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Posts Made By:
nickbar
Forum:
Help and Resources for Hemangiomas
Yesterday, 04:14 PM
Replies:
7
My Hemangioma .
Views:
8
Posted By
nickbar
Hello Ghaidaa, My name is Corinne Barinaga and I...
Hello Ghaidaa,
My name is Corinne Barinaga and I am the Director of Family Services for VBF.
I wanted to make sure you had your questions answered by Dr. Levitin or if you have additional...
Forum:
Help and Resources for Hemangiomas
01-17-2013, 01:07 AM
Replies:
7
Abdominal Ultrasound and Hemangioma
Views:
8
Posted By
nickbar
Please do give us an update if you have had a...
Please do give us an update if you have had a chance to have the ultra sound.
Forum:
Help and Resources for Hemangiomas
09-11-2012, 01:05 AM
Replies:
4
Cavernous Hemangioma on shoulder
Views:
5
Posted By
nickbar
Is there anyway you could send me a photo? you...
Is there anyway you could send me a photo? you can email me at vbfadvocate@live. com
I know it is difficult to deal with how rude people can be. My advice (and it was the best way I could cope)...
Forum:
Help and Resources for Hemangiomas
08-01-2012, 08:23 PM
Replies:
7
First-time derm visit for an H: What questions should we ask?
Views:
8
Posted By
nickbar
Hello, You did get the typical response...but...
Hello,
You did get the typical response...but doesn't mean it isn't valid. Keep taking photos and if at any point you feel things are not going the right direction, get another opinion. You are the...
Forum:
Help and Resources for Hemangiomas
08-01-2012, 08:20 PM
Replies:
6
Intramuscular Hemangioma
Views:
7
Posted By
nickbar
WHere are you located?
WHere are you located?
Forum:
Help and Resources for Hemangiomas
08-01-2012, 08:17 PM
Replies:
4
dormant hemangioma?
Views:
5
Posted By
nickbar
Hello, I would call this "delayed...
Hello, I would call this "delayed growth" would be a better way to describe it. I have heard of patients being treated with oral steroids early on (for other health issues, no sign of hemangiomas)...
Forum:
Help and Resources for Hemangiomas
05-30-2012, 02:30 PM
Replies:
7
First-time derm visit for an H: What questions should we ask?
Views:
8
Posted By
nickbar
If you would like to email me, I can send you a...
If you would like to email me, I can send you a document with common questions to ask.
Forum:
Help and Resources for Hemangiomas
03-01-2012, 04:14 PM
Replies:
4
Laser vs. propanolol
Views:
5
Posted By
nickbar
Your daughter is adorable. The good news is...
Your daughter is adorable. The good news is that the hemangioma has stopped growing. However, the reason you might not be seeing the shrinking of the h. might be related to how late the...
Forum:
Help and Resources for Hemangiomas
03-01-2012, 04:03 PM
Replies:
4
I don't know what it is...
Views:
5
Posted By
nickbar
I would recommend having it evaluated by a...
I would recommend having it evaluated by a dermatologist or specialist with experience in this field. If you need help finding someone, feel free to email me.
Forum:
General Resources
02-29-2012, 02:55 PM
Replies:
17
new treatment
Views:
18
Posted By
nickbar
ummmm... sounds fishy. I don't see any doctor...
ummmm... sounds fishy. I don't see any doctor support in this article.
Forum:
Help and Resources for Hemangiomas
02-29-2012, 02:51 PM
Replies:
17
Surgery on lower lip hemangioma
Views:
18
Posted By
nickbar
Hopefully this passes quickly!
Hopefully this passes quickly!
Forum:
Help and Resources for Hemangiomas
02-29-2012, 02:49 PM
Replies:
4
I don't know what it is...
Views:
5
Posted By
nickbar
Hi, I was about to type the same words as...
Hi, I was about to type the same words as Shannon. If you have any trouble getting a reply, let me know and I can forward an email for you.
Forum:
Help and Resources for Hemangiomas
02-29-2012, 02:47 PM
Replies:
8
Surgery Route: What do I ask at first visit?
Views:
9
Posted By
nickbar
Great news!, keep us posted.
Great news!, keep us posted.
Forum:
Help and Resources for Hemangiomas
02-27-2012, 03:45 PM
Replies:
15
Vinchristine anyone???
Views:
16
Posted By
nickbar
I would also suggest getting a second opinion. ...
I would also suggest getting a second opinion. If you would like any help, please feel free to email me.
Forum:
Help and Resources for Hemangiomas
02-27-2012, 03:43 PM
Replies:
3
Surgery on lower lip H went well
Views:
4
Posted By
nickbar
Congratulations!
Congratulations!
Forum:
Help and Resources for Hemangiomas
02-27-2012, 03:42 PM
Replies:
2
Pre and Post Laser and Propranolol for Lower Lip H
Views:
3
Posted By
nickbar
She is so adorable! Thank you for sharing the...
She is so adorable! Thank you for sharing the update and photos
Forum:
Announcements
01-31-2012, 06:16 PM
Replies:
1
New LM Study from Stanford
Views:
2
Posted By
nickbar
New LM Study from Stanford
Even though this is VERY new research, I thought you would enjoy reading about continued efforts to help our families. ...
Forum:
Port Wine Stain Help and Resources
01-31-2012, 06:11 PM
Replies:
5
PWS + Kids
Views:
6
Posted By
nickbar
Pregancy can cause issues with malformations, but...
Pregancy can cause issues with malformations, but usually more significant with extremities and patients with VM, or KTS. I would encourage you to write to Dr. Nelson on the ask the expert page. If...
Forum:
AVM Help and Resources
01-30-2012, 01:22 AM
Replies:
10
very depressed, the complications have arrived.
Views:
11
Posted By
nickbar
Glad to hear you talked with them.
Glad to hear you talked with them.
Forum:
General Resources
01-30-2012, 01:19 AM
Replies:
3
Angiokeratoma? What?
Views:
4
Posted By
nickbar
Did the doctor you spoke to provide you with...
Did the doctor you spoke to provide you with treatment options?
Forum:
Port Wine Stain Help and Resources
01-30-2012, 01:17 AM
Replies:
5
PWS + Kids
Views:
6
Posted By
nickbar
Eri, Given your location, I have not heard of...
Eri,
Given your location, I have not heard of pregnancy causing issues. Do you mind sharing your age?
Corinne
Forum:
Help and Resources for Hemangiomas
01-30-2012, 01:14 AM
Replies:
4
Nasal Tip H - Treatment and outcome questions
Views:
5
Posted By
nickbar
When is your next appointment?
When is your next appointment?
Forum:
Help and Resources for Hemangiomas
01-30-2012, 01:11 AM
Replies:
10
Laser in 2 days!
Views:
11
Posted By
nickbar
So happy to read your update today. I am so glad...
So happy to read your update today. I am so glad it went well. keep us posted on the progress. It can take up to 10 days before you see the full results.
Corinne
Forum:
Help and Resources for Hemangiomas
01-25-2012, 01:45 AM
Replies:
10
Laser in 2 days!
Views:
11
Posted By
nickbar
Shannon gave you great advice, so I just want to...
Shannon gave you great advice, so I just want to encourage you to come back and give us updates :)
Forum:
Help and Resources for Hemangiomas
01-25-2012, 01:43 AM
Replies:
6
6 week old with fast growing H - laser or drug treatment?
Views:
7
Posted By
nickbar
please feel free to email me photos and I can...
please feel free to email me photos and I can forward them to the experts.
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