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-   -   compression garments for VM (http://birthmark.org/board/showthread.php?t=6731)

MIKE B 03-12-2014 02:36 AM

compression garments for VM
 
Hi,

M 1.5 year old has a venous malfomation in her left hand/fingers and arm. We have been to Columbia in NYC and CHOP in Philly and have gotten different opiniins on whether to use compression garments. Does anyone have experience with VM in a toddler, and have you used compression therapy?

thanks,
Mike

missy 03-12-2014 10:40 AM

Hi and welcome!


Other parents will chime in soon. But I'm curious... Did they offer reasons for their opinions? If so, what were they?

Missy

MIKE B 03-12-2014 05:27 PM

reply from Mike B
 
Hi Missy,

The doc's at CHOP did not think compression would work for my duaghter because her fingers were so small. They basically did not think we would be able to get it on her effectively. Columbia has always said we should consider it, but never really pushed the issue until our last appointment in January. Also, most of the places that make these custom garments (home med pharmacies) said they have never done it for someone Ruby's age. They also did not seem confident that it would work. Any advice on where to get the garments made, what type of material to use, how often it should be worn, etc...would be really helpful.

thanks again,
Mike B

abatie 03-18-2014 04:21 PM

I do know that several CMTC kids have had compression garments at a young age and I know that in those cases it was for AVMs. I would guess that it is just an issue with the particular place you are working with. We didn't want to spend the money because we weren't sure how much compression to use and how effective it would be with our daughter. We did however have her wear tights as an infant to give some light compression to aide in circulation. Sorry, I don't really know of the places that other families used to get their custom garments for smaller kids. I will ask around a little and if I find out anything I will come back and post.

MIKE B 03-18-2014 08:44 PM

compression garments for VM
 
Thanks so much for the response and for looking into it for me. We appreciate it. I definately want to try the compression just because I feel she is too young for any other kind of treatment (schlerotherapy), but I want to prevent any further swelling/clotting/pain. Waht is CMTC?

Mike B


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