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Search: Posts Made By: lo1
Forum: Help and Resources for Hemangiomas 02-20-2011, 10:46 AM
Replies: 10
Views: 11
Posted By lo1
My daughter 3.5yrs has a large complex h on her...

My daughter 3.5yrs has a large complex h on her upper eyelid and temple area. She has already had operations and more for the future, so I was terrified of it happening again. I was told it wasnt...
Forum: Help and Resources for Hemangiomas 03-18-2010, 08:54 PM
Replies: 14
Views: 15
Posted By lo1
Brian Please let us know how your daughter gets...

Brian

Please let us know how your daughter gets on next week.

Lorna
Forum: Help and Resources for Hemangiomas 03-15-2010, 09:42 PM
Replies: 14
Views: 15
Posted By lo1
Hi Brian Cant offer much help but thought I'd...

Hi Brian

Cant offer much help but thought I'd say hi as we are from Scotland too (nr Aberdeen), where are you?

My Daughter is 2.5yrs and has a large complex hemangioma on her eyelid and head. She...
Forum: Help and Resources for Hemangiomas 04-22-2009, 08:39 PM
Replies: 6
Views: 872
Posted By lo1
My daughter was on steroids from 11weeks old for...

My daughter was on steroids from 11weeks old for 3 months. Only side effect was that she put on more weight and had very chubby cheeks!
Forum: Help and Resources for Hemangiomas 04-21-2009, 09:17 PM
Replies: 6
Views: 872
Posted By lo1
My daughter is now 21 months old and she too has...

My daughter is now 21 months old and she too has a H on her upper eyelid, although it is a segmental H with deep parts. Her eyelid drooped and she we have had to patch her good eye daily as her...
Forum: Help and Resources for Hemangiomas 03-18-2009, 07:52 PM
Replies: 12
Views: 1,845
Posted By lo1
Hi Laura My daughter attends GOSH for her H and...

Hi Laura

My daughter attends GOSH for her H and she is now 20months old, when we went for her review in December I mentioned the use of propranolol and was told they have started using it for a few...
Forum: Help and Resources for Hemangiomas 02-17-2009, 05:52 PM
Replies: 10
Views: 945
Posted By lo1
Hi Yes we still go through this and my daughter...

Hi

Yes we still go through this and my daughter is now 19mths. In fact just today a little boy said "what has she done to her eye", "can she close it", "can she blink". I tried telling myself that...
Forum: Help and Resources for Hemangiomas 01-29-2009, 09:41 AM
Replies: 4
Views: 552
Posted By lo1
My daughter is now 19months old and a has a large...

My daughter is now 19months old and a has a large segmental H over her left eyelid and temple area. My daughter has now had 2 MRI scans and both showed that the H is in the orbit area too. She had...
Forum: Help and Resources for Hemangiomas 10-26-2008, 08:28 PM
Replies: 17
Views: 2,756
Posted By lo1
Hi Michelle I was so sorry to read this. My...

Hi Michelle

I was so sorry to read this. My daughter Abbie is now 15 months old and sees many NHS doctors including Prof. Harper and Mr Abou-Rayyah (Consultant Oculoplastic Ophthalmic Surgeon) at...
Forum: Help and Resources for Hemangiomas 10-03-2008, 02:00 PM
Replies: 2
Views: 978
Posted By lo1
My daughter had one steroid injectioin and then...

My daughter had one steroid injectioin and then oral steroids but in her case it did not work. Although from what I have heared they often do work.

Her H is also around her eye and behind her eye...
Forum: Help and Resources for Hemangiomas 09-20-2008, 02:47 PM
Replies: 4
Views: 1,018
Posted By lo1
My daughter has a very large H on her upper...

My daughter has a very large H on her upper eyelid and head, it also goes inside her eyelid. An MRI scan showed that it is also behind her eye socket. My daughter sees an opthamologist and a...
Forum: Help and Resources for Hemangiomas 09-07-2008, 08:18 PM
Replies: 2
Views: 796
Posted By lo1
Hi we too live in the UK (Aberdeen) and also see...

Hi we too live in the UK (Aberdeen) and also see specialists frequently at Great Ormond Street - my daughter is 14 months old with a large segmental h on her left eyelid and head. Unfortunatly...
Forum: Help and Resources for Hemangiomas 07-16-2008, 08:31 PM
Replies: 10
Views: 3,118
Posted By lo1
I just wanted to reply to your post summersmom -...

I just wanted to reply to your post summersmom - my daughter has one large segmental H on her eyelid, head (external) and behind her eye (internal). One H is stressful enough to deal with so I'm...
Forum: Help and Resources for Hemangiomas 07-13-2008, 08:26 PM
Replies: 9
Views: 1,339
Posted By lo1
My daughter Abbie is also 12 months old and she...

My daughter Abbie is also 12 months old and she has had 2 MRI scans of her head (brain) and neck. Both were carried out by GA ,one had 8 weeks old and the other 10.5 months. It took her longer to...
Forum: Help and Resources for Hemangiomas 05-08-2008, 09:33 AM
Replies: 6
Views: 1,284
Posted By lo1
Hi Your daughter looks so happy - I hope you...

Hi

Your daughter looks so happy - I hope you get somewhere with the surgeons soon. My daughter Abbie is scheduled for possible surgery next wed on her eyelid H - but they will not remove the whole...
Forum: Help and Resources for Hemangiomas 03-27-2008, 09:32 PM
Replies: 7
Views: 1,690
Posted By lo1
Wonderful! - What a relief for you all, now you...

Wonderful! - What a relief for you all, now you can hopefully put it behind you. My daughter Abbie is provisionally scheduled for surgery to correct her eyelid H on the 14th May and your photos...
Forum: Help and Resources for Hemangiomas 02-21-2008, 07:27 PM
Replies: 2
Views: 825
Posted By lo1
Thanks for your reply. My daughter is 8 months...

Thanks for your reply. My daughter is 8 months old and is provisionally booked in for eyelid surgery in May, but this is only to debulk the eyelid so she can see. We dont want to rush into laser at...
Forum: Help and Resources for Hemangiomas 02-20-2008, 08:39 PM
Replies: 2
Views: 1,047
Posted By lo1
Eyelid Surgery

Hi everyone

As mentioned on my other post my daughter saw a specialist yesterday who has provisionally scheduled surgery to debulk her eyelid h - so she can open her eye wider. (They are not...
Forum: Help and Resources for Hemangiomas 02-20-2008, 08:35 PM
Replies: 2
Views: 825
Posted By lo1
Segmental H

Hi my daughter has finally been seen by a specialist who has diagnosed her with a Segmental H on her eye/head - I cant seem to find much info. on this type - does it go away like most other types of...
Forum: Help and Resources for Hemangiomas 02-11-2008, 08:57 PM
Replies: 3
Views: 887
Posted By lo1
Hi You are not alone - my daughter has an H on...

Hi

You are not alone - my daughter has an H on her left eyelid and we have not been offered laser or surgery as in the UK they prefer to wait and see for some reason - although I have had other...
Forum: Help and Resources for Hemangiomas 02-09-2008, 07:26 PM
Replies: 1
Views: 805
Posted By lo1
Hi I am really interested to find out what...

Hi

I am really interested to find out what happens to your daughter - is the surgery being done at GOSH or where? who is doing it? My daughter is 7 months old and she has an H on her left eyelid...
Forum: Help and Resources for Hemangiomas 02-06-2008, 07:39 PM
Replies: 17
Views: 2,756
Posted By lo1
Thanks very much for your response. My daughter...

Thanks very much for your response. My daughter Abbie is giong to GOSH in a couple of weeks time so we will wait and see what they say before we make any decisions, but I understand how hard it...
Forum: Help and Resources for Hemangiomas 02-03-2008, 07:28 PM
Replies: 1
Views: 990
Posted By lo1
Laser Surgery

Hi

My daughter has a large H on her left eyelid/head and also behind her eye. As it is affecting her vision laser surgery has been mentioned as steroids (oral and injection) did not work.

What...
Forum: Help and Resources for Hemangiomas 01-22-2008, 07:56 PM
Replies: 12
Views: 1,845
Posted By lo1
Questions

Thanks for your reply - I would really appreciate a copy of the answers emailed to me - I have sent you a private message with my email address.

Thanks

Lorna x
Forum: Help and Resources for Hemangiomas 01-21-2008, 07:23 PM
Replies: 12
Views: 1,845
Posted By lo1
Hi there We are in exactly the same position...

Hi there

We are in exactly the same position with our 6.5 month old daughter who too has an H on her eyelid and in her orbit. We have not see Dr. Fay but have emailed - again surgery is...
Showing results 1 to 25 of 31

 
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