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mummarao
12-03-2004, 09:32 PM
Hi

My Daughter is 1 month old..she has light coffee color birth on forehead..our pediatriican mentioned it is Cafe au lait birth mark..
is it possible remove these birtth mark.

1. what is the best laser Treatment for Cafe au lait Birthmark ?
2. what is the Correct age we can start treatment ?

can somebody share their experience/Knowledge treating Cafe au lait birth marks...

Thanks
Rao

RIVKA
12-03-2004, 10:53 PM
Rao,

My daughter was born with this type of birthmark on the left lateral side of her calf. She is now 15, and very happy, healthy, active, etc. I have taken her to numerous dermotologists(I was born with a birthmark and was concerned hers would change), Each dermatologist echoed the same thing: These types of birthmarks generally don't cause any problems. You just keep checking on them to make sure the skin texture or color in that area doesn't change. The research that I have done confirmed this.

The only thing you should make sure of is that this is the CORRECT diagnosis. Otherwise, it coukd be problematic, although these brown patches generally aren't misdiagnosed(as far as my research goes).

Just get a second opinion, if only to put your mind at ease.

If cosmetics is a concern, you should seek out a clinic in your area, after diagnosis, to discuss options.

My daughter loves her birthmark......she thinks it is a 'chocolate kiss' from angels.

Best of luck

Rivka

RIVKA
12-03-2004, 10:54 PM
By the way, is your daughter Hispanic<mine is>?
I have been told that thes Cafe au lait birthmarks are common in the hispanic population.


Rivka

mummarao
12-04-2004, 05:20 PM
Thanks Rivka ...

we are South Asian...

Thanks for sharing your Experience...
Out of your experience did any Dermatologist mentioned any specific treatment for this kind of Birthmark...

sine this on her forehead ,I have little concern for costmetic resons , even it is not helath risk...

nickbar
12-04-2004, 06:37 PM
on the msn site someone mentioned to your post there about laser.
Their doctor does laser on cafe au lait
Corinne

RIVKA
12-05-2004, 10:48 AM
Photothermal(laser) therapy for my daughter's lesion was never indicated. She only has one on her leg about 3 inches long and 2 inches wide, so cosmetics was never really a concern.

I read once that cryosurgery or dermabrasion can be used, but it leaves some scarring.

I cannot emphasize enough the importance that you not rely solely on her ped's diagnosis. (Ped's are great, but not for this.)


You should take her to a dermatoligist and make sure this diagnosis is correct. Then you should proceed. Perhaps you can even ask your Dermatolgist if he/she has patients that have gone through this, went with laser treatment, etc. This may help you in making your decision.

And definately hook up with someone on the board that has already taken the laser route. Then decide if laser would be right for your child.



P.S. I talked to my daughter about this. I asked her if she had been born with the cafe au lait on her face, if SHE would want it removed. She said no if it wasn't something that could hurt her. I was surprised, particularily since she is 15, and kids can be so cruel. She said it was part of her, part of her heritage(she is Puorto Rican and her Grandma has one, as does her Dad--for her, this makes it cool ;) ).

Another thing she said was kids will find something to tease you about, as long as they know it bothers you, its ammo.

I guess how you approach this, if cosmetic, depends on how sensitive she is going to be about her birthmark. At this age, it's pretty hard to judge.

My daughter said she would talk to you about her birthmark if you want. She has been teased once about it(and only once), but she is so comfortable with it because of how we addressed it in our home. In her case, it makes her special.

It's a Mom's call I guess.


B'Shalom
Rivka (and Yakira)

RIVKA
12-05-2004, 10:54 AM
Also, I forgot to mention, I was corrected on something via email. Cafe au lait occures MORE OFTEN in ethnicities with darker pigmentation, not just hispanics.

The cafe au lait is cause by too much melanin(skin color pigment) in certain cells. It can also be a manifestation of other things, but in those cases, I am told, there are more than one cafe au lait.



Rivka

RIVKA
12-05-2004, 11:15 AM
Children's Hospital of Wisconsin has a Dermatology Clinic. You can find it here


Dermatology Clinic at Children's Hospital of Wisconsin
http://www.chw.org/display/PPF/DocID/9999/router.asp



There are two doctors listed at the bottom of the page. I have heard(on this board) good things about Dr. Drolet.


I live in Wisconsin, also, and love the Docs and Staff at CHW.
They're helpful, and they explain everything.

Good luck

Rivka

mummarao
12-06-2004, 08:57 PM
Rivka

Thanks for sharing your experience & useful information.
we are living in NewJersey..

I will get in touch with Doctor Team.in Wisconson Hospital.
still my baby is 6 weeks old , Iam not sure at age we can start the treatment.
since birthmark is my baby's forhead , Iam not sure* how sensitive she is going to be about her birthmark in future..



just Praying God , for good Treatment.

Say our Hi to your Daughter "Yakira" .

Have a nice day
Rao Mumma

smlesnak
12-13-2004, 06:17 PM
I came upon this group b/c my daughter has a strawberry hemangioma on her face. We have had one laser surgery for it. I am replying to you though b/c my 8 year old son has a cafe au lait spot on his leg. It was about the size of my thumb when he was little, it is now larger. I have been told that they are nothing to worry about. He loves it and we told him we put our thumbprint on him when he was born b/c he was so special. He still thinks that and he thinks his birthmark is special. Because of my daughters H on her face I know how you feel and I got laser for her at 3 months b/c I don't want her to have to go through any teasing if it doesn't go away until she's 7 or so. My understanding is that cafe au laits' do not go away and if it bothers you I can totally understand why you would do laser if its possible. I would think if you want to do it it would be better to do it now when little then wait until bigger when it is more traumatic. Also I had a "stork bite" birthmark on my forehead that never totally went away, they are very light and vague but can get easier to see some times then others, i was teased in s chool about it and it was very upsetting for me. Hope this somehow helps a little,

nickbar
12-13-2004, 08:03 PM
Dr. Roy Geronemous
317 East 34th Street
New York, NY 10016-4974
212 686 7306

http://www.laserskinsurgery.com/whatsnew/whatsnew.html
treats cafe au lait spots.

amwhjah
05-28-2005, 04:32 AM
My son has 4 h's and 2 cafe au lait / Mongolian spots.

Joel's Mongolian spots are on his behind, so they are not visible to most people. Dr. Kincannon at ACH is not concerned with them since they have not changed since birth. However, you might want your ped to document VERY well in your child's chart that she has the spots. Joel's look like bruises and our pediatrican was very careful to document them well. Incase we were to ever go to the ER or another doctor, they are often confused with bruises and parents suspected of child abuse/neglect. We had the pediatrician put detailed info about them the size, location and shade in the chart. We also have a few pictures of them as a baseline to notice if there are ever changes in them.

eve
01-11-2010, 08:07 PM
hi Mummaroa

not sure if you still visit this site as it has been year but i was doing research on cafe au lait birthmarks and came across your experience my son is now 3 mths old and has a cafe au lait birthmark on his forehead i am very concerned about it and would like to know how you dealt with your daughter's and what your experience has been

eve
01-12-2010, 04:03 PM
Default cafe au lait on forehead
hi Mummaroa

not sure if you still visit this site as it has been year but i was doing research on cafe au lait birthmarks and came across your experience my son is now 3 mths old and has a cafe au lait birthmark on his forehead i am very concerned about it and would like to know how you dealt with your daughter's and what your experience has been

Briony
09-26-2010, 02:32 AM
Would love to hear if anyone has had success in removing a Cafe au lait birthmark. My daughter Lila is 13 months old and has a Cafe au lait birthmark on her chin. It takes up most of her chin. It was not present at birth & has slowly gotten darker as she has grown older. There are also what appears to be freckles beginning to form inside the mark itself. I am starting to get worried & wonder if anyone has had success with such laser treatments. Just don't know what to do.
Our health nurse said that it would get worse before it got better, which it has & that noone would touch it until she was at least 2 years old.
I am sick of people asking 'what she did to her chin?' or 'have you been eating chocolate?' Please can someone point me in some kind of direction. From reading on this site it sounds like I should book her in to see a Dermatologist. Does anyone have any recommendations in Victoria, Australia?

Kind Regards,
Briony

missy
09-26-2010, 02:57 PM
Everyone that we know of in Australia treats vascular birthmarks and there is no one to recommend in Victoria. However, yes, you should book her in to see the dermatologist.

Take good care!!

Missy

nickbar
09-28-2010, 08:41 PM
Have you checked out vbf- australia? http://vbfaustralia.org/

we have a few doctors listed.

Good luck

rajkumar
12-16-2010, 01:12 PM
Hi

My Daughter is 5year old..she has light coffee color birth on forehead..our pediatriican mentioned it is Cafe au lait birth mark..
is it possible remove these birtth mark.

1. what is the best laser Treatment for Cafe au lait Birthmark ?
2. what is the Correct age we can start treatment ?
3. can it marks stop self after some time or not.

can somebody share their experience/Knowledge treating Cafe au lait birth marks...


Thanks
Rao

Valerie77
12-17-2010, 04:05 PM
Hi I'm 19 i have had a large cafe au lait birthmark my whole life my mom says it was smaller when i was born than it is now it grew larger and got freckels on it but was done growing when i reached about 5 years i have not had any bad experiances with my birthmark some people ask "whats wrong" with it but it doesnt bother me. Most people think its cool i'm sure i was teased about it some growing up but i dont really remember plus kids are going to tease you regardless if you have a birthmark or not. I love my birthmark and i wouldnt get it removed it makes me feel special to have one. Several of my friends never even noticed my birthmark for years even though it is visable and large. The mark itself is a light cream color but the freckels on it are much darker so people just think i have freckles and dont notice the birthmark at first. I think you should let your child decide if they want their birthmark removed when they are old enough to make a good decision i would have been very upset if mine was removed i would not want a scar instead of my awesome birthmark it's their body and their life. Make sure your child is confident in their own skin and they wont have any problems with "being teased" i remember being teased about my nose not my birthmark so it really is no big deal.

Nino05
03-31-2012, 05:31 PM
Im almost 21 years old and I have a cafe au lait birthmark on my forehead. It is located above my right eye brown. I don't usually cut my hair too short because I don't want the sun to make it darker . I had it since I was 3 .. I've learned to live with it . My uncle, who passed away, had one on his arm . His got darker throughout the years and my family had told me that his birthmark started changing ( as in getting darker and turning blue-ish) after he decided to start a treatment to it. I had gone to dermatologists and they don't guarantee if It would go away forever . I wouldn't wanna see a scar on my face. Id rather have the birthmark. It looks light brown and it hasn't changed color throughout the years instead it looked like it got smaller as I got older . It doesn't interfere with my social life . Birthmarks are very common . People usually know someone who has a birthmark so I usually tell people I have a simple birthmark that runs in my family .

David777
04-10-2012, 09:46 PM
Hello .....

David777
04-10-2012, 09:58 PM
Hi

My Daughter is 5year old..she has light coffee color birth on forehead..our pediatriican mentioned it is Cafe au lait birth mark..
is it possible remove these birtth mark.

1. what is the best laser Treatment for Cafe au lait Birthmark ?
2. what is the Correct age we can start treatment ?
3. can it marks stop self after some time or not.

can somebody share their experience/Knowledge treating Cafe au lait birth marks...


Thanks
Rao[/QUOTE]

Hi i dont think it can be removed permanently. i tried laser treatment which is good but unfortunatlly it will be the same again. To be honest i didnt even heard any succesfull case when "CAL" been removed completly and permanently.

jessiet77
01-12-2013, 06:05 PM
I've had a cafe au lait mark on my forehead since I was born. Yesterday, I had a Q switch laser procedure done. (I'm currently 25) From what I've learned It could be lightened or possibly removed compleatly. This may take several treatments. My doctor seemed confident one or two would take care of it. It's a light 1.5 cm2 sized mark. The procedure was very simple. They injected some lydocane (this did hurt a little) as a toppical anastetic. Then they sheiled my eyes and used that laser for about 30 secounds. Now the mark is slightly purple/red on top.

As someone who has grown up with the same problem as your daughter I understand that it can be embarrising being known as the kid with the spot on their head. I started using makeup at a young age. (middle school) It is possible to cover the mark up compleatly with make up. (I use Clinique even better concealer.) My mother was also very against changing something that she says is a part of me. However, I keep telling her it's just how I look not who I am.

Avawest
02-04-2013, 09:02 AM
I've had a cafe au lait mark on my forehead since I was born. Yesterday, I had a Q switch laser procedure done. (I'm currently 25) From what I've learned It could be lightened or possibly removed compleatly. This may take several treatments. My doctor seemed confident one or two would take care of it. It's a light 1.5 cm2 sized mark. The procedure was very simple. They injected some lydocane (this did hurt a little) as a toppical anastetic. Then they sheiled my eyes and used that laser for about 30 secounds. Now the mark is slightly purple/red on top.

As someone who has grown up with the same problem as your daughter I understand that it can be embarrising being known as the kid with the spot on their head. I started using makeup at a young age. (middle school) It is possible to cover the mark up compleatly with make up. (I use Clinique even better concealer.) My mother was also very against changing something that she says is a part of me. However, I keep telling her it's just how I look not who I am.
Hello,

Can i ask if your laser treatment worked? Which type of laser did you use i.e. Yag, ruby, alexandrite? My 6 month old son was born with a large cafe au lait mark on his cheek and i really was hoping that i could get it lasered before he is old enough to realize it is there. I don't want him to feel self-conscious or get teased. Anyhow, i know this type of mark is really hard to remove so i was hoping to hear a positive story of someone who had success with it.

kvreddy
01-22-2014, 06:30 PM
Can someone please share the their experiences with laser? my kid is 21 days old with one cafe au lait. Need suggestions on laser treatment and its side effects.