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Search: Posts Made By: missy
Forum: Youth and Teen Support 05-06-2015, 03:36 AM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! What have you already tried? My...

Hi and welcome!

What have you already tried? My suggestion would be to try something more mild on her face and if that didn't work out, then see another doctor. Although, this is a new issue to...
Forum: Announcements 04-17-2015, 01:24 PM
Replies: 0
Views: 1
Posted By missy
KTS Families Can Apply for Assistance from Brian C. Weber Memorial Travel Fund

Brian Weber was a kind, young man who lived his entire life with complications associated with Klippel-Trenaunay and Parks-Weber Syndrome (KTS), a debilitating vascular condition that affects...
Forum: General Resources 04-11-2015, 10:00 PM
Replies: 4
Views: 7,917
Posted By missy
Have you tried something like crowdfunding? Or...

Have you tried something like crowdfunding? Or gofundme.com?

I know that Dr. Levitin is planning to open an office in Guam. While I know it's a little closer to the philippines ... well, it's not...
Forum: Help and Resources for Hemangiomas 04-09-2015, 01:43 PM
Replies: 3
Views: 4
Posted By missy
That's wonderful news! Dr. Levitin is a...

That's wonderful news! Dr. Levitin is a fantastic doctor and we are so glad we could help.

First advice about traveling with a little one: don't stress! Are you flying? Did you get a hotel room...
Forum: Help and Resources for Hemangiomas 03-29-2015, 05:55 AM
Replies: 7
Views: 8
Posted By missy
http://birthmark.org/node/47#pennsylvania We...

http://birthmark.org/node/47#pennsylvania

We have lots of listings there. I believe that CHOP has a very good department.

Missy
Forum: Help and Resources for Hemangiomas 03-26-2015, 02:42 PM
Replies: 5
Views: 6
Posted By missy
Hi and welcome! No one can really answer a lot...

Hi and welcome!

No one can really answer a lot of your questions, except to say that earlier treatment is best. How fast and how large hemangiomas grow is very unique. I know that Sick Kids has an...
Forum: Help and Resources for Hemangiomas 03-21-2015, 05:40 PM
Replies: 74
Views: 57,854
Posted By missy
Oh, he's really gorgeous! I can't believe he's...

Oh, he's really gorgeous! I can't believe he's almost 6!

Missy
Forum: Help and Resources for Hemangiomas 03-21-2015, 06:12 AM
Replies: 74
Views: 57,854
Posted By missy
Um. No. I didn't get a photo! Oh no! Please...

Um. No. I didn't get a photo! Oh no!

Please try birthmark.org@gmail.com. I'll have to troubleshoot my mail in the morning. I'm so sorry. I really wanted to see him.

Missy
Forum: Help and Resources for Hemangiomas 03-20-2015, 02:12 PM
Replies: 7
Views: 8
Posted By missy
Hi and welcome! You should see a specialist. ...

Hi and welcome!

You should see a specialist. Early treatment is better and many times pediatricians are just not fully aware of all the treatment options. Where are you located? We can help you...
Forum: Help and Resources for Hemangiomas 03-20-2015, 02:11 PM
Replies: 74
Views: 57,854
Posted By missy
FIVE? Years old? OMG, time flies, doesn't...

FIVE? Years old? OMG, time flies, doesn't it?

Yes, do send a photo ... I'll attach it to the thread. contact@birthmark.org

Good to see you again!

Missy
Forum: Port Wine Stain Help and Resources 03-12-2015, 02:42 PM
Replies: 3
Views: 4
Posted By missy
Anytime! Let us know how things turn out. It's...

Anytime! Let us know how things turn out. It's hard to be all pushy, but really, sometimes you have to be. I remember talking to my family physician about wanting to run some additional tests for...
Forum: Port Wine Stain Help and Resources 03-11-2015, 03:00 PM
Replies: 3
Views: 4
Posted By missy
Hi and welcome! I think they're correct when...

Hi and welcome!

I think they're correct when they say there is less success in certain areas. But, that doesn't really mean NO success. Push for the treatment if you want to see if it will fade...
Forum: Help and Resources for Hemangiomas 02-16-2015, 03:32 PM
Replies: 1
Views: 2
Posted By missy
Hi! If it is hemangioma on his eyelid, you'd...

Hi!

If it is hemangioma on his eyelid, you'd need to contact a specialist. Who have you seen to date?

Try http://birthmark.org/experts.php and ask Dr. Fay ... that's my best advice right...
Forum: Help and Resources for Hemangiomas 02-16-2015, 02:39 AM
Replies: 8
Views: 364
Posted By missy
That's great news! Please do post updates, if...

That's great news! Please do post updates, if you can. It really does help other parents.

As far as her ankle, I think that's something you'll have to decide. Sometimes, pws can thicken with age,...
Forum: Help and Resources for Hemangiomas 02-12-2015, 02:55 PM
Replies: 9
Views: 10
Posted By missy
YES!! The way forward is to stop Googling and...

YES!! The way forward is to stop Googling and enjoy the baby days!!

Shannon is spot on ... that's why we love her so around here. It does sound like your baby is following the typical growth...
Forum: Port Wine Stain Help and Resources 02-12-2015, 02:49 PM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! My suggestion, if you haven't...

Hi and welcome!

My suggestion, if you haven't already done so, is to get in touch with Dr. Nelson via http://birthmark.org/experts.php There is no one I would trust more to know the difference. ...
Forum: Help and Resources for Hemangiomas 02-11-2015, 02:52 PM
Replies: 3
Views: 4
Posted By missy
Hi and welcome! How scary! I know there are...

Hi and welcome!

How scary! I know there are parents around here who are dealing with this same issue and they will chime in soon. Has your baby been prescribed propranolol yet?

Missy
Forum: Help and Resources for Hemangiomas 02-11-2015, 02:51 PM
Replies: 9
Views: 10
Posted By missy
Hi and welcome! Oh my god, what a cutie!! Love...

Hi and welcome!

Oh my god, what a cutie!! Love that impish little grin.

I have seen similar hemangiomas, yes. Some grew, some didn't. Some ulcerated, some didn't. Hemangiomas are so unique.

My...
Forum: Help and Resources for Hemangiomas 02-03-2015, 06:30 PM
Replies: 4
Views: 5
Posted By missy
Here are images to go with your post! Missy

Here are images to go with your post!



Missy
Forum: Help and Resources for Hemangiomas 02-02-2015, 03:09 AM
Replies: 4
Views: 5
Posted By missy
Hi and welcome! If you can't get a photo to...

Hi and welcome!

If you can't get a photo to upload, email it to contact@birthmark.org and I'll put it up for you tomorrow.

Missy
Forum: Help and Resources for Hemangiomas 01-29-2015, 05:33 PM
Replies: 9
Views: 10
Posted By missy
Yes, he's pretty awesome all around and we are...

Yes, he's pretty awesome all around and we are lucky to have him as a resource!

Good news! Let us know what happens!

Missy
Forum: Help and Resources for Hemangiomas 01-28-2015, 03:16 PM
Replies: 9
Views: 10
Posted By missy
If you are seeing Dr. Levitin, you are in the...

If you are seeing Dr. Levitin, you are in the best hands, so you don't have to worry anymore.

Let us know what he says, though. I'd be interested to hear his diagnosis.

Missy
Forum: Help and Resources for Hemangiomas 01-28-2015, 03:14 PM
Replies: 4
Views: 5
Posted By missy
Hi! There are other parents around here who did...

Hi!

There are other parents around here who did use timolol, some with great results. Side effects of this medicine are very rare and if you will monitor her blood pressure, I think you will be...
Forum: Help and Resources for Hemangiomas 01-26-2015, 03:04 PM
Replies: 9
Views: 10
Posted By missy
Seven weeks is kind of late. Any chance you did...

Seven weeks is kind of late. Any chance you did not carry him to term?

You need to have that evaluated by a good physician.

Missy
Forum: Port Wine Stain Help and Resources 01-26-2015, 03:01 PM
Replies: 2
Views: 3
Posted By missy
Hi and welcome! You should really call your...

Hi and welcome!

You should really call your doctor and ask. At least speak to the nurse there. Any chance you can reschedule the laser? I would be hesitant to risk makeup right after.

Let us...
Showing results 1 to 25 of 500

 
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