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Search: Posts Made By: tianasmama
Forum: Port Wine Stain Help and Resources 04-14-2010, 05:48 PM
Replies: 5
Views: 6
Posted By tianasmama
ok so the parents saying they cover up their kids...

ok so the parents saying they cover up their kids with a blanket in public... or are afraid to have more kids because they are scared they will get another child with a pws.. I guess thats because...
Forum: Port Wine Stain Help and Resources 04-14-2010, 05:06 AM
Replies: 5
Views: 6
Posted By tianasmama
Red face New to the website adult with PWS

I understand this forum is for support... but I really just want to say the things you parents are putting your kids through is awful. At such a young age you have babies and toddlers going through...
Forum: Port Wine Stain Help and Resources 04-14-2010, 04:55 AM
Replies: 6
Views: 142
Posted By tianasmama
I also have a port wine stain but mine covers my...

I also have a port wine stain but mine covers my entire right leg... where yours is located at you look like you have rosey cheeks :) your beautiful no matter what and that was the way you were...
Forum: Port Wine Stain Help and Resources 04-14-2010, 04:45 AM
Replies: 8
Views: 9
Posted By tianasmama
Oh my goodness! I read your question and wanted...

Oh my goodness! I read your question and wanted to cry!!! I myself have a PWS that goes from the bottom of my spine down my right leg to the bottom of my toes... being a 5'11'' female... thats a BIG...
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