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-   -   laser question...now or later? does it matter? (http://birthmark.org/board/showthread.php?t=5546)

smurph 11-15-2011 01:40 AM

laser question...now or later? does it matter?
 
Hi! My daughter had laser done in March on what remained of her lip hemangioma...actually they treated the space between her nose and upper lip, because that is where some of the redness remained.

We went for her follow up today and the doc. recommended another laser treatment because there is still a little bit of redness right above her lip line. Although I do see what he is saying, we have decided that we are happy with it the way it is. My daughter is 6 and she doesn't want another treatment. She is happy with it as it is. The doc said that is fine and if she changes her mind we can always do it when she is older.

My question is (and I foolishly forgot to ask him this)....will the outcome be different whether we do it now or later? Like if she decides to do the laser when she's a teenager will it be any harder or easier? Will it work as well?

I am totally comfortable leaving it as is....I just want to make sure I get as much info as I can to check and double check that we are doing the best thing long term.

Any thoughts?
Shannon

missy 11-15-2011 11:46 AM

Hi Shannon,

I don't know that anyone can really tell you that for sure. You know the nature of vascular birthmarks ... they behave the way they behave.

Why don't you ask one of the experts? http://birthmark.org/experts.php Or see if your doctor's office has an email system and you could email there and ask.

My *opinion* is that you ARE doing the best thing long term, no matter what the birthmark does. If she doesn't want another treatment right now, then ... oh well. Children have so little control. We tell them what to eat, wear, where to go. It might be more of an esteem boost to let her *make* this decision, even if it meant an extra laser treatment as a teen.

Missy

PS... and how are you???

smurph 11-16-2011 01:00 AM

Missy,
You are totally right. We went into the appt. yesterday thinking we were done and we need to stick with that, especially with Faith's feelings about it. Now that she is 6 she should have a say in what happens. I was thinking of emailing one of the doctors but since it's not urgent...I was thinking of maybe waiting until the next conference and maybe having the docs take a look and asking them a few questions at that point???

Who knows what kinds of treatments will be available down the road anyway? Things have changed so much even in the past 6 years since Faith first started on the oral steroids!

By the way, did I tell you about Faith's book? She wrote a book called "Faith's Birthmark." We recently got it printed through Snapfish...it came out so cute! She sent a copy of it to Donna and Evan and we are about to send a copy off to Dr. Linda this week! Yesterday, we gave one to Dr. Mulliken so they can keep it at the office at Children's Hospital in Boston for other children to read who may be going through something similar. We had Faith "autograph" the book. She was so proud! Today, for her reading homework, she told me that she wanted to do a "Reading Response" on the book she had written! She got a kick out of writing down her own name as the author! So anyway, yesterday was an overall positive day.

Shannon

missy 11-16-2011 12:56 PM

Quote:

Originally Posted by smurph (Post 24354)
Missy,
You are totally right. We went into the appt. yesterday thinking we were done and we need to stick with that, especially with Faith's feelings about it. Now that she is 6 she should have a say in what happens. I was thinking of emailing one of the doctors but since it's not urgent...I was thinking of maybe waiting until the next conference and maybe having the docs take a look and asking them a few questions at that point???

Who knows what kinds of treatments will be available down the road anyway? Things have changed so much even in the past 6 years since Faith first started on the oral steroids!

By the way, did I tell you about Faith's book? She wrote a book called "Faith's Birthmark." We recently got it printed through Snapfish...it came out so cute! She sent a copy of it to Donna and Evan and we are about to send a copy off to Dr. Linda this week! Yesterday, we gave one to Dr. Mulliken so they can keep it at the office at Children's Hospital in Boston for other children to read who may be going through something similar. We had Faith "autograph" the book. She was so proud! Today, for her reading homework, she told me that she wanted to do a "Reading Response" on the book she had written! She got a kick out of writing down her own name as the author! So anyway, yesterday was an overall positive day.

Shannon

I DID hear something about Faith's book! Tell her I want to score an autographed copy too!

:)

Missy

nickbar 12-01-2011 12:31 AM

Shannon,

We have similar story. Nicholas is now 8 and we and he feel he doesn't need another treatment. His doctor said he could use one more, but up to us of course. At age 6 you are well outside of the growth phase and involution likely will be slow if any...but it shouldn't matter if you do it now or wait now.


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