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-   -   New to the board...23/male with lymphangioma of the right orbit (http://birthmark.org/board/showthread.php?t=509)

filmguy 02-13-2004 03:49 AM

New to the board...23/male with lymphangioma of the right orbit
 
Now I'm not sure I am on the right board but I am 23 years old and I have a lymphangioma behind my right eye which has caused sweeling of the lid. I had surgery in 3rd grade to debulk the tumor and in 1998 I had a bleed on my brain which caused my to become epileptic. I've only had 3 seizures in that year but I still have a lot of things to work out.

I also have some sort of malformation or possibly a vein on the right side of my forehead. Doctors are unsure exactly what it is at the moment.

This is the first time I have some across any sort of posting for a similar conditon as the lymphangioma and I'm hoping the least I can get out of this boards if some support. I've dealt with a lot and still am. I'm hoping to help as much as I can myself.

Sharing our stories and experiences is the best support we can give to each other. We know what it's like to live with these kind of conditons and I look forward to sharing our posts.

katerina 02-18-2004 04:00 PM

Re:New to the board...23/male with lymphangioma of the right orbit
 
Hey Filmguy,
I just wanted t in to say hang in there because things will get better!
Good Luck

Lise 02-18-2004 10:42 PM

Re:New to the board...23/male with lymphangioma of the right orbit
 
Hi Filmguy,

We're not very numerous with malformations that are not hemangiomas or port wine stains. I have an arteriovenous malformation of the lip. It was operated last year by Dr. Waner and I'm very happy with the results even if it's not possible to get rid completely of the problem. You don't know what is exactly the diagnosis for what you have. It is very important that you see a doctor who knows about vascular birthmarks (there is a list of them under Resources on this site).

I hope you'll come back in this Forum and that I will talk to you again.

Lise





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