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Search: Posts Made By: Lisa_99
Forum: Port Wine Stain Help and Resources 08-14-2010, 02:10 PM
Replies: 9
Views: 10
Posted By Lisa_99
hello, what type of laser is being used for the...

hello,
what type of laser is being used for the PWS removal?

My daughter is 21, has PWS On left side, hip to toes, and also KT syndrome, ( vascular malformations) -- She had a few laser...
Forum: Port Wine Stain Help and Resources 11-16-2007, 07:32 PM
Replies: 12
Views: 3,009
Posted By Lisa_99
my daughter is 18, was born w/ PWS and KT...

my daughter is 18, was born w/ PWS and KT syndrome- She has rec'd PDL laser treatment off and on for a few yrs. I will answer what questions I can -- email me direct -- as I don't check this site...
Forum: Help and Resources for Hemangiomas 11-11-2007, 03:19 PM
Replies: 16
Views: 3,168
Posted By Lisa_99
HI Kristina -- Have you had another or test or...

HI Kristina --

Have you had another or test or diagnosis since your posting here? what are the results?

LIsa
Addie's mom
KT/ PWS -- 18 yrs old
Mississippi USA
em: lisa.williams99@gmail.com
Forum: Living with a birthmark - my story 11-11-2007, 03:06 PM
Replies: 4
Views: 2,757
Posted By Lisa_99
HI Meegan ! Glad to see you here. Thank you for...

HI Meegan !

Glad to see you here. Thank you for sharing your story and pictures w/ us. You have taken a strong step in moving forward now even further. Congratulations!

My daughter is the PWS...
Forum: Youth and Teen Support 10-12-2007, 03:06 AM
Replies: 5
Views: 2,368
Posted By Lisa_99
hi there! well I am glad I could help! Keep in...

hi there!

well I am glad I could help!
Keep in touch! I am anxious to know how things work out for you!

Lisa
Mississippi
Forum: Living with a birthmark - my story 09-26-2007, 07:17 PM
Replies: 15
Views: 4,172
Posted By Lisa_99
Smile Hi Sophia !!! Welcome to the list ! We are...

Hi Sophia !!!

Welcome to the list ! We are glad you are here. There are some wonderful folks here to offer feedback and support ! You are not alone.

My daughter is the birthmark member of our...
Forum: Youth and Teen Support 09-26-2007, 04:42 PM
Replies: 5
Views: 2,368
Posted By Lisa_99
Nicole -- There are newer procedures called...

Nicole --

There are newer procedures called

Endovascular Laser Venous Surgery.



The article below is written from Emory ( Atlanta GA area) where Dr ChamShuddin is the head of this dept
Forum: Port Wine Stain Help and Resources 09-23-2007, 10:37 PM
Replies: 9
Views: 2,141
Posted By Lisa_99
Location: Mississippi, USA cost of treatment :...

Location: Mississippi, USA
cost of treatment : $1400.00
INsurance does reimburse - but we are also treating underlying superficial veins due to KT syndrome.

Lisa
Madison MS
Forum: AVM Help and Resources 09-23-2007, 10:31 PM
Replies: 5
Views: 2,096
Posted By Lisa_99
HI Sandra -- I sent you a message thru the site...

HI Sandra --
I sent you a message thru the site --
write me if you can -- I will be glad to get you to few websites for support.

Lisa
Mom of 18 yr old w/ KT syndrome / vascular issues left leg to...
Forum: Youth and Teen Support 09-14-2007, 09:19 PM
Replies: 5
Views: 2,463
Posted By Lisa_99
well here I am -- saw the thread here 3 mths...

well here I am -- saw the thread here 3 mths later!! sorry !!
PiaJoy !!

welcome to the list here!

guess what !! Your PWS looks very similar to my daughters! yes it does ! Addie's PWS is left...
Forum: AVM Help and Resources 09-09-2007, 11:39 PM
Replies: 3
Views: 1,776
Posted By Lisa_99
Christie ! Congratulations! THanks soo much for...

Christie !
Congratulations!
THanks soo much for sharing the success story!

My daughter is 18 w/ KT /vascular involvement in her pelvic area. A healthy pregnancy ,,, of course after she's 30, is...
Forum: Adults Living with Birthmarks 11-08-2006, 12:43 AM
Replies: 8
Views: 3,122
Posted By Lisa_99
Hank ! Congratulations to you both! HOWWWW...

Hank !

Congratulations to you both!

HOWWWW exciting! Just think you have so much time to plan this event you may not even get stressed! Hahahaha

Lisa
Addie's mom
Mississippi
Forum: Port Wine Stain Help and Resources 11-08-2006, 12:40 AM
Replies: 4
Views: 1,453
Posted By Lisa_99
hi! " what we can expect in terms of...

hi!

" what we can expect in terms of possible treatment, surgery or management??.."

To answer your questions;
the possible treatment may be suggested thorough care of the wound on your daughters...
Forum: Port Wine Stain Help and Resources 11-08-2006, 12:27 AM
Replies: 5
Views: 1,660
Posted By Lisa_99
HI Our doctor charges appx $2200.00 per visit...

HI

Our doctor charges appx $2200.00 per visit for laser treatment, Our insurance company honors it at about $1400.00 from the rewrite of the claim as this doctor is in network. We have a $20...
Forum: Youth and Teen Support 11-02-2006, 02:52 AM
Replies: 5
Views: 2,115
Posted By Lisa_99
Sweetpea ! yes people can be soo mean and...

Sweetpea !

yes people can be soo mean and inconsiderate. my daughter ( now 17) has PWS on her complete left torso to her toes. She also has KT ( a vascular syndrome which was diagnosed at age 11. ...
Forum: Port Wine Stain Help and Resources 10-31-2006, 02:38 AM
Replies: 2
Views: 1,877
Posted By Lisa_99
HI Ombry I have a 17 daughter w/ KT syndrome....

HI Ombry

I have a 17 daughter w/ KT syndrome. Email me off list and I will try to answer questions for you.

Lisa
email: lisa.williams99@gmail.com
Forum: Port Wine Stain Help and Resources 01-23-2006, 02:50 AM
Replies: 12
Views: 2,684
Posted By Lisa_99
Re: PWS/Venous Malformation treatments

HI JonEllen

Good luck on the upcoming treatment

Lisa
Mississippi
Forum: Port Wine Stain Help and Resources 01-23-2006, 02:46 AM
Replies: 16
Views: 1,638
Posted By Lisa_99
Re: PWS on right arm....KTS??

TMart ---

Welcome to the board!

My daughter is 16 and was diagnosed with KT at the age of 10 yrs old.

If I can help w/ any questions I'll be glad to try!

Lisa
Addies' mom
Forum: Port Wine Stain Help and Resources 11-15-2004, 08:49 PM
Replies: 5
Views: 1,726
Posted By Lisa_99
Re:Cost of PWS laser treatment?

Kris S

Altho , Addie's treatments are covered by insurance due the CPT code used for KT diagnosis, we pay a $250 deductible and $9 co-pay.

the return EOB's. I receive show the rate of about...
Forum: Port Wine Stain Help and Resources 11-10-2004, 09:12 PM
Replies: 5
Views: 1,678
Posted By Lisa_99
Re:insurance coverage

HI~

well we've had luck with my daughters treatments being covered, it's all the way the CPT codes are sent into the insurance company.

Lisa
Forum: Port Wine Stain Help and Resources 11-10-2004, 09:09 PM
Replies: 12
Views: 2,844
Posted By Lisa_99
Re:Newborn with PWS/Dallas area

HI and welcome!
I went thru the archives and found these doctor names from previous threads. Hope this helps some.

Dr. Fred Ghali -- Pediatric Dermatologist.
1280 South Main St
Grapevine TEXAS...
Forum: AVM Help and Resources 10-21-2004, 07:55 PM
Replies: 2
Views: 1,736
Posted By Lisa_99
Re:AVM and birth control pills (the morning after pill)

HI Just_me

I sent you a private message if you would like to responsd to that.

I hope all is well with you

Lisa
Mississippi
Forum: AVM Help and Resources 10-21-2004, 07:54 PM
Replies: 2
Views: 1,736
Posted By Lisa_99
Re:AVM and birth control pills (the morning after pill)

HI Just_me

I sent you a private message if you would like to responsd to that.

I hope all is well with you

Lisa
Mississippi
Forum: Port Wine Stain Help and Resources 10-11-2004, 07:23 PM
Replies: 2
Views: 1,443
Posted By Lisa_99
Re:Anyone else in Dallas, Ft. Worth?!?!?

I can get you a few names. Em me with who you are currently using so I won't include that contact.

Lisa.Williams99@gmail.com

Lisa
mississippi
Forum: Port Wine Stain Help and Resources 10-04-2004, 08:06 PM
Replies: 3
Views: 1,696
Posted By Lisa_99
Re:My experience with PWS

Hal!

HI! It's great to have you here!!!

May I copy your email and send to a friend of mine ??

How inspiring!

Lisa
Addie's mom
Showing results 1 to 25 of 48

 
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