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Search: Posts Made By: Seanette
Forum: AVM Help and Resources 05-06-2008, 03:10 AM
Replies: 2
Views: 1,320
Posted By Seanette
Unhappy First Time Seizure in 16 year old w/intracranial venous malformations

I wanted to know if anyone has experienced or has a child with new onset seizures? Alex has had 41 surgeries since birth and 5 last year alone. She currently sees Dr. B and Dr. Waner in NY. Alex...
Forum: Port Wine Stain Help and Resources 01-04-2007, 10:50 PM
Replies: 2
Views: 1,034
Posted By Seanette
I just looked it up online and said it's...

I just looked it up online and said it's generally caused by the cold or abnormal blood cells. Praying he feels better soon!!! ~Seanette
Forum: General Resources 01-04-2007, 08:09 PM
Replies: 0
Views: 1,763
Posted By Seanette
Question Question-Vein of Galen Malformation

Anyone diagnosed with Vein of Galen and if so what has been the prognosis? It seems each year we find out a new possible diganosis/problem for our 15 year old daughter, Alex. She recently had an...
Forum: General Resources 10-16-2004, 11:13 PM
Replies: 7
Views: 3,468
Posted By Seanette
Re:The Maury Show

Hank,

I would love a copy...please keep me posted :0). I'm happy to hear that you're not going to let it bring you down and I hope you remember how much you really have impacted the nation. Like...
Forum: General Resources 10-16-2004, 03:21 AM
Replies: 7
Views: 3,468
Posted By Seanette
Re:The Maury Show

Hank,

I'm sorry that things did not go as well for you...but I have to tell you that you've blessed me and my family. In fact I think of you often and pray that God is blessing you.

Your an...
Forum: General Resources 10-16-2004, 01:55 AM
Replies: 7
Views: 3,468
Posted By Seanette
Re:The Maury Show

Corinne,

Thank you for sharing this wonderful experience with us :0). It's just been a wonderful day full of joy, happiness and excitement that my precious daughter was portrayed as the shining...
Forum: General Resources 10-15-2004, 11:01 PM
Replies: 7
Views: 3,468
Posted By Seanette
The Maury Show

Hello,

I tried sending a post but accidentally sent myself an e-mail...

Anyway, I wanted to share that my daughter, Alexandra Smith was on The Maury Show today. She has venous malformations on the...
Forum: AVM Help and Resources 08-23-2003, 11:54 PM
Replies: 17
Views: 4,646
Posted By Seanette
Re:AVM on face

Amy,

I didn't think anyone was ever going to respond to my post. I apologize for not checking sooner.

I just recently found out that Alex has what is called a Extensive Sinus Pericranium with a...
Forum: AVM Help and Resources 08-05-2003, 11:31 PM
Replies: 17
Views: 4,646
Posted By Seanette
Re:AVM on face

My daughter has Venous Malformations along with AVM's in her brain. I'm not sure what the difference is either and would love to know too.

Alex is being seen by Dr. Waner in AR she has had 26...
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