Vascular Birthmarks Foundation Forum

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-   Lymphatic Malformations (also known as cystic hygroma and lymphangioma) (http://birthmark.org/board/forumdisplay.php?f=18)
-   -   3 month old with lymphangioma, venous malformations, and port wine (http://birthmark.org/board/showthread.php?t=6684)

WillowsMama 01-11-2014 02:13 AM

3 month old with lymphangioma, venous malformations, and port wine
 
We are dealing with slow responses to her growing lymphangiomas/ pain. We live in NC but are willing to go elsewhere to get her help. Anyone able to offer a recommendation from personal experience?

missy 01-11-2014 02:34 PM

Hi and welcome!

Where in NC have you tried already? I think there is a good vascular anomalies group at Duke.

Try writing Dr. Levitin at http://birthmark.org/experts.php I know he had a practice in Greensboro at one point, so he might know who to tell you to call. Otherwise, I would try to see him, especially if you are willing to travel.

Missy


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