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Search: Posts Made By: kfrank
Forum: Help and Resources for Hemangiomas 03-28-2013, 01:51 AM
Replies: 6
Views: 7
Posted By kfrank
Thank you, SMurph

My husband posted this thread, but your generosity in sharing your daughter's pictures has helped me calm down so much. I know that my daughter's is a bit more extreme, since hers hasn't faded or...
Forum: Help and Resources for Hemangiomas 03-27-2013, 09:32 PM
Replies: 6
Views: 7
Posted By kfrank
Sent him a message on Sunday night

I still haven't heard back. We are pretty sure we are going to go though with it at this point. I talked to my daughter about it and she gave me a lot more confidence that this is the right thing to...
Forum: Help and Resources for Hemangiomas 03-25-2013, 05:17 AM
Replies: 3
Views: 4
Posted By kfrank
My daughter was on propanolol for her lip...

My daughter was on propanolol for her lip hemangioma about 3 1/2 year ago. My wife and I can't remember the exact dosage she was on, but we do know she only took dosages 2 times a day (not sure what...
Forum: Help and Resources for Hemangiomas 03-25-2013, 05:07 AM
Replies: 6
Views: 7
Posted By kfrank
4 year old daughter surgery

My daughter has a hemangioma on her lower lip. It was growing rapidly and ulcerated leaving her lip pretty deformed. It stopped growing years ago because of (we believe) the propanolol treatment...
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