Best Doc for Orbital Lymphangioma
 

I am a newbie here. I am 43 years old with left orbital lymphangioma diagnosed at birth. I have had 28 surgeries as a child in NYC. I have been stable for 17 years, but now the tumor is active. I am looking for any advice on who the top docs are these days. I live in MA, but am willing to travel.
Thanks,
Kstar

Hi and welcome!

Go to http://birthmark.org/experts.php and look for Aaron Fay. Write to him and see if he can either help you or direct you.

Missy

Nationwide in Ohio
 

I highly recommend Dr. Shiels at Nationwide Children's hospital in Ohio. Even though you are an adult, this is considered a pediatric condition, so it can be treated there. He and his staff have a wonderful new procedure that can be done on an outpatient basis. This article is his:

http://birthmark.org/pdf/LymphaticMa...nTreatment.pdf

Contact information: http://www.nationwidechildrens.org/william-e-shiels

I too highly recommend Dr. Shiels. He is my daughters Dr.