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Search: Posts Made By: beef5stew
Forum: Help and Resources for Hemangiomas 02-29-2012, 02:28 PM
Replies: 8
Views: 9
Posted By beef5stew
wow..

Persistence helps.

Doctor had a cancellation for a procedure on April 20th so we were able to slip into that spot. So now, instead of waiting until July, we only have to wait until April. ...
Forum: Help and Resources for Hemangiomas 02-22-2012, 01:33 PM
Replies: 21
Views: 22
Posted By beef5stew
Just noted this thread. My DD's hemangioma...

Just noted this thread. My DD's hemangioma ulcerated at 10 weeks. We found a topical covering called "Duoderm" worked great. It looks like a big bandage, but it stays on for several days and...
Forum: Help and Resources for Hemangiomas 02-22-2012, 01:30 PM
Replies: 8
Views: 9
Posted By beef5stew
Hmmm..

I never thought about cancellations due to sicknesses. This could work better for me.

I called the Dr. Office and explained that we would prefer an ealier appointment and have some flexibility...
Forum: Help and Resources for Hemangiomas 02-21-2012, 12:39 PM
Replies: 8
Views: 9
Posted By beef5stew
Thanks for the response. I printed that out for...

Thanks for the response. I printed that out for the meeting.

Looks like she's a good candidate for surgery. She's 2 years old (will be just about 3 at surgery time) and the hemangioma is right at...
Forum: Help and Resources for Hemangiomas 02-17-2012, 01:13 PM
Replies: 8
Views: 9
Posted By beef5stew
Surgery Route: What do I ask at first visit?

On Monday, I'm taking my daughter to a plastic surgeon at Johns Hopkins to look a the hemangioma on her neck. I know we want to have it removed and minimize any scarring, but I don't know what I...
Forum: Help and Resources for Hemangiomas 02-17-2012, 01:07 PM
Replies: 5
Views: 6
Posted By beef5stew
My Doctor at Johns Hopkins preferred the idea of...

My Doctor at Johns Hopkins preferred the idea of a 48 hour monitoring period, but said that it wasn't 100% necessary. It's definately a case of erring on the side of caution, but I know I felt...
Forum: Help and Resources for Hemangiomas 02-02-2012, 02:34 PM
Replies: 4
Views: 5
Posted By beef5stew
My wife and I had our daughter treated at hopkins...

My wife and I had our daughter treated at hopkins for a Hemangioma on her neck. The head of Pediatric Dermatology was great. She took pictures as she write a book on hemangiomas for other doctors...
Forum: Help and Resources for Hemangiomas 07-02-2010, 04:02 PM
Replies: 10
Views: 11
Posted By beef5stew
I asked this question my doc. She said that...

I asked this question my doc. She said that 10months is usually the key. If you stop before 10months you can see some re-growth, after 10months old..not as likely.
Forum: Help and Resources for Hemangiomas 07-02-2010, 03:58 PM
Replies: 5
Views: 6
Posted By beef5stew
My daughter started it in January for a 4cm H on...

My daughter started it in January for a 4cm H on her neck. She's turning One this month and we just got back from her specialist at John's Hopkins.

He's suggesting we stay the course until...
Forum: Help and Resources for Hemangiomas 07-02-2010, 03:43 PM
Replies: 4
Views: 5
Posted By beef5stew
My Daughter is about to turn 1 and has been on...

My Daughter is about to turn 1 and has been on Propranolol since January.

She's in the 95% in weight. I was wondering if the medicene caused an Increased appetitie.
Forum: Help and Resources for Hemangiomas 01-08-2010, 07:26 PM
Replies: 6
Views: 57
Posted By beef5stew
Johns Hopkins..

My Daughter is 5 months and has a quarter sized hemangioma on the front of her neck. our doctor referred us to a specialist at Johns Hopkins who has recommended the Propranolol treatment.

They...
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