Vascular Birthmarks Foundation Forum

Vascular Birthmarks Foundation Forum (http://birthmark.org/board/index.php)
-   Help and Resources for Hemangiomas (http://birthmark.org/board/forumdisplay.php?f=9)
-   -   10 week old with Deep Hemangioma on top of head (http://birthmark.org/board/showthread.php?t=5538)

michellebaltz 10-26-2011 11:12 PM

10 week old with Deep Hemangioma on top of head
 
Just found this resource today and SO glad I did! New to the world of Hemangiomas. We noticed a small soft-ish bump on the top of our daughter's head near her soft spot when she was about 6 weeks old. It was blue-ish in color and slightly raised. I thought it was part of her soft spot at first, but by her 8-week appt it had gotten a little bigger and I was concerned. Our Ped confirmed that it is a Deep Hemangioma. She said that it would get bigger before getting smaller but that it was in a good spot as it is behind her hairline and should be easliy covered by her hair. She assured us that it isn't a serious medical condition and we shouldn't be worried about it as usually when the H is going to get really big it has already grown a lot more than hers has. In the last 2 weeks, it has grown from the size of a pea to the size of a lima bean (keeping it in the bean family :) ). I'm a little curious/concerned about just how large we should expect this to grow. Anyone had a similar Hemangioma around 10 weeks? Trying not to stress over this...

michellebaltz 10-26-2011 11:20 PM

Here is a pic
 
1 Attachment(s)
Picture of the H next to a dime for size reference. It has gone from nothing to this in the last 3-4 weeks. Fast growth is a little worrisome!

missy 10-27-2011 11:44 AM

Hi and welcome!

She has a very cute top-of-head! Other parents will be around soon to give you their opinions. There are newer treatment options around these days, some as new as two years, so your doctor may not have heard of them.

Where are you located? I would get a second opinion from someone more experienced with these types of birthmarks. You can ask one of our experts here: http://birthmark.org/experts.php

Missy

michellebaltz 10-27-2011 12:08 PM

Rva
 
Thanks! She's pretty cute all around :) We live in Ricmond, VA. Not sure if there are a lot of good resources near us. Just started doing some research in the last few days.

missy 10-28-2011 12:24 AM

Try Dr darrow. I think he is still in Norfolk.

Missy

smurph 10-28-2011 01:38 AM

Hi there and welcome to the best hemangioma resource ever!! I was in your boat about 6 years ago and this site/forum has helped me all the way. I have 4 daughters and 3 have hemangiomas. The most significant was my daughter's lip hemangioma. So I don't really have experience with hemangiomas on the top of the head although I have heard of them a lot. I agree that it's great to get a second opinion from someone who specializes in hemangiomas so that you can at least get lots of informations and learn about your options. It seems like a lot of pediatricians do the "wait and see' approach which often is the best approach, but sometimes is not depending on a lot of factors. So an expert opinion is helpful I think and then you can make the decision that seems best for your child. I just wanted to let you know that you are not alone in this. The beginning can be so hard because you don't know what to expect. How big will it grow? Will it need treatment? How long will it be visible? and on and on. This place is a great resource for info and for support! I'm glad you found it!
Good luck!
Shannon

KatieG 10-31-2011 05:16 PM

My daughter had a large deep hemangioma in front of her soft spot. It grew to the size of a golf ball and we ended up having it removed.

If you are concerned just ask for a referral to a specialist (or find one through here). It never hurts to get another opinion.

Email me if you have any questions! katiegalvin02@yahoo.com

nickbar 11-05-2011 04:40 PM

If you need any help getting information from a specialist let me know. I would be happy to forward anything to Dr. Darrow as well.

miragusa 06-10-2014 06:09 AM

Same Boat
 
Hello-

Well, I just got the news today, my 2 month old daughter has one as well (atop her head, and looks much like yours). The Radiologist said they are more rare atop the head.

I am a bit panicked, and trying to compose myself. I was wondering how your baby is doing now/ what has happened since. How big did it grow? Did you have it removed? If so, how?

Our next steps suggested was to have a neuro surgical consult. We live in Albany NY, and all suggestions and feedback is welcomed and appreciated.

Thank you,
Nervous Mommy

smurph 06-12-2014 02:29 AM

Hi there! Hopefully the original person who posted will check back in and be able to update on who they are doing....it's been a few years. I do not have any firsthand experience with this type of hemangioma but if it were me I guess I would just want to know if the specialist has extensive experience treating/operating on hemangiomas in that location. You can also look online here under Find a Doctor and you will see some great doctors in NY who deal with hemangiomas on a regular basis. I would just try to find out as much info as you can and then that will help you to make an informed decision about treatment. You can also email the experts on here for their opinion and I know that can be very helpful So good luck! I'm sure she is going to fine! It's so scary at the beginning but before you know it she will be growing bigger and stronger and you will be chasing her all around! Keep us posted!
Shannon


All times are GMT. The time now is 06:27 PM.

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.