Vascular Birthmarks Foundation Forum - Search Results
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment.
Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Search Forums

Showing results 1 to 25 of 104
Search took 0.01 seconds; generated 64327 minute(s) ago.
Search: Posts Made By: momof3inpa2009
Forum: Help and Resources for Hemangiomas 02-25-2014, 01:34 PM
Replies: 3
Views: 4
Posted By momof3inpa2009
IMO you should not do the wait and see approach...

IMO you should not do the wait and see approach because it is by her eye. My daughter's is also in her eyebrow and by her eye and nose, it's a "deep" hemangioma. Propanolol helped her tremendously in...
Forum: Help and Resources for Hemangiomas 02-25-2014, 01:26 PM
Replies: 4
Views: 5
Posted By momof3inpa2009
I just emailed him with pictures I'm hoping that...

I just emailed him with pictures I'm hoping that I did it correctly?!
Forum: Help and Resources for Hemangiomas 02-25-2014, 10:59 AM
Replies: 3
Views: 4
Posted By momof3inpa2009
My daughters is a deep hemangioma and I don't...

My daughters is a deep hemangioma and I don't think shes ever had the red on the outside but used to have the blue. I just wonder how a scar would heal and agonize about a visible scar on her face....
Forum: Help and Resources for Hemangiomas 02-24-2014, 04:04 PM
Replies: 4
Views: 5
Posted By momof3inpa2009
My daughter has one almost exactly as you have...

My daughter has one almost exactly as you have described. It's a deep hemangioma in her eyebrow area more towards the nose and it also makes her eye lid droop when it's at its puffi-est. I urge you...
Forum: Help and Resources for Hemangiomas 02-24-2014, 03:59 PM
Replies: 3
Views: 4
Posted By momof3inpa2009
Surgery or no surgery

I would love to hear from those of you who have had surgery on their little ones to remove a hemangioma. We have given my daughter's plenty of time and it's just not going away on it's own. You can...
Forum: Help and Resources for Hemangiomas 02-24-2014, 03:55 PM
Replies: 5
Views: 6
Posted By momof3inpa2009
To answer your question no I never noticed any...

To answer your question no I never noticed any rash, etc. with my daughter. My daughter's story is similar to yours btw. And I so agree with you on "if you miss a dose" good luck to you!
Forum: Help and Resources for Hemangiomas 09-28-2013, 11:28 AM
Replies: 4
Views: 5
Posted By momof3inpa2009
Shannon- Thank you! So much of what you said...

Shannon-

Thank you! So much of what you said felt like I could have written!
I felt myself nodding my head a lot as I read!
We decided to wait an additional 6 months for surgery. However surgery...
Forum: Help and Resources for Hemangiomas 09-25-2013, 05:29 PM
Replies: 13
Views: 14
Posted By momof3inpa2009
I understand how you feel. Like you when my...

I understand how you feel. Like you when my daughter's showed up I was searching the Internet going nuts, looking at pics and I had myself crazy. Don't do that to yourself. Seriously. You will be a...
Forum: Help and Resources for Hemangiomas 09-25-2013, 05:26 PM
Replies: 8
Views: 9
Posted By momof3inpa2009
I am also an older Mom, and I have also suffered...

I am also an older Mom, and I have also suffered with infertility for years and in fact I still am. I had my daughter when I was 38 and I am now 41, anyway don't ever blame yourself. Trust me I...
Forum: Help and Resources for Hemangiomas 09-25-2013, 05:02 PM
Replies: 4
Views: 5
Posted By momof3inpa2009
Surgery questions

So many of you may have read my daughter's story at her blog and well I'm at a point here now that I don't know what decision to make. A bit of short background: My daughter is now 4 and she has a...
Forum: Help and Resources for Hemangiomas 09-25-2013, 12:01 AM
Replies: 4
Views: 5
Posted By momof3inpa2009
Sascha Timolol is a topical gel that is rubbed...

Sascha

Timolol is a topical gel that is rubbed into the hemangioma. Many do not believe that it works well on "deep" hemangiomas and to be honest we didn't think it was working either until we...
Forum: Help and Resources for Hemangiomas 07-23-2013, 01:30 PM
Replies: 4
Views: 5
Posted By momof3inpa2009
An update on success of propanolol and timolol.

I know it's been awhile since I've stopped in but here is an update for those that may remember me OR for those that need...
Forum: Help and Resources for Hemangiomas 08-31-2011, 01:34 AM
Replies: 24
Views: 25
Posted By momof3inpa2009
My daughter is now on the timololol. It seems to...

My daughter is now on the timololol. It seems to keep the swelling down.
Forum: Help and Resources for Hemangiomas 08-31-2011, 01:33 AM
Replies: 9
Views: 10
Posted By momof3inpa2009
For us we noticed a change right away and then...

For us we noticed a change right away and then nothing...I was getting so irritated and didn't know why it wasn't working. But slowly it did work. And it looks so much better to the point people have...
Forum: Help and Resources for Hemangiomas 08-31-2011, 01:30 AM
Replies: 8
Views: 9
Posted By momof3inpa2009
as said earlier go to a pediatric opthamologist....

as said earlier go to a pediatric opthamologist. my little girls started out looking "similar" and it was right above the eye in the same spot where your son's is, but at the top not the bottom. We...
Forum: Help and Resources for Hemangiomas 08-31-2011, 01:25 AM
Replies: 8
Views: 9
Posted By momof3inpa2009
amazing!!! beautiful!!!

amazing!!! beautiful!!!
Forum: Help and Resources for Hemangiomas 03-26-2011, 01:31 AM
Replies: 10
Views: 11
Posted By momof3inpa2009
It seems hemangiomas affect more girls than boys....

It seems hemangiomas affect more girls than boys. I really wonder why this is. I really wish they would figure out a connection and what causes hemangiomas. I'm very interested in finding out.
Forum: Help and Resources for Hemangiomas 03-26-2011, 01:26 AM
Replies: 6
Views: 7
Posted By momof3inpa2009
she is a cutie! i'm glad too that you found help!

she is a cutie! i'm glad too that you found help!
Forum: Help and Resources for Hemangiomas 03-26-2011, 01:25 AM
Replies: 10
Views: 11
Posted By momof3inpa2009
Same thing here. My daughter's is on her left...

Same thing here. My daughter's is on her left eyebrow and it gets puffy from time to time.....In fact she was completely weaned off of propanolol for about a week and her H got a bit puffy and we...
Forum: Help and Resources for Hemangiomas 03-22-2011, 11:07 PM
Replies: 33
Views: 34
Posted By momof3inpa2009
I will try to PM you my email

I will try to PM you my email
Forum: Help and Resources for Hemangiomas 03-22-2011, 06:21 PM
Replies: 33
Views: 34
Posted By momof3inpa2009
Well I was just coming in to update again...we...

Well I was just coming in to update again...we are not having any luck with weaning....Lexi is back on one dose again. Her hemangioma is getting bigger again. Phoenixihc...I would love to talk with...
Forum: Help and Resources for Hemangiomas 03-09-2011, 06:35 PM
Replies: 8
Views: 9
Posted By momof3inpa2009
Yes I agree I think it helps the deep ones more...

Yes I agree I think it helps the deep ones more than the other ones. I have heard though that it takes the color from the strawberry ones. Good luck to you as well. Hugs!
Forum: Help and Resources for Hemangiomas 03-09-2011, 01:20 PM
Replies: 7
Views: 8
Posted By momof3inpa2009
Congrats and I am glad she is doing great!

Congrats and I am glad she is doing great!
Forum: Help and Resources for Hemangiomas 03-09-2011, 01:18 PM
Replies: 8
Views: 9
Posted By momof3inpa2009
I was discouraged at first. In the hospital we...

I was discouraged at first. In the hospital we saw a change right away, it was a small change but we noticed it right away so I got HIGH hopes. But when we went home it was a few months and I didn't...
Forum: Help and Resources for Hemangiomas 03-09-2011, 01:12 PM
Replies: 4
Views: 5
Posted By momof3inpa2009
You can get it flavored. We flavor ours with...

You can get it flavored. We flavor ours with strawberry mint or bubblegum mint
Showing results 1 to 25 of 104

 
Forum Jump