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-   -   Venous Malformatio (http://birthmark.org/board/showthread.php?t=5350)

jacqueea 06-02-2011 03:19 PM

Venous Malformatio
 
Hello, I am a mother to a child with Venous Malformation. I would like to know if there is anyone on here with the same thing that way we could talk and trade stories. I look forward to speeking with anyone of you soon.
Thanks Jacquee

Walsh6 02-27-2012 07:08 PM

my son also has this. He is 14. How old is your child?

tristen365 02-02-2013 04:48 AM

I have an 11 year old son with a facial venous malformation.

tonilynn910 02-14-2013 06:42 PM

I am 35 years old with a avm in my neck.

braspatello 05-20-2013 03:45 PM

I also have a 15yr old son with venous malformation regarding his left side hip down to foot. I'm looking to talk with someone in same situation regarding teenage self esteem at this age.

ATXMom 07-14-2013 04:08 AM

Braspatello - I have an almost-12 yr old daughter with a CVM in her lower right leg - she also has lyphatic microcysts on that leg. I'd like to visit with you about self esteem and confidence issues as I too am trying to support my daughter (7th grade this fall). We live in Texas and she is wearing jeans over her compression therapy tight nearly every day.

missy 07-14-2013 02:54 PM

Please go see: http://birthmark.org/node/246 and find what's going on in our Ask/Accept Anti bullying campaign.

Also, write to Leslie Graff at http://birthmark.org/experts.php and see if she has any coping strategies to share with your families. Self-esteem and confidence can really take a beating at that age.

Missy


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