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Search: Posts Made By: erih
Forum: Port Wine Stain Help and Resources 11-18-2012, 12:49 AM
Replies: 4
Views: 5
Posted By erih
Thanks! I think most of the purpera has faded,...

Thanks! I think most of the purpera has faded, but some of the skin still looks a little "tender."
Forum: Port Wine Stain Help and Resources 11-15-2012, 06:20 PM
Replies: 4
Views: 5
Posted By erih
So you just keep applying layer after layer? ...

So you just keep applying layer after layer? That sounds like it'd get built up in no time :S
Forum: Port Wine Stain Help and Resources 11-14-2012, 05:13 PM
Replies: 1
Views: 2
Posted By erih
Allison, I've had a few blebs or a while &...

Allison,

I've had a few blebs or a while & have never had one rupture, unless I was picking at it (I originally thought it was a pimple!). It could just be a reaction to the laser treatment.

I...
Forum: Port Wine Stain Help and Resources 11-12-2012, 08:53 PM
Replies: 4
Views: 5
Posted By erih
Question Aquaphor help--to clean or not to clean

I'm using aquaphor for the first time and was wondering.... how are you supposed to clean it off (if you are supposed to clean it off)?

Any help on this would be great!

Thanks,
~Eri
Forum: Port Wine Stain Help and Resources 11-11-2012, 09:37 PM
Replies: 1
Views: 2
Posted By erih
Have you found anything out, yet?

Have you found anything out, yet?
Forum: Port Wine Stain Help and Resources 11-11-2012, 09:26 PM
Replies: 0
Views: 1
Posted By erih
VBF Conference 2012

My husband & I just got back from our first VBF Conference, & it was pretty amazing!

Th guest speakers really seemed to know their stuff and the clinics that were held were very informative.

I'd...
Forum: Port Wine Stain Help and Resources 02-01-2012, 01:32 AM
Replies: 5
Views: 6
Posted By erih
ok, thanks! kids are likely a few years off, but...

ok, thanks! kids are likely a few years off, but I will certainly keep that in mind!
Forum: Port Wine Stain Help and Resources 01-31-2012, 01:25 AM
Replies: 5
Views: 6
Posted By erih
Ill be 25 in June. Outside of thickening &...

Ill be 25 in June.

Outside of thickening & a few more blebs, not much has changed w/ it since my last treatment about 4 years ago now.

Thanks, Corinne.
Forum: Port Wine Stain Help and Resources 01-26-2012, 07:05 PM
Replies: 5
Views: 6
Posted By erih
PWS + Kids

Just recently, I met a young man who I have fallen very much in love with... we are talking about marriage & both of us would like kids. We're going to wait due to schooling & try to save up some...
Forum: Port Wine Stain Help and Resources 01-26-2012, 06:57 PM
Replies: 2
Views: 3
Posted By erih
Thanks for letting me know. Classes have started...

Thanks for letting me know.

Classes have started for the spring, so i will have much less time available to look, but i will be sure too let you guys know if anything current pops up :)
Forum: Port Wine Stain Help and Resources 01-22-2012, 08:08 PM
Replies: 2
Views: 3
Posted By erih
Research Options?

Hey guys, I was wondering if anyone has heard about any PWS research happening in the midwest? I've been trying to look on & off, but so far have only found either olde projects or projects taking...
Forum: Port Wine Stain Help and Resources 11-25-2011, 07:38 PM
Replies: 1
Views: 2
Posted By erih
Happy Thanksgiving

Just wanted to pass on a Happy Thanksgiving (even if its a touch late) to everyone here! Hope you had a good one :)
~Eri
Forum: Port Wine Stain Help and Resources 11-22-2011, 03:17 PM
Replies: 27
Views: 28
Posted By erih
That is awesome!

That is awesome!
Forum: Port Wine Stain Help and Resources 10-19-2011, 07:55 PM
Replies: 13
Views: 14
Posted By erih
wow. I hope the dr's are right! And that the...

wow. I hope the dr's are right! And that the ultrasounds come back clear :)
Forum: Port Wine Stain Help and Resources 10-19-2011, 07:53 PM
Replies: 8
Views: 9
Posted By erih
No phone call yet. If they haven't gotten back...

No phone call yet. If they haven't gotten back to me by tomorrow (thurs) I'll try calling again.
Forum: Port Wine Stain Help and Resources 10-19-2011, 07:52 PM
Replies: 0
Views: 1
Posted By erih
Interesting thread

An acquaintance linked me to this thread, & I thought some of the things mentioned were interesting, esp regarding what other cultures call PWS, so I thought I'd share...
Forum: Port Wine Stain Help and Resources 10-19-2011, 02:32 AM
Replies: 8
Views: 9
Posted By erih
I called the Office today, but the lady I spoke...

I called the Office today, but the lady I spoke with needed to confirm some things, so I'm waiting to hear back from them (hopefully tomorrow before I have to leave for school).

I'm really hoping...
Forum: Port Wine Stain Help and Resources 10-18-2011, 02:47 PM
Replies: 8
Views: 9
Posted By erih
Thanks, Missy! Dr Rozell-Shannon also found a...

Thanks, Missy! Dr Rozell-Shannon also found a study that it looks like I qualify for in NYC
Forum: Port Wine Stain Help and Resources 10-17-2011, 09:49 PM
Replies: 8
Views: 9
Posted By erih
You've linked me that before, & I've done a...

You've linked me that before, & I've done a little bit of research, but I don't know where to go/who carried these policies.
Forum: Port Wine Stain Help and Resources 10-11-2011, 07:48 PM
Replies: 8
Views: 9
Posted By erih
Affordable Ins?

Does anyone know about any affordable insurance options for a college student working part time?

I've already checked into my school's ins, and state ins and don't qualify for my work's ins. And my...
Forum: Port Wine Stain Help and Resources 09-09-2011, 08:33 PM
Replies: 4
Views: 5
Posted By erih
Lol yeah, i'm over 18--turned 24 this past June. ...

Lol yeah, i'm over 18--turned 24 this past June. I don't have any ins--& I've already asked my school about it. But thank you for the other ins info! I'll have to take a look & (hopefully?) start...
Forum: Port Wine Stain Help and Resources 09-07-2011, 08:59 PM
Replies: 4
Views: 5
Posted By erih
thanks, Missy. Dr Woo (his email worked!)...

thanks, Missy. Dr Woo (his email worked!) suggested I contact Dr Eva Hurst (also with the organization he's associated with). I'm now thinking about taking the next step & nervously setting up an...
Forum: Port Wine Stain Help and Resources 09-06-2011, 06:37 PM
Replies: 4
Views: 5
Posted By erih
Looking for a Dr near S IL

Hey guys, I'm looking for a Dr near Southern Illinois. I have already looked at those listed on this website, & have contacted a few (waiting to hear back from them), but, according to this...
Forum: Port Wine Stain Help and Resources 05-26-2011, 02:19 AM
Replies: 62
Views: 6,101
Posted By erih
Mine's on the left side of my forehead and eyelid.

Mine's on the left side of my forehead and eyelid.
Forum: Port Wine Stain Help and Resources 05-20-2011, 06:41 AM
Replies: 5
Views: 6
Posted By erih
Lol kaykay. I'm nearly famous for my sunglasses!...

Lol kaykay. I'm nearly famous for my sunglasses! I get so bad I end up w/ migraines (which are thankfully knocked out by tylenol), but its not just the sun for me. Fluorescent lights are worse...
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