Vascular Birthmarks Foundation Forum

Vascular Birthmarks Foundation Forum (http://birthmark.org/board/index.php)
-   Living with a birthmark - my story (http://birthmark.org/board/forumdisplay.php?f=17)
-   -   my husband has a birthmark on his tounge (http://birthmark.org/board/showthread.php?t=5343)

helen 05-27-2011 08:32 PM

my husband has a birthmark on his tounge
 
hi my husband has a birthmark on his tounge he's bin bk and forth 2 london for 19years !! at the eastgrinstead hospital thats where he had his first operation dun it took up 2/3rds of his tounge its pockets of blood but they carnt lazer it it has do b done with stitches to cut of the blood supply has any 1 else ever had this sort of thing dun ...

missy 05-28-2011 12:15 AM

Hi and welcome!

I'm going to have to let someone else answer. Just wanted to tell you to be patient. This forum doesn't get as many readers as others.

Missy

bluevenusbrightstar 10-12-2011 11:40 AM

Hi. I'm new to this forum and just saw your post. I have multiple blue clustered venous malformations growing off my tounge, mostly under it. I don't know if this is the same thing as what your husband has.
I just had "ndyag" laser treatment a few months ago and it worked very well. They didn't try to get everything, but it looks and feels much better now.
The doctor explained that the laser color has to match the color of the lesion, which is why there are very few places that can treat a "true" venous malformation (blue) with a laser. It also doesn't work well on the outside of the body because it will leave a nasty scar.
I don't know if they have this laser where you are. I am in the U.S.
I hope this is helpful. Please send me a private message if you would like more details.
Hang in there!

grafsue 01-08-2012 01:04 PM

I have had lots of laser surgeries done on both legs (as I have a port wine covering about 1/3 of me). Yes, it has faded it a little, but the area is so massive, I would have to make it a fulltime job to get the whole things done. Also, it takes about ten surgeries per area to make any difference. I also heard that it only lasts ten years, like eye surgery.

I am waiting for stem cell surgery to be possible. I hope they can do that before I get into my 50s, as I am afraid my marks will get soar and bleed, as one doctor told me.

I heard Harvard is experimenting stem cell surgeries on port wines. The president has a PWS. Anyone know about this?

kaykay 01-14-2012 10:52 PM

i really dont want my pws to bulk up any more. drinking soup hard enough as it is !

aleena 09-04-2013 07:14 AM

its strange i have never seen or heard about mark on tongue


All times are GMT. The time now is 07:22 PM.

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.