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Showing results 1 to 13 of 13
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Search: Posts Made By: Crobbins
Forum: Help and Resources for Hemangiomas 09-25-2013, 02:18 AM
Replies: 2
Views: 3
Posted By Crobbins
My Daughter was on propranolol starting at 12...

My Daughter was on propranolol starting at 12 weeks to a year. We had monthly and then bi-monthly visits to her cardiologist who would increase her dosage based on her weight gain (and towards the...
Forum: Help and Resources for Hemangiomas 05-10-2013, 12:40 AM
Replies: 1
Views: 2
Posted By Crobbins
Rave-- New Jersey Doctors

Just wanted to put this out there to help people in the future who may be searching for info regarding Doctors in New Jersey who are experienced with Hemangiomas.

I know many people mention...
Forum: Help and Resources for Hemangiomas 05-10-2013, 12:34 AM
Replies: 2
Views: 3
Posted By Crobbins
HIYA! I have included my story/pics below .. I...

HIYA!

I have included my story/pics below .. I remember being at the beginning of our journey and it was a really hard place to be.. uncertain, feeling vain (my DDs was on her eye lid) cuz you want...
Forum: Help and Resources for Hemangiomas 05-02-2013, 01:45 AM
Replies: 7
Views: 8
Posted By Crobbins
you bet! I remember being exactly where you are...

you bet! I remember being exactly where you are right now and it was really really hard to just have a sea of uncertainty looming ahead of you.

She had no issues with the propranolol. Before she...
Forum: Help and Resources for Hemangiomas 05-01-2013, 01:37 AM
Replies: 7
Views: 8
Posted By Crobbins
my DD had a H on her lower right eyelid.. it...

my DD had a H on her lower right eyelid.. it appeared 5 weeks after she was born. She was treated by a team of drs.. (pediatric ophthalmologist, pediatric dermatologist, & pediatric cardiologist) --...
Forum: Help and Resources for Hemangiomas 11-27-2012, 12:17 AM
Replies: 12
Views: 13
Posted By Crobbins
Hiya! sure... Hers appeared when she was about...

Hiya! sure...

Hers appeared when she was about 5 weeks old... after going from ped to dermatologist etc.. it wasnt until she was about 10 weeks old that we finally got on the right track. Since...
Forum: Help and Resources for Hemangiomas 04-29-2012, 11:34 PM
Replies: 3
Views: 4
Posted By Crobbins
Your DD is adorable. I responded in the other...

Your DD is adorable. I responded in the other thread but wanted to
Answer here as well... Propranolol has been around for A long time... It was used in babies for cardiac issues... The usage for...
Forum: Help and Resources for Hemangiomas 04-29-2012, 11:28 PM
Replies: 12
Views: 13
Posted By Crobbins
THANKS! She did not have any side effects--- cold...

THANKS! She did not have any side effects--- cold hands every so often but that was it. She has never been a good sleeper ... At almost 13 months has yet to sleep thru the night... But she has been...
Forum: Help and Resources for Hemangiomas 03-29-2012, 06:28 PM
Replies: 3
Views: 4
Posted By Crobbins
Hemangioma/Propranolol Progression Pictures.

Today we are DONE with propranolol. My DD started on it when she was 3 months old. She was on it 2x a day until she was almost 9 months old. Then we did one time a day for a month, then one time a...
Forum: Help and Resources for Hemangiomas 03-02-2012, 12:25 AM
Replies: 4
Views: 5
Posted By Crobbins
she is very cute! I would definitely contact...

she is very cute!
I would definitely contact some of the drs. on the expert page- I know how unnerving it is to be at the beginning of this journey - hugs to you guys and your beautiful daughter!
Forum: Help and Resources for Hemangiomas 01-03-2012, 02:11 AM
Replies: 12
Views: 13
Posted By Crobbins
6 months on Propranolol -- before and after

I have been coming to this site for over 6 months -- mostly lurking to find information and see what has worked for others. My DDs H appeared when she was 5 weeks old.. looked like a scratch under...
Forum: Help and Resources for Hemangiomas 09-04-2011, 02:09 AM
Replies: 2
Views: 3
Posted By Crobbins
Hiya! I have a delaney too!! Her H is right under...

Hiya! I have a delaney too!! Her H is right under her right eye. We tried timolol briefly but the location of her H required more aggressive treatment since it was beginning to affect her eyesight....
Forum: Help and Resources for Hemangiomas 07-18-2011, 09:06 PM
Replies: 2
Views: 3
Posted By Crobbins
hiya! my daughter started on propranolol 2 1/2...

hiya! my daughter started on propranolol 2 1/2 weeks ago. she was 3 months exactly. She weighs in at 15.7 lbs. She is exclusively breastfed, wont take a bottle... so i have no idea how much she is...
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