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Search: Posts Made By: kg8183
Forum: Help and Resources for Hemangiomas 09-23-2013, 07:10 PM
Replies: 2
Views: 3
Posted By kg8183
Proper dosage and use of propranolol while sick

Hi guys,

Have been away from the forum for a little bit. I am here to give an update and also ask few questions.

Thankfully, the ulcerations on our son's hemangioma healed in about 5 weeks after 1...
Forum: Help and Resources for Hemangiomas 07-18-2013, 08:56 AM
Replies: 20
Views: 21
Posted By kg8183
Thanks Missy and Shannon. So far we are very...

Thanks Missy and Shannon.
So far we are very pleased with Dr. Nagy. He seems to be a very down-to-earth and very caring person. Most importantly, I do get the sense that he actually knows what he is...
Forum: Help and Resources for Hemangiomas 07-17-2013, 05:49 AM
Replies: 20
Views: 21
Posted By kg8183
Update. Had a laser treatment today.

Our son had laser pulse dye therapy on his hemangioma today. We were not allowed to go in, but were told by the dr. that he took it pretty well. The doctor is satisfied with how the treatment is...
Forum: Help and Resources for Hemangiomas 07-13-2013, 05:04 AM
Replies: 20
Views: 21
Posted By kg8183
Thanks Shannon. I have read about your daughter's...

Thanks Shannon. I have read about your daughter's hemangioma, and probably, in cases like hers, Lidocaine may be the only option. Tylenol seems to be helping our son, and I would think that if things...
Forum: Help and Resources for Hemangiomas 07-12-2013, 06:07 AM
Replies: 20
Views: 21
Posted By kg8183
By the way, I am attaching some photos taken 3...

By the way, I am attaching some photos taken 3 days before the start of the propranolol treatment and 14 days after the propranolol treatment with the ulceration, at which point we were instructed to...
Forum: Help and Resources for Hemangiomas 07-12-2013, 04:58 AM
Replies: 20
Views: 21
Posted By kg8183
Update!!!! Saw a Hemangioma Specialist

Today we took our son to see Dr. Mark Nagy who is on the specialists list on VBF and NOVA. He is a respected pediatric ENT who specializes in Hemangiomas and vascular malformations. In fact, he...
Forum: Help and Resources for Hemangiomas 07-09-2013, 03:12 AM
Replies: 20
Views: 21
Posted By kg8183
Well, we took our son to see the dermatologist...

Well, we took our son to see the dermatologist today since it has been 2 weeks since he started the Propranolol treatment. We were told that the ulceration looks ok and it doesn't seem to be...
Forum: Help and Resources for Hemangiomas 07-09-2013, 02:42 AM
Replies: 1
Views: 2
Posted By kg8183
Wound specialist?

Hi guys,

while searching the forum for ulcerations and wound treatment, I see that Dr. Serena's names comes up a lot as the VBF expert on wounds. However, I don't see Dr. Serena's name in the list...
Forum: Help and Resources for Hemangiomas 07-08-2013, 04:09 AM
Replies: 20
Views: 21
Posted By kg8183
Thank you Shannon. Indeed, Dr. Levitin was very...

Thank you Shannon. Indeed, Dr. Levitin was very helpful. If it wasn't for the ~ 6 hour drive or 1.5 hr. flight, which our son probably will not take well now, we would pack and go down to NYC to see...
Forum: Help and Resources for Hemangiomas 07-07-2013, 10:04 PM
Replies: 20
Views: 21
Posted By kg8183
Thaks for the link for caring ulcerations. By the...

Thaks for the link for caring ulcerations. By the way, how often are you supposed to wash the wound and change the gauze?
Forum: Help and Resources for Hemangiomas 07-07-2013, 09:04 PM
Replies: 20
Views: 21
Posted By kg8183
We used xylocane couple of times and it did help...

We used xylocane couple of times and it did help somewhat. However, we were adviced not to use it for now because with an open wound we can't control absorption. So we are left with Tylenol at this...
Forum: Help and Resources for Hemangiomas 07-07-2013, 08:48 PM
Replies: 20
Views: 21
Posted By kg8183
Thank you everyone. I did contact Dr. Levitin...

Thank you everyone.

I did contact Dr. Levitin with my concerns and received very prompt responses. Considering that it is also the 4th of July week-end, it was very nice of him to take the time to...
Forum: Help and Resources for Hemangiomas 07-05-2013, 06:00 AM
Replies: 20
Views: 21
Posted By kg8183
High dose of Propranolol to cause H to ulcerate?

Unfortunately our son's Hemangioma near his ear ulcerated, regardless of how moist we tried to keep it using vaseline. We contacted the dermatologist and were right away instructed to decrease the...
Forum: Help and Resources for Hemangiomas 07-03-2013, 03:27 AM
Replies: 2
Views: 3
Posted By kg8183
Thanks for the input. Since my last post, his...

Thanks for the input. Since my last post, his eating is not back to what it was before. He is still eating 20-23 oz/day in smaller amounts. One thing that we did notice was his poop had gotten a lot...
Forum: Help and Resources for Hemangiomas 06-30-2013, 06:41 AM
Replies: 2
Views: 3
Posted By kg8183
Loss of appetite while on Propranolol?

Hello

Our 2.5 months old son has been on Propranolol (2 mg/kg divided by 3 - 0.7 ml every 8hrs) for about 8 days now. We do notice some change in his hemangioma but the drop in his appetite is a...
Forum: Help and Resources for Hemangiomas 06-23-2013, 07:18 AM
Replies: 5
Views: 6
Posted By kg8183
Good call on not getting enough sleep for the...

Good call on not getting enough sleep for the last couple of months :) But wouldn't trade the great feeling of being a parent for anything else.

Well, today in the hospital they continued to do the...
Forum: Help and Resources for Hemangiomas 06-23-2013, 06:48 AM
Replies: 5
Views: 6
Posted By kg8183
Thank you for your input. I'll certainly update...

Thank you for your input. I'll certainly update on the progress.
Forum: Help and Resources for Hemangiomas 06-22-2013, 08:10 AM
Replies: 5
Views: 6
Posted By kg8183
Exp. w/ Strong Memorial Hospital in Rochester, NY? Premature baby with Hemangioma

Hi,
I am really sorry for the long post.
a little background info. Our son was born at 37.5 weeks weighing 4.4 pounds. Spent about 8 days in the intensive care unit to stabilize sugar level in his...
Showing results 1 to 18 of 18

 
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