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Search: Posts Made By: RoseBuddyMom
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 11-14-2010, 01:34 PM
Replies: 6
Views: 7
Posted By RoseBuddyMom
I am so sorry to hear your story and see your...

I am so sorry to hear your story and see your pictures. It sounds very much like the story of my daughter's leg. Her's is located on the inside of her upper right thigh.

She was about 1 year and...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 08-25-2010, 03:28 AM
Replies: 5
Views: 6
Posted By RoseBuddyMom
Thank you all for your replies... We have an appt...

Thank you all for your replies...
We have an appt for the pediatric allergist - we will revisit the allergies. So far pediatrician and vasc anomaly docs are convinced the itchines is allergy...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 08-08-2010, 02:50 AM
Replies: 5
Views: 6
Posted By RoseBuddyMom
Itchy skin w/lymphatic malformation?

Hi, my 7 year old daugher has a mixed lymphatic & venous malformation with thrombii in her right upper thigh. She was dx when she was 1.5 yrs old. Thoughout the years she goes into these fits of...
Forum: Youth and Teen Support 07-25-2010, 03:56 PM
Replies: 3
Views: 4
Posted By RoseBuddyMom
oops - Yes, I live in New York (Westchester...

oops -
Yes, I live in New York (Westchester County area), my daughter's doctors are at Columbia-Pres. Thank you.
Forum: Youth and Teen Support 07-25-2010, 02:40 AM
Replies: 3
Views: 4
Posted By RoseBuddyMom
Support in our area for 7 year old

Hi, my daughter is 7.5 years old and has a mixed venous & lymphatic malf with thrombii in her right upper thigh. She was diagnosed when she was about 2.5 years old. We have been managing her with...
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