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Search: Posts Made By: ruthless009
Forum: Help and Resources for Hemangiomas 04-18-2012, 01:16 PM
Replies: 15
Views: 16
Posted By ruthless009
Boston said this is how they would treat it and...

Boston said this is how they would treat it and yeah we heard back last week. Met with our guy here and he said he has never seen such a tough case since it wraps into his vocal cords and pressing...
Forum: Help and Resources for Hemangiomas 04-16-2012, 06:11 PM
Replies: 15
Views: 16
Posted By ruthless009
Boston said that we should do scherotherapy.......

Boston said that we should do scherotherapy.... so we're off everything else at this point in time..... meet with the doc here, going with the doc that Boston recommendded in Chicago
Forum: Help and Resources for Hemangiomas 04-03-2012, 09:10 PM
Replies: 5
Views: 6
Posted By ruthless009
look like most I have seen pixs of good luck

look like most I have seen pixs of good luck
Forum: Help and Resources for Hemangiomas 04-03-2012, 09:08 PM
Replies: 19
Views: 20
Posted By ruthless009
been on proprananol almost a year, but didn't...

been on proprananol almost a year, but didn't start til 18 months, I hear the younger the better, and no side effects at all
Forum: Help and Resources for Hemangiomas 03-15-2012, 06:30 PM
Replies: 17
Views: 18
Posted By ruthless009
Glad things went so well, I'll hang onto her name...

Glad things went so well, I'll hang onto her name depending on what happens with my sons, his lip looks similar to your daughters but his hasn't gone down yet
Forum: Help and Resources for Hemangiomas 03-12-2012, 02:04 PM
Replies: 8
Views: 9
Posted By ruthless009
I've seen where kids on the babycenter support...

I've seen where kids on the babycenter support group for this used proprananol and had good results with it. I concur with the earlier post to find a specialist. They didn't start treatment on my...
Forum: Help and Resources for Hemangiomas 03-08-2012, 01:26 PM
Replies: 15
Views: 16
Posted By ruthless009
Still waiting to hear form Boston Children's,...

Still waiting to hear form Boston Children's, hoping by the end of next week, we're getting feenerek? this week to help with the nausea, and hopefully I can keep the fever down. At least I'm able to...
Forum: Help and Resources for Hemangiomas 03-05-2012, 08:00 PM
Replies: 15
Views: 16
Posted By ruthless009
Angry So the vinchristine that isn't suppose to make...

So the vinchristine that isn't suppose to make him sick is..grrrrrrrr
Forum: Help and Resources for Hemangiomas 03-02-2012, 05:57 PM
Replies: 2
Views: 3
Posted By ruthless009
nice work, she's a cutie

nice work, she's a cutie
Forum: Help and Resources for Hemangiomas 02-24-2012, 01:59 PM
Replies: 17
Views: 18
Posted By ruthless009
interesting my son's look looks similar we we...

interesting my son's look looks similar we we talked to the plastic surgeon they generraly like to wait as long as they can due to the growing body, if they fix it earlier and they grow they might...
Forum: Help and Resources for Hemangiomas 02-23-2012, 05:33 PM
Replies: 15
Views: 16
Posted By ruthless009
port placement went well today, the doc is...

port placement went well today, the doc is sending stuff out to Boston this afternoon she has a contact out there and has worked with them in the past. She has been very happy with the response they...
Forum: Help and Resources for Hemangiomas 02-23-2012, 11:00 AM
Replies: 15
Views: 16
Posted By ruthless009
It was a very faint blueish mark on his lip and...

It was a very faint blueish mark on his lip and tongue when he was born. They watched it and told me it would stop growing at a year and go away. It was at 15 months they finallly decided it hadn't...
Forum: Help and Resources for Hemangiomas 02-23-2012, 02:00 AM
Replies: 4
Views: 5
Posted By ruthless009
propanol is the first step of many to trying to...

propanol is the first step of many to trying to resolve them, they work on some not on others
Forum: Help and Resources for Hemangiomas 02-23-2012, 01:58 AM
Replies: 8
Views: 9
Posted By ruthless009
my son is 21 months old and they won't operate on...

my son is 21 months old and they won't operate on his at this not at Devos Children hospital grand rapids, mi , because yes I wish they would just remove it, make my life easier..... his is inside...
Forum: Help and Resources for Hemangiomas 02-23-2012, 01:55 AM
Replies: 15
Views: 16
Posted By ruthless009
Vinchristine anyone???

My son is 21months and we've been treating his hemang, for 6 months now, tomorrow he gets a port place for vinchristne due to it being in his head and neck, if continues to grow through the treatment...
Forum: Help and Resources for Hemangiomas 02-23-2012, 01:53 AM
Replies: 5
Views: 6
Posted By ruthless009
My son has been on that for about 6 months along...

My son has been on that for about 6 months along with a month of steriods. They had me go in weekly for 2 weeks to check blood pressure we've had not problem, he was just over a year when he...
Showing results 1 to 16 of 16

 
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