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Search: Posts Made By: smurph
Forum: Help and Resources for Hemangiomas 09-06-2014, 08:23 PM
Replies: 4
Views: 5
Posted By smurph
Hi there! She is so adorable! You can email the...

Hi there! She is so adorable! You can email the other photos to Missy at
contact@birthmark.org
She can upload them for you. For me, it's so hard to tell from the pictures- I think a portwine stain...
Forum: Help and Resources for Hemangiomas 09-06-2014, 08:18 PM
Replies: 1
Views: 2
Posted By smurph
Hi there! It looks like it has involuted some...

Hi there! It looks like it has involuted some already and I bet it will continue to do so for the next few years. It's a slow process and it's hard to wait it out sometimes. I'm not sure what the...
Forum: Help and Resources for Hemangiomas 09-06-2014, 08:05 PM
Replies: 12
Views: 13
Posted By smurph
Hi there! For me, it's hard to say because my...

Hi there! For me, it's hard to say because my daughter's laser surgeries were much further down the road- she was 5 and 7 when she had them so it had involuted a lot on its own by then and the laser...
Forum: Help and Resources for Hemangiomas 08-05-2014, 02:42 AM
Replies: 12
Views: 13
Posted By smurph
Great news!!!! Let us know how it goes! :) ...

Great news!!!! Let us know how it goes! :) Thanks for the update.
Shannon
Forum: Help and Resources for Hemangiomas 07-26-2014, 01:17 PM
Replies: 19
Views: 20
Posted By smurph
Hi there! If you feel comfortable with the docs...

Hi there! If you feel comfortable with the docs recommendations then you can always watch it and see how it goes. I would suggest taking pictures of it regularly to document any...
Forum: Help and Resources for Hemangiomas 07-17-2014, 01:27 AM
Replies: 19
Views: 20
Posted By smurph
I'm glad you were able to get an appt. Just tell...

I'm glad you were able to get an appt. Just tell your concerns to the doctor about the propanolol. Good luck! Keep us posted! :) I will be thinking of you on the 24th.
Shannon
Forum: Help and Resources for Hemangiomas 07-14-2014, 07:34 PM
Replies: 4
Views: 5
Posted By smurph
I think the best thing to do is to talk to the...

I think the best thing to do is to talk to the doc that prescribed the Timolol and see if he/she can order it from the U.S. Hope that helps!
Shannon
Forum: Help and Resources for Hemangiomas 07-14-2014, 01:03 PM
Replies: 4
Views: 5
Posted By smurph
Hi there! I can try to look into this. Who...

Hi there! I can try to look into this. Who prescribed the propanolol? Did the same doctor prescribe the timolol cream?
Shannon
Forum: Help and Resources for Hemangiomas 07-11-2014, 09:21 PM
Replies: 19
Views: 20
Posted By smurph
Great news! :)

Great news! :)
Forum: Help and Resources for Hemangiomas 07-11-2014, 11:05 AM
Replies: 19
Views: 20
Posted By smurph
Hi there! I talked with the VBF Family Service...

Hi there! I talked with the VBF Family Service Director and she recommended you see:
Sophia J. Hendrick, MD
900 E. Woodland Avenue
Knoxville, TN 37917
(865) 524-7107
Treated children in Knoxville...
Forum: Help and Resources for Hemangiomas 07-11-2014, 01:24 AM
Replies: 19
Views: 20
Posted By smurph
Honestly, if it were me, I would not delay in...

Honestly, if it were me, I would not delay in seeing a specialist. I have seen people posting on here about ulcerations in the diaper area and they can be very painful and hard to get a handle on. ...
Forum: Help and Resources for Hemangiomas 07-11-2014, 01:12 AM
Replies: 12
Views: 13
Posted By smurph
Oh my goodness-She is so adorable!! I see what...

Oh my goodness-She is so adorable!! I see what you are saying about her hemangioma. Lips can be so tricky. Let us know how her appointment goes in a couple of weeks. Good luck and hope to hear from...
Forum: Help and Resources for Hemangiomas 07-10-2014, 01:29 PM
Replies: 19
Views: 20
Posted By smurph
My daughter's hand hemangioma was not as large as...

My daughter's hand hemangioma was not as large as your daughter's. The best way to explain I think would be to show you these pictures. Hopefully you will be able to see them. Let me know if you...
Forum: Help and Resources for Hemangiomas 07-10-2014, 12:31 AM
Replies: 12
Views: 13
Posted By smurph
Sometimes posting pictures on here is tricky for...

Sometimes posting pictures on here is tricky for some reason. Let me see if I can get Missy to help. I'm not sure if her lip sagged from the weight of the hemangioma or that it was like lumpy...
Forum: Help and Resources for Hemangiomas 07-09-2014, 03:27 AM
Replies: 19
Views: 20
Posted By smurph
I am not sure what is the best route to take. I...

I am not sure what is the best route to take. I would just say that many pediatricians encourage the wait and see approach which is sometimes certainly a viable option, but at other times it is good...
Forum: Help and Resources for Hemangiomas 07-09-2014, 12:10 AM
Replies: 12
Views: 13
Posted By smurph
Hi there! I just want to assure you that you are...

Hi there! I just want to assure you that you are NOT alone in any way. My daughter also had an upper lip hemangioma. She in 9 now but I remember the stress from when she was a baby like it was...
Forum: Help and Resources for Hemangiomas 07-08-2014, 11:38 PM
Replies: 19
Views: 20
Posted By smurph
I guess I was just wondering if it would be at...

I guess I was just wondering if it would be at risk at all for ulceration???? Is it in her diaper area at all? It might be a good idea to take pictures of it on a regular basis to show any...
Forum: Help and Resources for Hemangiomas 07-08-2014, 12:01 AM
Replies: 19
Views: 20
Posted By smurph
Hi there! I'm glad you found this forum. I, like...

Hi there! I'm glad you found this forum. I, like you, have multiple children with hemangiomas. I don't find that to be too common. Where are you located? Is there a way for you to see a specialist?...
Forum: Help and Resources for Hemangiomas 07-03-2014, 03:56 PM
Replies: 16
Views: 17
Posted By smurph
Propanolol is pretty commonly prescribed for...

Propanolol is pretty commonly prescribed for hemangioma these days-hopefully you will see great results! I have not heard of that ointment before-just make sure you check it with the doctor first....
Forum: Help and Resources for Hemangiomas 06-21-2014, 03:08 AM
Replies: 64
Views: 1,834
Posted By smurph
That's the wonderful thing about this forum! :)...

That's the wonderful thing about this forum! :) It brought me a lot of comfort and hope when my daughter was in the early months and I know it has done the same thing for many others. My daughter is...
Forum: Help and Resources for Hemangiomas 06-19-2014, 11:32 PM
Replies: 5
Views: 6
Posted By smurph
Great news!!!! Thanks for updating!! Shannon

Great news!!!! Thanks for updating!!
Shannon
Forum: Help and Resources for Hemangiomas 06-12-2014, 02:29 AM
Replies: 9
Views: 10
Posted By smurph
Hi there! Hopefully the original person who...

Hi there! Hopefully the original person who posted will check back in and be able to update on who they are doing....it's been a few years. I do not have any firsthand experience with this type of...
Forum: Help and Resources for Hemangiomas 06-12-2014, 02:21 AM
Replies: 2
Views: 3
Posted By smurph
Hi there! I have not had experience with this...

Hi there! I have not had experience with this but it sounds like a typical approach to me. If that treatment doesn't help, you could always ask about other options, but it sounds like the doctor...
Forum: Help and Resources for Hemangiomas 06-12-2014, 02:18 AM
Replies: 16
Views: 17
Posted By smurph
Oh I feel so bad! That must be so painful for her...

Oh I feel so bad! That must be so painful for her and so difficult for you too. My daughter's hemangioma was in a different location but it was ulcerated and extremely painful and she cried and...
Forum: Help and Resources for Hemangiomas 06-12-2014, 02:08 AM
Replies: 1
Views: 2
Posted By smurph
Hi there! I know that must seem really scary!...

Hi there! I know that must seem really scary! Where is she being seen? I have not had any firsthand experience with this but I have heard of children having ultrasounds in cases like these. I will...
Showing results 1 to 25 of 405

 
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