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Search: Posts Made By: Superchikk
Forum: General Resources 06-27-2011, 03:49 PM
Replies: 1
Views: 2
Posted By Superchikk
PWS Treatment in Atlanta area

We are moving to the Atlanta area and need recommendations for a doctor to treat our almost-4-year-old son's Port Wine Stain. He's been receiving treatment at Arkansas Children's Hospital for the...
Forum: Port Wine Stain Help and Resources 06-27-2011, 03:46 PM
Replies: 16
Views: 17
Posted By Superchikk
Our son is almost 4 years old and has had 11...

Our son is almost 4 years old and has had 11 laser treatments under general anesthesia. Honestly, I was unaware of the suspected connection between GA and learning disabilities, but I can't say I'm...
Forum: Port Wine Stain Help and Resources 11-30-2008, 06:49 PM
Replies: 3
Views: 1,120
Posted By Superchikk
All the research I have seen does not point to a...

All the research I have seen does not point to a familial or genetic predisposition to birthmarks. They're just "one of those things" that a certain percentage of the population have. We have a son...
Forum: Port Wine Stain Help and Resources 11-10-2008, 09:36 PM
Replies: 9
Views: 1,253
Posted By Superchikk
Our son receives treatments for a PWS on his...

Our son receives treatments for a PWS on his cheek and up near his ear. The doctor has used a low setting for his treatments so far, but I have noticed a little swelling for a day or two following...
Forum: Port Wine Stain Help and Resources 11-10-2008, 09:32 PM
Replies: 4
Views: 876
Posted By Superchikk
First of all, if you are not comfortable with...

First of all, if you are not comfortable with what your doctor has told you, get a second, third, and fourth opinion! You do not have to go by what one person says, especially if you question it AND...
Forum: Port Wine Stain Help and Resources 11-10-2008, 09:22 PM
Replies: 7
Views: 1,514
Posted By Superchikk
If you want to email me at superchikk@cox.net, I...

If you want to email me at superchikk@cox.net, I will be happy to send you pictures of my son's progress.

He's 14 months old and has had two treatments (due for another in December) for a PWS on...
Forum: Port Wine Stain Help and Resources 07-25-2008, 12:55 AM
Replies: 2
Views: 62,037
Posted By Superchikk
I am not sure, but I haven't heard that. Our...

I am not sure, but I haven't heard that.

Our son had a treatment in May on the side of his face, and he didn't lose the "peach fuzz" he has on his face.
Forum: Port Wine Stain Help and Resources 07-25-2008, 12:53 AM
Replies: 10
Views: 2,446
Posted By Superchikk
Our son has had one treatment at 8 months old,...

Our son has had one treatment at 8 months old, but he didn't seem phased at ALL by the anesthesia. The doctors used a gas with a mask, no tube, IV, or anything. By the time we got to recovery, he was...
Forum: Port Wine Stain Help and Resources 07-25-2008, 12:46 AM
Replies: 4
Views: 1,500
Posted By Superchikk
So glad to see your progress! Our son has his...

So glad to see your progress! Our son has his second treatment in two weeks for a PWS on his cheek. It's encouraging to see that others are having success.
Forum: Port Wine Stain Help and Resources 06-23-2008, 01:14 AM
Replies: 5
Views: 1,477
Posted By Superchikk
I agree - I would seek a second opinion and get a...

I agree - I would seek a second opinion and get a more secure diagnosis.

I believe the earlier the intervention, the better - for just about anything.

I know that our insurance only covers...
Forum: Port Wine Stain Help and Resources 06-23-2008, 01:09 AM
Replies: 5
Views: 1,330
Posted By Superchikk
We do our best to minimize direct exposure to the...

We do our best to minimize direct exposure to the sun. I've had melanoma and we are pretty careful about the sun. Our son had his first treatment for PWS in May and we'll have another in August, so...
Forum: Port Wine Stain Help and Resources 06-23-2008, 12:59 AM
Replies: 5
Views: 1,343
Posted By Superchikk
Our son has had one treatment on his PWS. It is...

Our son has had one treatment on his PWS. It is on his left cheek extending from his ear toward his mouth, sort of like a mutton-chop.

We were told by our doctor that she would start with the laser...
Forum: Port Wine Stain Help and Resources 06-23-2008, 12:52 AM
Replies: 5
Views: 1,346
Posted By Superchikk
We also had to wait what seemed like forever for...

We also had to wait what seemed like forever for our first treatment. Our son was 8 months old for his first. It will come quicker than you think!

And our Doctor promised us the whole thing would be...
Forum: Port Wine Stain Help and Resources 06-23-2008, 12:48 AM
Replies: 6
Views: 1,283
Posted By Superchikk
We see Dr. Buckmiller in Little Rock (Arkansas)....

We see Dr. Buckmiller in Little Rock (Arkansas). We have had a great experience with her and her staff so far. We go back for our second treatment in August.
Forum: Port Wine Stain Help and Resources 03-20-2008, 06:08 PM
Replies: 12
Views: 3,221
Posted By Superchikk
My story is a bit different. I noticed my son's...

My story is a bit different. I noticed my son's PWS on his cheek the instant the doctor laid him on my stomach immediately after delivery. It didn't bother me a bit. As he looked up at me, our eyes...
Forum: Port Wine Stain Help and Resources 03-20-2008, 05:49 PM
Replies: 5
Views: 2,371
Posted By Superchikk
How old was she at her first treatment? My son is...

How old was she at her first treatment? My son is about to begin treatments for a PWS on his cheek, and he will be 8 months old. We are hoping he will only need a few treatments. Sounds like it...
Forum: Port Wine Stain Help and Resources 02-26-2008, 07:23 PM
Replies: 19
Views: 3,906
Posted By Superchikk
Sorry it has taken me so long to get back with...

Sorry it has taken me so long to get back with you.

Our insurance covered the office visit with just our usual copay. We have BC/BS. Our coverage does not require a referral, but we were actually...
Forum: Port Wine Stain Help and Resources 01-29-2008, 12:07 AM
Replies: 19
Views: 3,906
Posted By Superchikk
For Lailasmom

Lailasmom - we recently saw Dr. Buckmiller at Arkansas Children's Hospital for our son's PWS. I can't say enough about the staff. We were in and out in less than an hour for our first appointment....
Forum: Port Wine Stain Help and Resources 01-28-2008, 11:59 PM
Replies: 62
Views: 6,101
Posted By Superchikk
Our son's is on the left cheek.

Our son's is on the left cheek.
Showing results 1 to 19 of 19

 
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