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Search: Posts Made By: Dawn and Baby Presley
Forum: Help and Resources for Hemangiomas 02-26-2009, 02:20 AM
Replies: 2
Views: 444
our daughter was 9 months when we made the...

our daughter was 9 months when we made the decision to go on propanolol, and we have not regretted it, i posted some pics on a thread called "Before and During Propranolol".
our daughters H just kept...
Forum: Help and Resources for Hemangiomas 02-25-2009, 11:49 PM
Replies: 0
Views: 556
Before and During Propranolol

These are pics of when we started treatment and approx a month later, as you can see the color has faded and its becoming flatter, the red area in the middle is being reassed tomorrow.
Forum: Help and Resources for Hemangiomas 02-25-2009, 11:37 PM
Replies: 3
Views: 814
Thank God!! wow thats awesome our little one has...

Thank God!! wow thats awesome our little one has been on Propanolol for a month now with AWESOME results, and like your daughter no ill effects from it!
Congrats shes beautiful!!
Dawn
Forum: Help and Resources for Hemangiomas 02-25-2009, 11:35 PM
Replies: 6
Views: 831
im so happy you are having good results, we too...

im so happy you are having good results, we too seen a difference at the 24 hr mark! Best of luck, and thanks for sharing your experiance!
Forum: Help and Resources for Hemangiomas 02-19-2009, 01:37 PM
Replies: 6
Views: 831
Praying for her to have a great success! we have...

Praying for her to have a great success! we have had wonderful results with Propraolol! Best of luck and im happy that they are doing an inpatient for you! it takes away some of the stress!!
Best of...
Forum: Help and Resources for Hemangiomas 02-16-2009, 02:28 PM
Replies: 8
Views: 754
our daughters ulcerated and the way our pediatric...

our daughters ulcerated and the way our pediatric dermatologist explained it to us was that it was growing so rapidly that the skin doesnt have time to grow with it, so it opens. and as fas as i have...
Forum: Help and Resources for Hemangiomas 02-16-2009, 01:44 PM
Replies: 7
Views: 1,017
I just want people to know that the information i...

I just want people to know that the information i post on the site, is stickly from my experiances only, i have said before i am not a Doctor, but i take this very seriously and i research to the...
Forum: Help and Resources for Hemangiomas 02-12-2009, 01:31 PM
Replies: 7
Views: 1,017
This is the Protocol i was given to sign before...

This is the Protocol i was given to sign before treatment! Hope this gives you some useful information.

Background: Infantile hemangiomas are commen vascular tumors which usalluy involute...
Forum: Help and Resources for Hemangiomas 02-12-2009, 01:04 PM
Replies: 8
Views: 904
http://content.nejm.org/cgi/content/full/358/24/26...

http://content.nejm.org/cgi/content/full/358/24/2649
this is the article to the New England Journal of Medicine, like i have said before on here, i am not a Doctor, all i know is what we are going...
Forum: Help and Resources for Hemangiomas 02-10-2009, 12:48 PM
Replies: 10
Views: 1,778
oh my god no wonder you are scared!!! even though...

oh my god no wonder you are scared!!! even though our daughter started in the hospital, she was never woken for anything..not even a vital check through the night, they kept her on a pulse monitor...
Forum: Help and Resources for Hemangiomas 02-09-2009, 10:38 AM
Replies: 8
Views: 904
Hi there, just to let you know, that there are...

Hi there, just to let you know, that there are Drs out there now that have stopped medicating with Prednisone because of the side effects. Although very new, its very promising with no side effects...
Forum: Help and Resources for Hemangiomas 02-06-2009, 01:48 PM
Replies: 5
Views: 2,536
hi, we also used this cream, but our daughters...

hi, we also used this cream, but our daughters Hemangioma was ulcerated so im sure thats why we did not have good results from it. we discontinued the use of it after the prescribed 4 weeks.
Forum: Help and Resources for Hemangiomas 02-05-2009, 05:48 PM
Replies: 7
Views: 1,017
Im also glad that you are starting this as...

Im also glad that you are starting this as well... We have been monitored very carefully as it does lower the heart rate, I did as a overprotective mom expect my little girl to be sleepy and not as...
Forum: Help and Resources for Hemangiomas 02-05-2009, 03:48 PM
Replies: 7
Views: 1,017
Propanolol works with NO side effects!!

http://www.facebook.com/album.php?aid=190814&l=e2690&id=819200444
this is my Facebook Album dedicated to Presleys Hemangioma progress!! Please view it and ask your Drs if Propanolol can be used on...
Forum: Help and Resources for Hemangiomas 02-05-2009, 03:41 PM
Replies: 17
Views: 1,495
Hi sorry it has taken me so long to respond. yes...

Hi sorry it has taken me so long to respond. yes our daughter is taking it she has been for a week now, and we see major improvements, im trying to post some pics here soon..We have been admitted...
Forum: Help and Resources for Hemangiomas 02-05-2009, 03:33 PM
Replies: 15
Views: 1,337
WOW we are on the Propranolol treatment as...

WOW we are on the Propranolol treatment as well...where do you live?
We are in New Brunswick Canada, and there are only two patients in the whole province on it us and one other little boy!
I...
Forum: Help and Resources for Hemangiomas 01-13-2009, 04:00 PM
Replies: 2
Views: 742
Red face we are starting the treatment next week, so im...

we are starting the treatment next week, so im praying that we will have wonderful news for everyone! This team of Doctors are very hopeful!
Forum: Help and Resources for Hemangiomas 01-11-2009, 01:54 AM
Replies: 17
Views: 1,495
thanks Missy, im certainly nervous about the...

thanks Missy, im certainly nervous about the treatment, but have seen the pics from before and after treatment, and wow its unbelivable! i will post before and during treatment and hopefully a...
Forum: Help and Resources for Hemangiomas 01-10-2009, 01:07 AM
Replies: 2
Views: 742
Post New Research

http://content.nejm.org/cgi/content/full/358/24/2649
check out this..what results....all patient who tried this treatment had some positive change in 24 hours!!! we seen a top pediatric dermatologist...
Forum: Help and Resources for Hemangiomas 01-10-2009, 01:04 AM
Replies: 17
Views: 1,495
so we are back from halifax and WOW 18...

so we are back from halifax and WOW 18 Dermatologists looked at her and we are involoved in a new study for the use of beta blockers to remove Hemangiomas, it looks very promising, i will post the...
Forum: Help and Resources for Hemangiomas 01-08-2009, 08:35 PM
Replies: 17
Views: 1,495
oh i forgot to tell you that we are in Moncton...

oh i forgot to tell you that we are in Moncton New Brunswick Canada, and we are going to Halifax tommorrow to the QE2
Forum: Help and Resources for Hemangiomas 01-08-2009, 08:34 PM
Replies: 17
Views: 1,495
Thanks so much for replying! She has was seen by...

Thanks so much for replying! She has was seen by our family Dr yesterday and by the time we got home with her, they had her booked to be seen in another hospital 3 hours away from here. We leave at 4...
Forum: Help and Resources for Hemangiomas 01-04-2009, 12:38 AM
Replies: 17
Views: 1,495
Question 9 month old Hemangioma on Back

Hi there, i am a mom of a 9 month old little girl who was born with a hemangioma on her back...we went 7 months without any complications, until it started to blister and then open up. It then got...
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