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Posts Made By:
missy
Forum:
Help and Resources for Hemangiomas
05-11-2013, 10:54 PM
Replies:
9
So many questions...
Views:
10
Posted By
missy
Hi and welcome! You're right. There's no...
Hi and welcome!
You're right. There's no predicting what will happen. Have you discussed proplanolol with your physician yet?
Missy
Forum:
Announcements
05-10-2013, 03:05 PM
Replies:
0
2013 Conference in Irvine, California
Views:
1
Posted By
missy
2013 Conference in Irvine, California
VBF is very excited to announce that despite the economy the Port Wine Stain and Vascular Birthmarks Conference will be held once again in Irvine, California on Saturday, October 12th. This...
Forum:
Port Wine Stain Help and Resources
05-10-2013, 02:34 PM
Replies:
0
Amazing Breakthrough!
Views:
1
Posted By
missy
Amazing Breakthrough!
Cause of Port Wine Stain/SWS Identified in Recent Study (http://www.webmd.com/skin-problems-and-treatments/news/20130508/researchers-pinpoint-cause-of-port-wine-stain-birthmarks)
Or download the...
Forum:
Lymphatic Malformations (also known as cystic hygroma and lymphangioma)
05-03-2013, 09:26 PM
Replies:
3
please recommend a good doctor in bay area for microcystic lymphatic malformation
Views:
4
Posted By
missy
California? See if you can go see Dr....
California? See if you can go see Dr. Frieden:
Dr. Ilona Frieden
University of California at San Francisco
Box 0316
San Francisco, CA 94115
friedeni@derm.ucsf.edu
Nurse: Louise Crotwell...
Forum:
Help and Resources for Hemangiomas
04-30-2013, 10:34 AM
Replies:
7
Hemangioma in corner eye
Views:
8
Posted By
missy
Any chance you could go...
Any chance you could go here:
http://www.sickkids.ca/PlasticSurgery/What-we-do/Vascular-Anomalies-Clinic/index.html
My opinion is that you do need to have a specialist look at it. Hemangiomas can...
Forum:
Help and Resources for Hemangiomas
04-29-2013, 12:47 PM
Replies:
7
Hemangioma in corner eye
Views:
8
Posted By
missy
Hi and welcome! You should see if you can find a...
Hi and welcome!
You should see if you can find a specialist. Hemangiomas near the eye usually do require treatment as they can sometimes distort the eye itself and affect vision. Where are you...
Forum:
Port Wine Stain Help and Resources
04-20-2013, 11:46 PM
Replies:
18
What to expect post laser
Views:
19
Posted By
missy
Yes, you should absolutely use sunscreen every...
Yes, you should absolutely use sunscreen every day.
When is the next treatment?
Forum:
Help and Resources for Hemangiomas
04-16-2013, 02:28 AM
Replies:
2
Hemangioma on upper lip
Views:
3
Posted By
missy
Hi and welcome! Lots of people here have gone...
Hi and welcome!
Lots of people here have gone that route and they will post soon.
I didn't want you to have to wait for a response, but have no advice. Have you chosen a physician yet?
Missy
Forum:
General Resources
04-15-2013, 11:24 AM
Replies:
1
worried about my daughter's supposed birthmark
Views:
2
Posted By
missy
Hi and welcome! I'm not sure I could say for...
Hi and welcome!
I'm not sure I could say for sure what that was. I don't know that a dermatologist is going to be able to help. Where are you located? Is there a specialist close to you?
Missy
Forum:
Lymphatic Malformations (also known as cystic hygroma and lymphangioma)
04-02-2013, 12:10 PM
Replies:
3
Lymphangioma Circumscriptum
Views:
4
Posted By
missy
Hi and welcome again! I don't have advice for...
Hi and welcome again!
I don't have advice for you, just wanted to say hi. Do get in touch with one of the experts, if you haven't already. Http://birthmark.org/experts.php
Missy
Forum:
Lymphatic Malformations (also known as cystic hygroma and lymphangioma)
03-26-2013, 11:06 AM
Replies:
2
Doctor near Michigan?
Views:
3
Posted By
missy
Hi and welcome! If you look at...
Hi and welcome!
If you look at HTTP:\\birthmark.org\node\47 then you will find listings there.
Missy
Forum:
General Resources
03-13-2013, 09:21 PM
Replies:
1
help.. dont know what kind of vascular malformation son has
Views:
2
Posted By
missy
Hi and welcome! Many times, it's too difficult...
Hi and welcome!
Many times, it's too difficult to diagnose by imaging studies alone and surgically removing it is the only way to tell what exactly it is.
That said, it's still your option not to...
Forum:
Help and Resources for Hemangiomas
03-13-2013, 01:48 PM
Replies:
14
successful propranolol treatment!
Views:
1,337
Posted By
missy
Hi and welcome! Hemangioma is a term that refers...
Hi and welcome!
Hemangioma is a term that refers to a birthmark that only babies have. They resolve in some way or other by puberty.
If you have a vascular birthmark as an adult, it is either a...
Forum:
Port Wine Stain Help and Resources
03-13-2013, 12:13 AM
Replies:
1
Is this port wine stain?
Views:
2
Posted By
missy
To upload photo, go to "manage...
To upload photo, go to "manage attachments." If you have trouble, email it to contact@birthmark.org and I'll take care of it.
Missy
Forum:
Help and Resources for Hemangiomas
03-12-2013, 09:43 PM
Replies:
19
Hemangioma on head-7weeks-advice please
Views:
20
Posted By
missy
Good luck, Sarah, and keep us updated! Missy
Good luck, Sarah, and keep us updated!
Missy
Forum:
Help and Resources for Hemangiomas
03-11-2013, 12:27 AM
Replies:
19
Hemangioma on head-7weeks-advice please
Views:
20
Posted By
missy
Let us know what happens. Missy
Let us know what happens.
Missy
Forum:
Help and Resources for Hemangiomas
03-09-2013, 02:22 PM
Replies:
19
Hemangioma on head-7weeks-advice please
Views:
20
Posted By
missy
Photos
Here you go!
Forum:
AVM Help and Resources
03-04-2013, 10:59 AM
Replies:
6
Will Be Seeing Dr. Yakes
Views:
7
Posted By
missy
Thank you for the update. I'm so glad you've...
Thank you for the update. I'm so glad you've seen progress. That's encouraging.
Missy
Forum:
Adults Living with Birthmarks
02-27-2013, 11:20 AM
Replies:
1
The number seven
Views:
2
Posted By
missy
That's a cute story. :) Missy
That's a cute story.
:)
Missy
Forum:
Help and Resources for Hemangiomas
02-18-2013, 01:59 PM
Replies:
2
Adice needed- Hemangioma on sons nose
Views:
3
Posted By
missy
Hi and welcome! Congratulations on your almost...
Hi and welcome!
Congratulations on your almost new baby!!
Can you post a photo? And, where are you located? Have you been able to see a specialist?
Missy
Forum:
Help and Resources for Hemangiomas
01-29-2013, 07:57 PM
Replies:
3
Hemangioma Headaches?
Views:
4
Posted By
missy
Hi and welcome, More than likely, what you have...
Hi and welcome,
More than likely, what you have is not technically a hemangioma. That is the term for a birthmark that goes away by the time puberty is reached (usually earlier). However, back...
Forum:
Lymphatic Malformations (also known as cystic hygroma and lymphangioma)
01-22-2013, 11:20 AM
Replies:
2
LM in cheek
Views:
3
Posted By
missy
Hi and welcome! I don't know that you're going...
Hi and welcome!
I don't know that you're going to find anyone to answer your question quickly. If you go over to the ask the expert section and write in to Dr. Linda, she may be able to help...
Forum:
Help and Resources for Hemangiomas
01-09-2013, 11:14 AM
Replies:
1
Possible Diaper Area Hemangioma
Views:
2
Posted By
missy
Hi and welcome! If you send a photo to...
Hi and welcome!
If you send a photo to contact@birthmark.org I'll post it for you. I can crop out everything but the rash.
Where are you located? It might be wise to see a specialist if it...
Forum:
Adults Living with Birthmarks
01-05-2013, 01:08 PM
Replies:
24
Liver hemangioma / venus malformation?
Views:
13,974
Posted By
missy
Hemangioma usually go away in infancy, but many...
Hemangioma usually go away in infancy, but many times doctors still use that term to diagnose adults.
Have you considered seeing a specialist?
Missy
Forum:
Port Wine Stain Help and Resources
01-05-2013, 01:05 PM
Replies:
3
One year older and maybe a little wiser
Views:
4
Posted By
missy
What an awesome post! Thank you for taking the...
What an awesome post! Thank you for taking the time and effort to come in and write it all out. It will help others, other parents and others struggling with their feelings about their own...
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