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Search: Posts Made By: missy
Forum: AVM Help and Resources 04-09-2014, 12:45 AM
Replies: 2
Views: 3
Posted By missy
Hi You should have gotten an answer from Dr....

Hi

You should have gotten an answer from Dr. Rosen by now. I will look into that.

In the meantime, try writing to the European expert, too.

Missy
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 03-30-2014, 01:28 PM
Replies: 22
Views: 23
Posted By missy
Hi and welcome Go to...

Hi and welcome

Go to http://birthmark.org/experts.php and get in touch with Dr. Levitin. If he can't help you, he will recommend someone who can.


Missy
Forum: Help and Resources for Hemangiomas 03-25-2014, 02:27 PM
Replies: 3
Views: 4
Posted By missy
Hi and welcome! Different children and different...

Hi and welcome!

Different children and different birthmarks are going to need different treatment lengths, so I don't think this is something anyone else can tell you. I've known of children who...
Forum: Announcements 03-24-2014, 01:58 PM
Replies: 0
Views: 1
Posted By missy
Happy 20th Anniversary to VBF!

http://birthmark.org/node/278
VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

On Friday, October 10,...
Forum: AVM Help and Resources 03-12-2014, 10:40 AM
Replies: 4
Views: 5
Posted By missy
Hi and welcome! Other parents will chime in...

Hi and welcome!


Other parents will chime in soon. But I'm curious... Did they offer reasons for their opinions? If so, what were they?

Missy
Forum: Help and Resources for Hemangiomas 03-08-2014, 04:03 AM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! Please visit...

Hi and welcome!

Please visit http://birthmarks.org/experts.php and send that picture to one of our experts. I don't really think that is another uncertain...it might be a sign of involution. I...
Forum: Help and Resources for Hemangiomas 02-21-2014, 12:13 AM
Replies: 11
Views: 12
Posted By missy
Hi, Call the plastic surgeons and see if they...

Hi,

Call the plastic surgeons and see if they take pediatric patients. Worry more about the doctor's experiences, not their title. If those listed will not see pediatric patients, then ask them...
Forum: Help and Resources for Hemangiomas 02-21-2014, 12:11 AM
Replies: 4
Views: 5
Posted By missy
Hi and welcome! Go to...

Hi and welcome!

Go to http://birthmarks.org/experts.php and ask Dr. Levitin. He will write you back quickly and give you good advice.

Missy
Forum: Help and Resources for Hemangiomas 02-19-2014, 06:00 PM
Replies: 4
Views: 5
Posted By missy
Hi and welcome! Where are you located? I think...

Hi and welcome!

Where are you located? I think your idea that the hemangioma might be putting pressure on the sinuses is one that needs investigation. I'd like to be able to hook you up to some...
Forum: Help and Resources for Hemangiomas 02-13-2014, 08:42 PM
Replies: 11
Views: 12
Posted By missy
Here ya go! If it were going to grow...

Here ya go!

If it were going to grow significantly, I would think it would be larger by now. As it is, I would just monitor this.

Having a diagnosis by a pediatrician already should enable you to...
Forum: Help and Resources for Hemangiomas 02-13-2014, 02:32 PM
Replies: 11
Views: 12
Posted By missy
Hi and welcome, If you will send your photo as...

Hi and welcome,

If you will send your photo as an attachment to contact@birthmark.org I will resize it and add it to this thread.

Everyone's baby's hemangiomas look different. Many start out as a...
Forum: Port Wine Stain Help and Resources 02-06-2014, 01:18 AM
Replies: 2
Views: 3
Posted By missy
I'm sorry. How frustrating! I hate when stuff...

I'm sorry. How frustrating! I hate when stuff like that happens!

Missy
Forum: AVM Help and Resources 02-02-2014, 10:21 PM
Replies: 5
Views: 6
Posted By missy
It can occur anywhere in the body, yes. I...

It can occur anywhere in the body, yes.

I don't know if her doctor would choose to do a local or general... I think that would depend on depth. It might be better to go with general, given her...
Forum: AVM Help and Resources 02-01-2014, 12:34 PM
Replies: 5
Views: 6
Posted By missy
Hi and welcome! A good percentage of the...

Hi and welcome!

A good percentage of the vascular malformations I've heard about are localized. Unless she is having problems in other areas, I wouldn't worry too much.

How old is your daughter? ...
Forum: Help and Resources for Hemangiomas 01-21-2014, 11:11 PM
Replies: 4
Views: 5
Posted By missy
I saw it a few minutes ago and replied back. ...

I saw it a few minutes ago and replied back. Attach your photos to that email and I'll send the whole bunch to him in one package!

Thanks,

Missy
Forum: Help and Resources for Hemangiomas 01-18-2014, 02:02 PM
Replies: 0
Views: 1
Posted By missy
Research for Patients who have used Propranolol

http://birthmark.org/node/280

If you have the time and would like to give your opinion to this important study, please click on the link above and get in touch with them!

Missy
Forum: Help and Resources for Hemangiomas 01-13-2014, 12:56 PM
Replies: 3
Views: 4
Posted By missy
Hi and welcome! We have an expert there in...

Hi and welcome!

We have an expert there in Orange County and one in Los Angeles County. Go to http://birthmarks.org/experts.php and write to Dr. Nelson and write to Dr. Levitin. Both will help...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 01-13-2014, 12:50 PM
Replies: 1
Views: 2
Posted By missy
I remember seeing your question go through. I...

I remember seeing your question go through. I think you did not provide the correct email address and we could not mail you back. If you will send an email to contact@birthmark.org I will find your...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 01-11-2014, 02:34 PM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! Where in NC have you tried...

Hi and welcome!

Where in NC have you tried already? I think there is a good vascular anomalies group at Duke.

Try writing Dr. Levitin at http://birthmark.org/experts.php I know he had a...
Forum: Living with a birthmark - my story 12-31-2013, 01:21 PM
Replies: 2
hi
Views: 3
Posted By missy
Hi and welcome! Without seeing a photo of it, no...

Hi and welcome!

Without seeing a photo of it, no one here can really tell you what kind of birthmark it is. If you are worried that it might be causing some neurological problem, then it might be...
Forum: Port Wine Stain Help and Resources 12-27-2013, 01:41 PM
Replies: 5
Views: 6
Posted By missy
Hi and welcome! I can barely see your birthmark!...

Hi and welcome!

I can barely see your birthmark! Plus, I think you look about 12 years old, but I'm an old lady, so my opinion probably doesn't mean much.

What are you studying? You are very...
Forum: AVM Help and Resources 12-19-2013, 01:29 PM
Replies: 2
Views: 3
Posted By missy
I can't think of any offhand. But where are you...

I can't think of any offhand. But where are you located? There may be some local resource for you. For example, our news channel does that sort of thing in December - grants wishes.

Missy
Forum: Adults Living with Birthmarks 12-17-2013, 02:16 PM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! You should probably ask our AVM...

Hi and welcome!

You should probably ask our AVM expert via http://birthmark.org/experts.php

Congratulations on your pregnancy! When are you due? March, maybe?

Missy
Forum: Port Wine Stain Help and Resources 12-15-2013, 03:35 PM
Replies: 9
Views: 10
Posted By missy
OH MY GOD!! That is AWESOME! I'm so pleased for...

OH MY GOD!!

That is AWESOME! I'm so pleased for you!

So, when?

Missy
Forum: Port Wine Stain Help and Resources 12-14-2013, 03:10 PM
Replies: 1
Views: 2
Posted By missy
Hi, Where are you located and do you know what...

Hi,

Where are you located and do you know what kind of laser was used? Was the laser for her third treatment different from the laser used before?

Missy
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