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Search: Posts Made By: missy
Forum: Help and Resources for Hemangiomas 07-10-2014, 04:11 PM
Replies: 8
Views: 9
Posted By missy
Here you are! She sure is cute! Missy

Here you are!

She sure is cute!

Missy
Forum: Help and Resources for Hemangiomas 07-10-2014, 01:45 AM
Replies: 8
Views: 9
Posted By missy
Hi, Yes, just email pictures to that email...

Hi,

Yes, just email pictures to that email address and I'll be happy to add them to your post.

Missy
Forum: Port Wine Stain Help and Resources 07-06-2014, 02:07 AM
Replies: 3
Views: 4
Posted By missy
That is a good sign! Good news! Let us know how...

That is a good sign! Good news!

Let us know how things go with you.

Missy
Forum: Port Wine Stain Help and Resources 07-04-2014, 11:14 AM
Replies: 3
Views: 4
Posted By missy
Hi and welcome! You should call your insurance...

Hi and welcome!

You should call your insurance company and make sure it's covered first. I'd hate to get surprised by a large bill from the hospital.

Missy
Forum: Adults Living with Birthmarks 06-30-2014, 02:29 PM
Replies: 1
Views: 2
Posted By missy
Hi Kaykay, You've always been so eloquent about...

Hi Kaykay,

You've always been so eloquent about sharing your experiences. It's no wonder that people do look, but most of all ... they are helped by your journey.

Keep it up!

Missy
Forum: Port Wine Stain Help and Resources 06-27-2014, 08:27 PM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! I wouldn't know if the two...

Hi and welcome!

I wouldn't know if the two things are related, but if your physician thinks so, be sure to ask for additional resources for information. But I can't think of even another parent...
Forum: Adults Living with Birthmarks 06-17-2014, 01:36 PM
Replies: 4
Views: 5
Posted By missy
Hi and welcome, Tiffany! Thank you for coming by...

Hi and welcome, Tiffany!

Thank you for coming by and sharing your story here. Please, drop by and support other patients here... you have a very good outlook on your life.

Missy
Forum: Port Wine Stain Help and Resources 05-30-2014, 11:57 PM
Replies: 3
Views: 4
Posted By missy
Hi and welcome! Many patients with pws on their...

Hi and welcome!

Many patients with pws on their extremities report that they are larger than the non-affected arm or leg. Have you asked Dr. Rosen (our expert) what you should look for and...
Forum: Port Wine Stain Help and Resources 05-23-2014, 12:16 PM
Replies: 2
Views: 3
Posted By missy
Hi there! You should write to Dr. Nelson via ...

Hi there!

You should write to Dr. Nelson via http://birthmark.org/experts.php and ask him. I do know that laser will help prevent cobbles and blebs from forming, but I don't know about existing...
Forum: Port Wine Stain Help and Resources 05-08-2014, 10:41 AM
Replies: 2
Views: 3
Posted By missy
Hi and welcome! That sounds like port wine...

Hi and welcome!

That sounds like port wine stain. Where are you located?

Missy
Forum: AVM Help and Resources 04-09-2014, 12:45 AM
Replies: 2
Views: 3
Posted By missy
Hi You should have gotten an answer from Dr....

Hi

You should have gotten an answer from Dr. Rosen by now. I will look into that.

In the meantime, try writing to the European expert, too.

Missy
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 03-30-2014, 01:28 PM
Replies: 22
Views: 23
Posted By missy
Hi and welcome Go to...

Hi and welcome

Go to http://birthmark.org/experts.php and get in touch with Dr. Levitin. If he can't help you, he will recommend someone who can.


Missy
Forum: Help and Resources for Hemangiomas 03-25-2014, 02:27 PM
Replies: 8
Views: 9
Posted By missy
Hi and welcome! Different children and different...

Hi and welcome!

Different children and different birthmarks are going to need different treatment lengths, so I don't think this is something anyone else can tell you. I've known of children who...
Forum: Announcements 03-24-2014, 01:58 PM
Replies: 0
Views: 1
Posted By missy
Happy 20th Anniversary to VBF!

http://birthmark.org/node/278
VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

On Friday, October 10,...
Forum: AVM Help and Resources 03-12-2014, 10:40 AM
Replies: 4
Views: 5
Posted By missy
Hi and welcome! Other parents will chime in...

Hi and welcome!


Other parents will chime in soon. But I'm curious... Did they offer reasons for their opinions? If so, what were they?

Missy
Forum: Help and Resources for Hemangiomas 03-08-2014, 04:03 AM
Replies: 2
Views: 3
Posted By missy
Hi and welcome! Please visit...

Hi and welcome!

Please visit http://birthmarks.org/experts.php and send that picture to one of our experts. I don't really think that is another uncertain...it might be a sign of involution. I...
Forum: Help and Resources for Hemangiomas 02-21-2014, 12:13 AM
Replies: 11
Views: 12
Posted By missy
Hi, Call the plastic surgeons and see if they...

Hi,

Call the plastic surgeons and see if they take pediatric patients. Worry more about the doctor's experiences, not their title. If those listed will not see pediatric patients, then ask them...
Forum: Help and Resources for Hemangiomas 02-21-2014, 12:11 AM
Replies: 4
Views: 5
Posted By missy
Hi and welcome! Go to...

Hi and welcome!

Go to http://birthmarks.org/experts.php and ask Dr. Levitin. He will write you back quickly and give you good advice.

Missy
Forum: Help and Resources for Hemangiomas 02-19-2014, 06:00 PM
Replies: 4
Views: 5
Posted By missy
Hi and welcome! Where are you located? I think...

Hi and welcome!

Where are you located? I think your idea that the hemangioma might be putting pressure on the sinuses is one that needs investigation. I'd like to be able to hook you up to some...
Forum: Help and Resources for Hemangiomas 02-13-2014, 08:42 PM
Replies: 11
Views: 12
Posted By missy
Here ya go! If it were going to grow...

Here ya go!

If it were going to grow significantly, I would think it would be larger by now. As it is, I would just monitor this.

Having a diagnosis by a pediatrician already should enable you to...
Forum: Help and Resources for Hemangiomas 02-13-2014, 02:32 PM
Replies: 11
Views: 12
Posted By missy
Hi and welcome, If you will send your photo as...

Hi and welcome,

If you will send your photo as an attachment to contact@birthmark.org I will resize it and add it to this thread.

Everyone's baby's hemangiomas look different. Many start out as a...
Forum: Port Wine Stain Help and Resources 02-06-2014, 01:18 AM
Replies: 2
Views: 3
Posted By missy
I'm sorry. How frustrating! I hate when stuff...

I'm sorry. How frustrating! I hate when stuff like that happens!

Missy
Forum: AVM Help and Resources 02-02-2014, 10:21 PM
Replies: 5
Views: 6
Posted By missy
It can occur anywhere in the body, yes. I...

It can occur anywhere in the body, yes.

I don't know if her doctor would choose to do a local or general... I think that would depend on depth. It might be better to go with general, given her...
Forum: AVM Help and Resources 02-01-2014, 12:34 PM
Replies: 5
Views: 6
Posted By missy
Hi and welcome! A good percentage of the...

Hi and welcome!

A good percentage of the vascular malformations I've heard about are localized. Unless she is having problems in other areas, I wouldn't worry too much.

How old is your daughter? ...
Forum: Help and Resources for Hemangiomas 01-21-2014, 11:11 PM
Replies: 4
Views: 5
Posted By missy
I saw it a few minutes ago and replied back. ...

I saw it a few minutes ago and replied back. Attach your photos to that email and I'll send the whole bunch to him in one package!

Thanks,

Missy
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