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Search: Posts Made By: LilyGrace23
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 09-25-2008, 01:39 PM
Replies: 7
Views: 2,219
Posted By LilyGrace23
Has anyone else had any similar situations. all...

Has anyone else had any similar situations. all the information I can get is truly helpful. this is the best my son has felt and he is now 8 and hasn't been sick in a while. I haven't really gotten...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-26-2008, 11:39 PM
Replies: 7
Views: 2,219
Posted By LilyGrace23
**UPDATE** We went to the appt. in Boston. This...

**UPDATE**
We went to the appt. in Boston. This day is truly a miracle...
First the radiologist came in and told us he couldn't see any of the tumors in Kaden's rib bones that were previously there,...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-19-2008, 08:17 PM
Replies: 5
Views: 5,467
Posted By LilyGrace23
Michelle, thank you so much for all your...

Michelle,
thank you so much for all your information, support and your daughter's story. Until last week I didn't realize there were so many people facing similar situations to us. My son was...
Forum: Living with a birthmark - my story 06-19-2008, 08:03 PM
Replies: 4
Views: 3,788
Posted By LilyGrace23
Thank you so much for your story. It has given me...

Thank you so much for your story. It has given me so much hope and I know now that we are not alone. I thought what we went through with my son being so sick his first three years with his lymphatic...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-19-2008, 07:47 PM
Replies: 7
Views: 2,219
Posted By LilyGrace23
sooooo nervous

Thank you for writing back!!
I am so scared and nervous right now. On the one hand I can't wait for tomorrow's appt. on the other I am scared there will be bad news. I need more information and...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-13-2008, 04:41 PM
Replies: 8
Views: 2,564
Posted By LilyGrace23
God bless!!! My son is 8 and was diagnosed at 2...

God bless!!! My son is 8 and was diagnosed at 2 with lymphatic malformations. he had a cat scan last week and we go to boston children's next friday. He might possibly have 2 of these tumors in his...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-13-2008, 02:11 PM
Replies: 9
Views: 4,785
Posted By LilyGrace23
don't give up hope. I fought for 2 years to take...

don't give up hope. I fought for 2 years to take me serious and it was well worth it. My son has a very rare form of lymphatic malformations. his is all throughout his chest, near his lungs, and...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-13-2008, 02:00 PM
Replies: 7
Views: 2,219
Posted By LilyGrace23
Rare form of lymphatic malformatiions can anyone relate

I am new to this site so If anyone can give some support or if anyone has been through something similar please let me know!!!! until this website I thought I was alone with this. It has been a long...
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