events
Donna Ducker and Evan Ducker – International Event - Buddy
Booby Read-Along – Buddy Booby is the mascot for VBF. Mother
and son authored the “Buddy Booby’s Birthmark”
book about a booby bird with PWS. Evan Ducker has a facial PWS
Lisa Burdick – Saegertown, PA Collection Box
Allen Stotler – Sunrise, FL - Collection Box and VBF Starter
Arlin Diaz – Hopelawn, NJ - Collection Box
Mike Jackson – Newton Centre, MA – VBF Starter kits
Rita Jones - Grand Saline, TX - Collection Box
Kate Steele – Dekalb, IL – Collection Box and VBF
informational materials - In Honor of Aliyah Steele and VBF
Karenina – Advance, NC - in Honor of daughter, Juliana
Grubb – VBF informational materials
Bianca Shemper – Hattiesburg, MS – VBF Stickers
Kathy Wyrick – Lake City, FL – Article in local
paper and informational pamphlets
Jan and Andrew Dreger – 3rd annual Awareness Day Event
owned/operated restaurant- Campbell's Boat House in Media, PA. Percentage
of sales donated to VBF
JoAnn Campbell – Media, PA - Buddy Booby Birthmark Read
Along to students at St. Cornelius School. JoAnn is a teacher in
Chadds Ford, PA. Also, video montage shown to students of grandson
Rabbit Hill Nursery School – Springfield, PA - Buddy Booby
Read Along to Owen Dreger's Pre-school class.
Vanessa Beall – Aptos, CA – Collection Box –
In honor of Lillie Nichols
Christine Sylvester – Milwaukee, WI – postcard and
sticker campaign to friends and family
Kathleen Miller – Slingerlands, NY – Lunch and Learn,
collection box – In honor of Camryn Shea Miller
VBF Latin America - Andrea Domingues - São Paulo, Brazil
- Medical Lecture – Each year Andrea hosts a meeting of People
with Hemangioma and Linphangioma Brazil. The conference is organized
by ABRAPHEL, a Brazilian association for people with Hemangioma
and Lynphangioma. Andrea’s daughter, Gabrielle, has Proteus
VBF India - Santo Banerjee – Kolkata, West Bengal, India
– Writing an article in the local newspaper. Santo’s
son, Sumangal, has SWS.
VBF Poland – Ewelina Ochab – plans pending
Sturge-Weber Syndrome Community (SWSC) – Lexington, KY
- Tiffany and Glen Ethington – Tiffany and Glen have an annual
interview on noon news to raise awareness. Glen has SWS/PWS and
organized a newsletter and pen pal group for kids with birthmarks
and their siblings/friends called “Glen’s Gang”.
Mark your calendar!
May 15 is VBF International Day of Awareness
Check out these other VBF Fundraisers
Australian Chapter Representative Eloisa Evangelista at the
First Annual VBF Fundraiser Ball 2007 to celebrate Awareness