Vascular Birthmarks Foundation Forum - Search Results
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Search Forums

Showing results 1 to 25 of 29
Search took 0.01 seconds.
Search: Posts Made By: LizH
Forum: Port Wine Stain Help and Resources 12-10-2010, 10:24 PM
Replies: 5
Views: 6
Posted By LizH
Photos

I've decided to share a few photos of the PWS on my hand.

"before procedure.JPG" shows my hand before the procedure I had in early November. It was quite warm, so the color is lighter than usual....
Forum: Port Wine Stain Help and Resources 12-09-2010, 02:36 AM
Replies: 2
Views: 3
Posted By LizH
Are you far from Denver? Dr. Eubanks treated my...

Are you far from Denver? Dr. Eubanks treated my PWS there.

Do you have medical insurance?
If so, start gathering information: is laser treatment of a PWS covered? Does it require...
Forum: Port Wine Stain Help and Resources 11-11-2010, 03:08 AM
Replies: 7
Views: 8
Posted By LizH
My (diagnosed) PWS always turns white when it's...

My (diagnosed) PWS always turns white when it's pressed, then turns back to red or purple afterwards. I definitely wouldn't rule it out. Good luck with the appointment, keep us updated!
Forum: Adults Living with Birthmarks 10-13-2010, 03:44 AM
Replies: 7
Views: 8
Posted By LizH
Hi! This website is a great resource- I'm sure...

Hi!
This website is a great resource- I'm sure you'll find help here.
Forum: Adults Living with Birthmarks 10-13-2010, 03:42 AM
Replies: 2
Views: 3
Posted By LizH
Hi Ellie May! I was born with a PWS on most of...

Hi Ellie May!

I was born with a PWS on most of my right hand, arm, back, and chest. I'm 25 and have had over 15 laser treatments, from when I was very young till the current ones.

How have you been...
Forum: Port Wine Stain Help and Resources 10-13-2010, 03:17 AM
Replies: 3
Views: 4
Posted By LizH
My answers: Was aloe or another lotion applied...

My answers:

Was aloe or another lotion applied immediately post-procedure?
My last doctor would apply lots of aloe before I left.

What did your doctor recommend doing after the treatment (in terms...
Forum: Port Wine Stain Help and Resources 10-13-2010, 03:04 AM
Replies: 3
Views: 4
Posted By LizH
Care after pulsed dye laser treatment

I recently finished my second phase of treatments with my new doctor, and am curious about this, particularly for those treated by Perfectas:

Was aloe or another lotion applied immediately...
Forum: Port Wine Stain Help and Resources 10-06-2010, 03:35 AM
Replies: 10
Views: 11
Posted By LizH
Hello! You're probably seeing purpura, the dark...

Hello!
You're probably seeing purpura, the dark purple bruise from the laser. It can be startling at first, but it goes away quickly : )
For me the amount of purpura depends on the setting of the...
Forum: Port Wine Stain Help and Resources 10-06-2010, 03:17 AM
Replies: 2
Views: 3
Posted By LizH
Hi! While I don't have experience with the bumps...

Hi!
While I don't have experience with the bumps being linked to hormones, I know how much of a pain they are to live with. I recently went back into laser treatments (I've had many over the course...
Forum: Port Wine Stain Help and Resources 09-17-2010, 02:54 PM
Replies: 7
Views: 8
Posted By LizH
Thanks : ) I wish I'd read this sooner, I...

Thanks : )
I wish I'd read this sooner, I definitely figured out the hard way I needed to eat more with the meds! Now I need to eat a big meal before anti-nausea meds before the painkillers, although...
Forum: Adults Living with Birthmarks 09-15-2010, 05:33 AM
Replies: 14
Views: 15
Posted By LizH
I hope it works for you! I've been able to sign...

I hope it works for you!
I've been able to sign up for pharmacy discounts offered to those whose prescriptions are underinsured- it helps with the price.
Forum: Port Wine Stain Help and Resources 09-15-2010, 04:57 AM
Replies: 7
Views: 8
Posted By LizH
Thanks kaykay! Nice to hear that someone else is...

Thanks kaykay! Nice to hear that someone else is figuring out how to live with it, too.

I got these cute little tissues with hearts on them from the wedding section of Michael's... people seem to...
Forum: Port Wine Stain Help and Resources 09-14-2010, 12:41 AM
Replies: 4
Views: 5
Posted By LizH
Hello! Did your general pediatrician or the...

Hello!
Did your general pediatrician or the pediatric dermatologist say they weren't knowledgeable about PWSs? In my experience (I'm 25 with a large PWS on my hand/arm/back) it makes a big difference...
Forum: Adults Living with Birthmarks 09-13-2010, 03:21 PM
Replies: 5
Views: 6
Posted By LizH
Engaged! Anyone covered an entire arm in makeup before??

My boyfriend surprised me two weeks ago and proposed!

I've started thinking about the dress... my PWS is all over my hand/arm/back, and I really don't want a dress with sleeves (kind of in love...
Forum: Adults Living with Birthmarks 09-13-2010, 03:03 PM
Replies: 14
Views: 15
Posted By LizH
YAZ and Yasmin do have side effects for many...

YAZ and Yasmin do have side effects for many people, however, the unique ingredient they use in place of progesterone is the only thing that works for some people with unbalanced hormones. Was your...
Forum: Port Wine Stain Help and Resources 09-13-2010, 02:58 PM
Replies: 7
Views: 8
Posted By LizH
Bleeding problems/ more treatments!

Has anyone post-puberty experienced problems with very small areas of your pws bleeding very easily?

I'm wondering how in the heck I can handle this in public, or if I need to start traveling with a...
Forum: Port Wine Stain Help and Resources 09-13-2010, 02:51 PM
Replies: 9
Views: 10
Posted By LizH
Thanks for posting this! It's great to hear...

Thanks for posting this!
It's great to hear positive diagnoses for others with pws : )
Forum: Port Wine Stain Help and Resources 08-27-2010, 02:15 PM
Replies: 5
Views: 6
Posted By LizH
I'm nearest to Richmond, VA which has a large...

I'm nearest to Richmond, VA which has a large number of dermatologists.

I could easily stay in northern VA though, does MD mandate treatment?
When I was very young I was treated in Maryland, but the...
Forum: Port Wine Stain Help and Resources 08-27-2010, 02:10 AM
Replies: 1
Views: 2
Posted By LizH
Medical code for billing

Another question- my insurance asked me to get the medical codes in order to check if they'd cover the procedure on my pws.

The doc I'd be going to gave me a code for laser treatment, and a code...
Forum: Port Wine Stain Help and Resources 08-27-2010, 12:30 AM
Replies: 5
Views: 6
Posted By LizH
Hello again/ Anthem BCBS info?

Hello again to everyone!

I'm 24, have had many laser treatments on my pws that spreads from my right hand up my arm and to my back.
While the most recent treatments I had in late 2009/early 2010...
Forum: Port Wine Stain Help and Resources 08-27-2010, 12:26 AM
Replies: 3
Views: 4
Posted By LizH
The range I've paid for treatments is pretty...

The range I've paid for treatments is pretty broad... right now I'm looking at a $100 consultation plus "up to or more than $500" per pws treatment (usually 300-500 pulses for me). However, I've had...
Forum: Port Wine Stain Help and Resources 08-27-2010, 12:23 AM
Replies: 9
Views: 10
Posted By LizH
You should find out what type of laser was...

You should find out what type of laser was used!

When I was a kid I had treatments till that generation of lasers stopped making a difference. The new Perfecta V-Beams are clearing more of my pws in...
Forum: Port Wine Stain Help and Resources 08-27-2010, 12:18 AM
Replies: 27
Views: 28
Posted By LizH
Hi! I'm 24, with a large birthmark on my right...

Hi!

I'm 24, with a large birthmark on my right hand and arm. It's pretty visible, especially when I wear short sleeves during the summer. I found that once I got over it myself, I had a pretty...
Forum: Port Wine Stain Help and Resources 02-09-2010, 07:24 AM
Replies: 2
Views: 256
Posted By LizH
Hi! I just had my third treatment with a Perfecta...

Hi!
I just had my third treatment with a Perfecta laser. It gives me very visible results after each treatment, much more so than the laser they had 10-20 years ago when I had treatments as a kid...
Forum: Port Wine Stain Help and Resources 02-09-2010, 07:09 AM
Replies: 1
Views: 2
Posted By LizH
Hi, if it's brown are you sure it's a port wine...

Hi, if it's brown are you sure it's a port wine stain birthmark? I have a PWS and my doctor uses a V-Beam Perfecta, although at our consult he mentioned those 2 as alternatives if the V-Beam didn't...
Showing results 1 to 25 of 29

 
Forum Jump