Vascular Birthmarks Foundation Forum

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-   Help and Resources for Hemangiomas (http://birthmark.org/board/forumdisplay.php?f=9)
-   -   Baby Girl- Segmental Hemangioma (http://birthmark.org/board/showthread.php?t=5459)

njmom 08-25-2011 03:24 PM

Baby Girl- Segmental Hemangioma
 
I just wanted to share how happy we have been with our daughter's treatment, and wanted to share her experience in case it might help anyone else. She was born in February of this year with a birthmark on half of her face and head. At first it was unclear whether or not she had a PWS or a Segmental Hemangioma. We brought her in to NYC when she was 2 weeks old and she had her first laser treatment. At 4 weeks old it was apparent that she had a Segmental Hemangioma, her lip had ulcerated and the birthmark had changed, and she started propenolol at that time. She had laser treatment every 2 weeks for about the first 4.5 months. She is responding very well to the propenolol and now she is getting laser every 4 weeks. She is currently 6 months old and 15lbs and takes 1ML of propenolol every 8 hours. We hope for continued success with her treatment and I also hope that this information is helpful to someone whose baby has a similar diagnosis.

I'd like to post some pictures. What's the best way to do this?

missy 08-25-2011 08:06 PM

If you cannot post a photo email it to contact@birthmark.org and I will post it.


Missy


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