Vascular Birthmarks Foundation Forum

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-   Lymphatic Malformations (also known as cystic hygroma and lymphangioma) (http://birthmark.org/board/forumdisplay.php?f=18)
-   -   lymphatic malformation in neck (http://birthmark.org/board/showthread.php?t=2970)

jmeserve 07-22-2008 06:35 PM

lymphatic malformation in neck
 
My son has a lymphatic malformation in his neck and willl need sclerotherapy. He is 12 weeks old and we have been told to wait until he is 6 months. Does anyone have any advice or info on sclerotherapy, we do not know what to expect?

sweet pea 09-03-2008 12:05 AM

what type of LM does he have? micro or macro? because if it is micro it will be more difficult to treat and the sclero may not help.

tessamom 09-03-2008 02:26 AM

What drug will they be using for the sclerotherapy? Each drug is different as is each LM and how it reacts, most reaction is increase swelling increase red and some minor pain but it is a lot less then the pain or swelling that sometimes comes with surgery, Our daughter has had five injections of OK 432 and waiting for injection six which sound like the drug is not working but each injection is a different macro cyst/ you can email me if you like for more info at wibearmom@yahoo.com


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