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-   -   AVM in right middle finger (http://birthmark.org/board/showthread.php?t=5537)

sarahcmcdowell 10-23-2011 06:54 PM

AVM in right middle finger
 
My name is Sarah and I am 31 and have had AVM in my finger for about 4-5 years. The hand doctor that I've been going to had diagnosed it with an angiogram. I have two places in my finger: one spot is on the inside of the finger facing the index finger and the other spot, the most painful and problematic, is on the very tip of the middle finger. I am currently taking blood thinners since he said I have developed thrombosis at the top which are causing blood clots. The clots, I believe, are causing numbness at the tip of my finger which I have had for at least a month now and it has been difficult to use my finger at all sometimes. I'm not sure if I will ever get feeling back there or not and I don't know if it's a major issue. I'm wondering, if there is anybody that has them in their fingers:
1. Could there be more than one AVM somewhere else in your body?
2. What is the worst that could happen with an AVM in the finger?
3. What happens if it bleeds out?

I am currently trying to get back to my doctor with these questions. He is also referring me to someone else to take a look in which I will probably ask the same questions. This has worried me quite a bit and I do understand there are more risky places to have them than your finger. I have done research on the internet but most of the sites focus on the brain and spine AVMs. I sure would like to hear from any others who are going through this and their stories as well.

natireu 04-30-2012 09:10 PM

Hi Sarah,

My name is Nathalie , I am 39 and I live in the UK. I have been diagnosed with an AVM in my right ring finger last year. I was originally misdiagnosed and had it operated but this did not work and it grew back with a vengeance.. I contacted you as i was wondering if you had any answers to the questions you posted as they are the same questions i am asking myself.. I am having great difficulty in finding a specialist in that matter .. Have you had any luck? i hope you are OK and that you will be able to help me.
With best regards,
Nathalie

Mel Sal 07-06-2012 06:17 AM

Hey, I have a 6 year old son that was diagnosed with AVM to the left middle June 4th 2012. ANY INFO WOULD BE SOOOO WONDERFUL! Hope all is well...My thoughts are with you.
Mel

imranhank 03-29-2014 08:34 PM

avm in my right finger
 
Hello my name is imran, im currently having an avm in my right middle finger. I had done operation to it overseas to stop the crazy bleeding.
If you can email me back imransoudagar@hotmail.com so we can talk in depth.
Im struggling need someone to talk to.

Thanks
-imran

imranhank 03-29-2014 08:36 PM

avm in my right finger
Hello my name is imran, im currently having an avm in my right middle finger. I had done operation to it overseas to stop the crazy bleeding.
If you can email me back imransoudagar@hotmail.com so we can talk in depth.
Im struggling need someone to talk to.


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