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Search: Posts Made By: mperron
Forum: Help and Resources for Hemangiomas 02-06-2011, 09:50 PM
Replies: 3
Views: 4
Posted By mperron
First off don't blame yourself! Hemangiomas are...

First off don't blame yourself! Hemangiomas are not caused by anything a mother does!!! They are just one of those anomolies that happen in the complicated process of a developing fetus.

Speak to...
Forum: Help and Resources for Hemangiomas 01-14-2011, 05:44 AM
Replies: 7
Views: 8
Posted By mperron
Hate to be a canadian downer, but my experience...

Hate to be a canadian downer, but my experience with the canadian system is that many doctors take the wait and see approach which isn't always the best course to take in all cases.

In addition,...
Forum: Help and Resources for Hemangiomas 01-14-2011, 05:36 AM
Replies: 13
Views: 14
Posted By mperron
I too had the same problem with my little guy in...

I too had the same problem with my little guy in terms of getting him on a schedule. I emailed his cardiologist and explained my delima. My son is on 3 doses a day. The cardiologist said that it is...
Forum: Help and Resources for Hemangiomas 01-14-2011, 05:27 AM
Replies: 33
Views: 34
Posted By mperron
Hi Katie, I find that their is a lot of...

Hi Katie,

I find that their is a lot of misinformation about hemangiomas, even from medical professionals (i.e. midwife) whom we put a lot of trust and faith into their opinions. Sadly though, I've...
Forum: Help and Resources for Hemangiomas 12-12-2010, 05:15 PM
Replies: 20
Views: 21
Posted By mperron
Hello my Canadian neighbor, I live in Manitoba....

Hello my Canadian neighbor, I live in Manitoba. It upsets me so much to see other canadians struggling to get the care they deserve for their children. My son had a compound h very similar to your...
Forum: Help and Resources for Hemangiomas 12-03-2010, 08:54 PM
Replies: 13
Views: 14
Posted By mperron
I understand your anxiety Jennacl. My son's...

I understand your anxiety Jennacl. My son's doctor (dr. Waner) said the drug is very well tolerated. My son has been on the drug for slightly less than a year and has had no side effects...
Forum: Help and Resources for Hemangiomas 12-03-2010, 08:08 PM
Replies: 12
Views: 13
Posted By mperron
I think when are children are born with several...

I think when are children are born with several medical problems ie. preemie, heart defect, hemangiomas, that we do develop a special bond with our child. By watching our precious children experience...
Forum: Help and Resources for Hemangiomas 10-15-2010, 05:17 AM
Replies: 4
Views: 5
Posted By mperron
My son had reflux and at first I thought the...

My son had reflux and at first I thought the propranolol was making his reflux worse. His cardiologist and Dr. Waner said that they have not seen any cases of propranolol making reflux worse.

It's...
Forum: Help and Resources for Hemangiomas 09-13-2010, 05:12 AM
Replies: 12
Views: 13
Posted By mperron
Mom of 3; I'm surprised your daughter's dosage...

Mom of 3; I'm surprised your daughter's dosage hasn't increased. My son is 9 months and his dosage was increased to 2ml. He weighs 20ibs. His pediatric cardiologist has gradually increased it...
Forum: Help and Resources for Hemangiomas 08-19-2010, 06:13 PM
Replies: 6
Views: 7
Posted By mperron
Wishing your little angel the best!

Wishing your little angel the best!
Forum: Help and Resources for Hemangiomas 08-15-2010, 06:42 PM
Replies: 13
Views: 14
Posted By mperron
Go adnama!

Go adnama!
Forum: Help and Resources for Hemangiomas 08-12-2010, 06:42 PM
Replies: 13
Views: 14
Posted By mperron
I think us Canadians need to be putting pressure...

I think us Canadians need to be putting pressure on our government to pay for our children to recieve treatment for their hemangiomas rather than just accepting the typical wait and see approach...
Forum: Help and Resources for Hemangiomas 08-04-2010, 03:49 AM
Replies: 10
Views: 11
Posted By mperron
jacobsmom; I'm sorry I can't answer your...

jacobsmom;
I'm sorry I can't answer your question as I have no experience with steroids. Just wanted to let you know that my heart goes out to you and your precious son. I always believe theirs...
Forum: Help and Resources for Hemangiomas 07-25-2010, 02:45 AM
Replies: 13
Views: 14
Posted By mperron
Sorry adnama, I too have yet to hear of the costs...

Sorry adnama, I too have yet to hear of the costs being covered by the gov't. Not to say it's not worth trying to get it covered. You probably would need a doctor in Canada to agree that your son...
Forum: Help and Resources for Hemangiomas 07-10-2010, 02:08 PM
Replies: 13
Views: 14
Posted By mperron
I also hear good things about Dr. Levitin, he...

I also hear good things about Dr. Levitin, he previously worked with Dr. Waner.
Forum: Help and Resources for Hemangiomas 07-10-2010, 02:07 PM
Replies: 13
Views: 14
Posted By mperron
I'm also from Canada. I would suggest you...

I'm also from Canada. I would suggest you contact one of the doctors that specializes in this field such as Dr Waner at the new york vascular centre. You can contact him via his website. It may be...
Forum: Help and Resources for Hemangiomas 07-08-2010, 10:27 PM
Replies: 10
Views: 11
Posted By mperron
Bce: Yes the medication is fairly cheap. My son...

Bce: Yes the medication is fairly cheap. My son was not hospitalized by his doctor (Dr. Waner in NYC). His fee's for consultation is about $250.00, but he was very generous and waved his fee for...
Forum: Help and Resources for Hemangiomas 07-07-2010, 01:01 PM
Replies: 17
Views: 18
Posted By mperron
I know it sucks and can be hurtful with the mean...

I know it sucks and can be hurtful with the mean things strangers (and sometimes aquantinces) say to our children. I can relate personally as I had a nevi birthmark (large brown spot) on my neck...
Forum: Help and Resources for Hemangiomas 07-07-2010, 12:56 PM
Replies: 10
Views: 11
Posted By mperron
BCE: We got a 3 month (500mg bottle) supply of...

BCE: We got a 3 month (500mg bottle) supply of propranolol for under $50.00. I'm from Canada but bought the propranolol in the united states. Willow you will definately find lots of discussion on...
Forum: Help and Resources for Hemangiomas 07-07-2010, 02:00 AM
Replies: 5
Views: 6
Posted By mperron
I saw quick results (48hours) with my son's deep...

I saw quick results (48hours) with my son's deep h on the side of his nose. The first few weeks we saw vast improvement. He's been on the drug for 4 months now, and his doctor said we've probably...
Forum: Help and Resources for Hemangiomas 07-03-2010, 12:43 AM
Replies: 4
Views: 5
Posted By mperron
What I seem to have realized is that I tend to...

What I seem to have realized is that I tend to associate many things (i.e reflux, stomach upset) as being a side effect of propranolol when in fact they have nothing to do with the drug. It's hard to...
Forum: Help and Resources for Hemangiomas 06-24-2010, 07:40 PM
Replies: 10
Views: 11
Posted By mperron
Sorry forgot to mention the stomach discomfort...

Sorry forgot to mention the stomach discomfort was caused by GERD (reflux)
Forum: Help and Resources for Hemangiomas 06-24-2010, 07:38 PM
Replies: 10
Views: 11
Posted By mperron
Jacobs mom; I am so saddened to hear your poor...

Jacobs mom; I am so saddened to hear your poor little one suffer such negative side effects. From what I've researched propranolol has far fewer side effects than steroids. Of course, their will be...
Forum: Help and Resources for Hemangiomas 06-24-2010, 07:27 PM
Replies: 11
Views: 12
Posted By mperron
msaurez- My son is only taking propranolol. It...

msaurez- My son is only taking propranolol. It quickly cleared up the red discloration and their is only some slight bluish color. He has a compound H.
Forum: Help and Resources for Hemangiomas 06-24-2010, 07:24 PM
Replies: 8
Views: 9
Posted By mperron
I'm not a doctor but I would say the sleeping bit...

I'm not a doctor but I would say the sleeping bit is because of his age. I too initially thought my son was sleeping a lot but as he got older believe me he slept a lot less.
Showing results 1 to 25 of 65

 
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