My name is Ambyre, I am 21 years old and I live in Albuquerque New Mexico. I have a port whine stain on 3/4 of my body. I have it on the left side of my face, neck, on the lower right part of my back, on the lower part of my stomach, on BOTH of my legs, in patches and areas. Now although my birthmark is not VERY dark, it is red and very bothersome to me. I do thank the Lord for the life he has given me, because without him I would not be here today. I was born with gastroskesis (my intestines were formed outside of my body) I lost more than half of my small intestines. I had 13 surgeries, and the doctors thought I was not going to live. I am alive and doing well today. I am a full time student, and I work, teach graphic design, and basic computer skills. I love my life, my family, my fiance, and the Lord. The one thing I have a hard time with, ON A DAILY basis, is my birthmark. When i was young and people would ask questions about my appearance I would be brave and tell everyone it is my birthmark, and I am proud of who I am, but as I grew older I became embarrassed, and began to wear makeup to cover the port whine stain on my face. People everywhere, could not tell I even had a deformity on my face, but deep down I knew it was there. I now do NOT swim, go out in public wearing shorts/skirts, I have to constantly hide my legs, and any part of my body with the birthmark. I even have nightmares about going out in public and people are staring and talking about my appearance. My relationships were compromised because I could not be open with people about my appearance. I thank the Lord I found a wonderful man I am truly compatible with, who loves me for who I am. When I was in high school I tried laser treatment on my face, and it was painful, and EXTREMELY embarrassing due to the dark black marks it left on my face for a week. I stopped treatment after three sessions, and since then I have not gone back. I have been wanting to have more laser treatment done, particularly on my legs this time. I can handle wearing makeup all the time, but I have been wanting SOOOOO badly to wear shorts, dresses, bathing suit , and skirts. i want to feel normal and pretty when I am out in public. This is my story, and on a daily basis, I constantly think about how I would look without my birthmark. If anyone is reading this, and knows of someone who could help me, let me know. Please. [/b][/b]
I don't know where you are, but if you are avoiding treatments because they are painful, you need to be direct and say so to your doctor. They have things that can help with the pain.
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