Vascular Birthmarks Foundation Forum

Vascular Birthmarks Foundation Forum (http://birthmark.org/board/index.php)
-   General Resources (http://birthmark.org/board/forumdisplay.php?f=12)
-   -   10 mnth old vas a VM on her cheek to corner of her lip (http://birthmark.org/board/showthread.php?t=2388)

jodel99 05-18-2007 11:23 PM

10 mnth old vas a VM on her cheek to corner of her lip
 
Hello! My daughter is 10 mnths old and was initially diagnosed as having a bruise from being stuck in the birth canal and then with an hemangioma but I wasn't convinced because it didn't look like the hemangiomas I had seen on the internet. I then asked my dr's for a referal to a specialist and was sent to Duke University to see Dr. Neil Prose. He told me her BM was not an hemangioma but a Vacular Malformation, which I knew from doing research about it. He sent me to Dr. Burton for laser treatments. What is frustrating to me is that none of the dr's can tell me how many tx she will need or show me some results of this type of BM that was treated with Laser. I saw some photos but none that compare to size and color that my daughter has. Can someone help me? I want to do the best thing for her. I know leaving it alone is not an option for us. She is so beautiful and I can't imagine her having to deal with all the teasing in school when she gets there. HELP Me please!
THanks! Joanne

KristieinStMarysGA 05-19-2007 09:56 PM

Hi!
 
Hi Joanne,


I'm glad you found the boards they are a great resource! I have a VM in my left elbow/forearm, I have had treatment (sclerotherapy) and I'm now seeing a doctor at the Mayo Clinic in Jacksonville Florida.

I cannot tell you how laser works for VMs as mine doesn't show up at all on the skin as it's deep and in the muscle, but I would recommend getting an opinon from one of the experts on the main page you can e-mail them and they get back to you pretty quick. Also in South Carolina is Dr.Hochman ( I think I spelled that right) from what I hear he is fantastic might be worth hearing what he has to say.

Hope that helps and welcome to the boards!

Kristie

jodel99 05-21-2007 01:43 AM

Thanks Kristie! I wasn't sure who to ask in ask the experts so I picked the AVM expert. Hopefully he will have some answers for me. Anyway, I was looking insider her mouth today when she was crying and saw that the VM extends to the back of her palate. That scared me alittle and it sort of makes me wonder if there is more to it then meets the eye. Her Dr's dont think it is an AVM but she hasn't had any MRI's or 4-D Xrays so I don't know for sure. I am starting to worry more than I should probably but I can't help it. Thanks again!

KristieinStMarysGA 05-21-2007 01:01 PM

Quote:

Originally Posted by jodel99 (Post 12430)
Thanks Kristie! I wasn't sure who to ask in ask the experts so I picked the AVM expert. Hopefully he will have some answers for me. Anyway, I was looking insider her mouth today when she was crying and saw that the VM extends to the back of her palate. That scared me alittle and it sort of makes me wonder if there is more to it then meets the eye. Her Dr's dont think it is an AVM but she hasn't had any MRI's or 4-D Xrays so I don't know for sure. I am starting to worry more than I should probably but I can't help it. Thanks again!


I'm pretty sure that they would need testing to rule out an AVM, as I was diagnosed with an AVM they did an angio and ruled out AVM that it was just a VM.

I would really try and get her to a Vascular Anomaly specialist and let them have a look at her.

Good Luck!


All times are GMT. The time now is 10:20 PM.

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.