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Search: Posts Made By: megs1082
Forum: Help and Resources for Hemangiomas 09-23-2009, 07:23 AM
Replies: 4
Views: 573
Posted By megs1082
Missing a dose is just fine!

I know your question was asked a few days ago, but I just wanted to share that it is absolutely okay to miss a dose, or two, or three! That is one of the really good points of the drug! Unlike oral...
Forum: Help and Resources for Hemangiomas 06-20-2009, 07:12 PM
Replies: 14
Views: 1,497
Posted By megs1082
Any news Crofte?

I'm glad to hear you heard back from Dr. Fay. Any communication with Dr. Waner?


It's interesting that Dr. Fay said the propranolol doesn't work well unless started early. I know that in our derm...
Forum: Help and Resources for Hemangiomas 06-09-2009, 06:52 PM
Replies: 14
Views: 1,497
Posted By megs1082
Crofte, Yes, research is key! You have to do...

Crofte,

Yes, research is key! You have to do your own, or you will be left second guessing yourself (you'll still probably second guess your decisions, but at least you'll know you did your best to...
Forum: Help and Resources for Hemangiomas 06-08-2009, 11:24 PM
Replies: 14
Views: 1,497
Posted By megs1082
My daughter has 4 hemangiomas - 2 deep (1 parotid...

My daughter has 4 hemangiomas - 2 deep (1 parotid - on cheek near ear, and one on her fingertip), 1 compound on her shoulder and 1 superficial on her chest. We sought treatment because of the...
Forum: Help and Resources for Hemangiomas 05-19-2009, 04:12 AM
Replies: 3
Views: 744
Posted By megs1082
Thank you both!

We're going to go! I've booked travel for next Wednesday - I'm just going to pray I don't hear any coughing or sneezing so I'm not nervous and paranoid all day!

You both helped me to make my...
Forum: Help and Resources for Hemangiomas 05-14-2009, 03:24 AM
Replies: 3
Views: 744
Posted By megs1082
Flu Scare and Oral Steroid Use

A bit of background info before my question. I've posted here before regarding my daughter and her parotid hemangioma. Long story short, at 3 weeks of age she was started on alternate day therapy of...
Forum: Help and Resources for Hemangiomas 05-02-2009, 12:04 AM
Replies: 3
Views: 739
Posted By megs1082
Propranolol

I would also suggest the propranolol. Having used both oral steroids and propranolol, the propranolol is a better option in my opinion. I say that with the stipulation that there be very careful...
Forum: Help and Resources for Hemangiomas 04-22-2009, 04:40 PM
Replies: 6
Views: 872
Posted By megs1082
Deep Hemangioma

Hi,

My daughter has 3 deep hemangiomas - 1 parotid (on her cheek by her salivary gland), one on her shoulder and one on her fingertip.

The h on her cheek is the only one that was of real concern...
Forum: Help and Resources for Hemangiomas 04-10-2009, 01:55 AM
Replies: 10
Views: 1,267
Posted By megs1082
Liz - Thanks for your reply! I'm glad to know it...

Liz - Thanks for your reply! I'm glad to know it isn't just me that sees a difference in a mirror! I was starting to think I was going crazy!

You may not have thought about what Sam might think...
Forum: Help and Resources for Hemangiomas 04-01-2009, 12:26 AM
Replies: 10
Views: 1,267
Posted By megs1082
Liz, I wanted to update you and also have a few...

Liz,

I wanted to update you and also have a few questions about the involution phase!

First, thank you again for your willingness to share your experiences! It is helpful to know what you've...
Forum: Help and Resources for Hemangiomas 03-20-2009, 09:29 PM
Replies: 1
Views: 529
Posted By megs1082
Baby acne on/around hemangioma?

I'm wondering if anyone else has noticed a lot more baby acne on/around their baby's hemangioma than elsewhere on their face? My daughter has a deep h on her cheek (parotid) and I've noticed over...
Forum: Help and Resources for Hemangiomas 03-13-2009, 04:49 AM
Replies: 10
Views: 1,267
Posted By megs1082
Decision

Liz and Corinne,

First Liz - Thank you so much for taking the time to respond to me! It was wonderful to look at Sam's pictures! He's SO CUTE!!! His h responded beautifully to steroids and I'm...
Forum: Help and Resources for Hemangiomas 03-09-2009, 05:12 PM
Replies: 5
Views: 688
Posted By megs1082
Thank you for your comments ladies!

You didn't scare me; not anymore than I already am anyway! I appreciate your honest input. My thoughts were to go ahead with starting as an impatient as well. We also still haven't decided to use...
Forum: Help and Resources for Hemangiomas 03-06-2009, 10:59 PM
Replies: 5
Views: 688
Posted By megs1082
Phone consult with Dr. Waner! Re: Parotid H

I just got off the phone with Dr. Waner. First let me say how wonderful he and his nurse, Corey, are! I e-mailed them yesterday morning and by the same afternoon he was calling me (I couldn't take...
Forum: Help and Resources for Hemangiomas 03-04-2009, 07:12 PM
Replies: 2
Views: 616
Posted By megs1082
Thank you for your response! It is reasuring to...

Thank you for your response! It is reasuring to know your daughters was firm sometimes too!
Forum: Help and Resources for Hemangiomas 03-04-2009, 05:50 PM
Replies: 0
Views: 624
Posted By megs1082
Exclamation Johns Hopkins Using Propranolol as First Line Treatment

http://www.medpagetoday.com/Dermatology/GeneralDermatology/13051

My mom sent me this article. I know Johns Hopkins isn't necessarily highly respected for their treatment of h's, but they certainly...
Forum: Help and Resources for Hemangiomas 03-02-2009, 04:11 PM
Replies: 10
Views: 1,267
Posted By megs1082
Thank you for your response! It was so helpful! ...

Thank you for your response! It was so helpful! I took a look at the bottle and it says 15mg/5ml. I guess that explains some things!

I'm so glad you mentioned the timeframe in which to see some...
Forum: Help and Resources for Hemangiomas 03-02-2009, 12:44 AM
Replies: 2
Views: 616
Posted By megs1082
Deep Hemangioma Hard to the Touch?

I posted another question regarding my daughters deep parotid h. Now, in doing some more reading, I've come up with another. In all the descriptions I've seen of deep h's, they are referred to as...
Forum: Help and Resources for Hemangiomas 03-01-2009, 04:32 PM
Replies: 10
Views: 1,267
Posted By megs1082
Alternate day steroid therapy?

My daughter was diagnosed with a deep parotid h at 2 wks old. She is being treated by the dermatology dept at Children's Mercy Hospital in Kansas City. At the time of her first appointment, the h...
Showing results 1 to 19 of 19

 
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