Vascular Birthmarks Foundation Forum

Vascular Birthmarks Foundation Forum (http://birthmark.org/board/index.php)
-   Help and Resources for Hemangiomas (http://birthmark.org/board/forumdisplay.php?f=9)
-   -   How long can be the treatment with propranolol (http://birthmark.org/board/showthread.php?t=6738)

Sonia Stoyanova 03-25-2014 02:10 PM

How long can be the treatment with propranolol
 
My daughter has segmental hemangioma on his left hand. We started to take propranolol at 3 monts and now she is 13 monts. My question is the following, how long is the effective treatment with propranolo, is it 9 month or 12?
Please can you give me more information how long it can be this treatment in order to be sure that the hemangioma will not grow again.
Thank you vety much.
Sonia

missy 03-25-2014 02:27 PM

Hi and welcome!

Different children and different birthmarks are going to need different treatment lengths, so I don't think this is something anyone else can tell you. I've known of children who were treated for a few months and I've known children who were taking the drug for a couple of years.

I've also known of children who were weaned off the drug, only to have to restart because their birthmark began to grow again.

Missy

momof3inpa2009 04-17-2014 02:17 PM

I will have to look at my blog to see the exact age of when we weaned my daughter off of it but I think she was into a year old or so if not older but do not quote me on that. You can read my blog if you wish to. Good luck!

momof3inpa2009 04-17-2014 02:22 PM

Correction: I just saw in my signauture that my daughter was 19 months old and still on propanolol :(

Sonia Stoyanova 05-06-2014 09:41 AM

Hello Thank you for your replies.
I have one more question, do you know what kind of cream can be use when the hemangioma starts to itch the kid or start to peel. I use a cream which is with corticosteroids and when I put it for two or free days the symptoms disappeared and after 10 days they arrives again.
I`m wondering why after the cream hemangioma has almost white skin and when I do not put this cream starts to become red.
Thank you in advance if you can suggest me some other creams which I can use.
Regards,Sonia

smurph 05-07-2014 01:39 AM

Our doctor always recommended Aquaphor to put on my daughter's hemangioma. I'm not sure if that would be helpful to you. Good luck!
Shannon

Sonia Stoyanova 05-07-2014 08:27 AM

Hello Shannon, Thank you very much for your answer, I have started to read the blog and I see that your daughter is wonderful, hopefully at the moment she des not have a trace from the hemangioma. I also cry very often because here in our country there is no information about such things but we have a really good doctor who treats my baby with proprapronol and the result is very good.
As you have more experience than me, can you please tell me if the hemangiomas treated with this drug has the same life cycle, what I mean even it is treated is there is a possibility to shrink with time or not? My baby has two, one superficial on the hand and one deep in the back, but the one in the back has disappeared after 6 months with propranolol. The one on the hand is still there but now has pink colored. I`m wondering when we stopped the drug if it will shrink or not even it is treated already? Thank you in advance for your reply. Sonia

smurph 05-08-2014 02:50 AM

Hi Sonia. I'm not sure. My daughter was treated with a different drug-prednisolone which was used when we were going through this 9 years ago. I'm not sure if propanolol works the same way. But basically it kept her hemangioma under control when she was on it and then when she came off it grew back a bit (at about age 1)....at that point it started to fade and went through the normal process of involution (fading) that hemangiomas typically follow. Now, my other daughter had a pretty large, bright red hemangioma on her hand/wrist and we did not treat it at all. It TOTALLY went away on its own. So my guess is that with the propanolol the same thing will eventually happen...the drugs maybe speeds up the fading process at the beginning or "hold it back" from growing like crazy during the growth phase and then after that, it goes through the normal process of involution. That's my understanding. Here's some pictures of my daughter's hand hemangioma. I'm not sure if it's similar to your daughter's.

https://www.facebook.com/shannon.hoh...02383&t ype=3

So like I said, I'm not sure if things are different with propanolol...I think they are still figuring that out. But hopefully it will fade over time either way. It's so hard to be patient, but I have seen it happen 3 times (3 our of my 4 daughters have had hemangiomas and they are now all gone!)

Shannon

Kfonte 05-15-2014 01:54 PM

Hi!

My daughter started propranolol for her lower lip H when she was 7 weeks old and was on it until she turned a year. She was taken off but has had considerable rebound growth. She was put on Timolol which did not do anything for her so last Friday she was put back on propranolol. Our doctor told me that she can use it for a total of 15 months. Because we had a 2 month break we can start it back up again but only for 3 months.

Your provider would give you the best idea of what they think is best for your little one. But, that's what ours advised us.

Good luck!


All times are GMT. The time now is 05:30 AM.

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.