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Search: Posts Made By: crofte
Forum: Help and Resources for Hemangiomas 05-01-2011, 02:29 AM
Replies: 6
Views: 7
Posted By crofte
We're in Nebraska! We went to the vascular...

We're in Nebraska! We went to the vascular malformation clinic, so we saw Dr. Morelli, Dr. Ketch, and Dr. Peggy Kelley (and about 20 students!!) all at the same time. They really calmed our fears, so...
Forum: Help and Resources for Hemangiomas 05-01-2011, 02:25 AM
Replies: 28
Views: 29
Posted By crofte
I would also recommend taking her to an...

I would also recommend taking her to an opthamalogist in the mean time! They would be able to dialate the eye to see if her vision is being impacted--it could at least calm your fears until you make...
Forum: Help and Resources for Hemangiomas 04-23-2011, 03:31 AM
Replies: 6
Views: 7
Posted By crofte
Talking We Waited--with AMAZING results!

I posted on here last in 2009, distraught with deciding what to do with our baby girl, who had a deep hemangioma on her eyebrow. Here is a picture of her on May 30, 2009, at nearly 4 months old:...
Forum: Help and Resources for Hemangiomas 07-03-2009, 03:27 PM
Replies: 5
Views: 769
Posted By crofte
Hi there, My daughter has a deep hemangioma on...

Hi there,

My daughter has a deep hemangioma on the medial portion of her eyebrow. We saw a dermatologist who believed it to be a dermoid cyst intially, so we were referred to The Children's Hospital...
Forum: Help and Resources for Hemangiomas 06-24-2009, 03:27 AM
Replies: 14
Views: 1,497
Posted By crofte
Unhappy Corey has actually left--I've been in touch with...

Corey has actually left--I've been in touch with the new RN, Maureen.

Turns out that Dr. Waner is not a provider for ANY insurance company...I don't think we can afford the out of network costs and...
Forum: Help and Resources for Hemangiomas 06-22-2009, 04:29 AM
Replies: 14
Views: 1,497
Posted By crofte
Question Update

Hi Megan,

We are currently drowning in our decisions....what should we do, what should we do?? :)

We heard back from Dr. Waner on Friday. In the meantime, I contacted my sister-in-law who is a Dr....
Forum: Help and Resources for Hemangiomas 06-11-2009, 03:23 PM
Replies: 14
Views: 1,497
Posted By crofte
Thanks for all your information Megan! We heard...

Thanks for all your information Megan!
We heard from Dr. Fay today, and he thinks surgery is necessary. He also said propanolol isn't as effective if it isn't used right when the H is...
Forum: Help and Resources for Hemangiomas 06-10-2009, 02:31 AM
Replies: 14
Views: 1,497
Posted By crofte
Hi

Hi Bsmom--

Wow! Our stories are so similar! My daughter's H was also diagnosed as a dermoid cyst by our Derm...it seems like it has been a long journey just to get the correct diagnosis!

I...
Forum: Help and Resources for Hemangiomas 06-08-2009, 11:23 PM
Replies: 14
Views: 1,497
Posted By crofte
Thanks for the reply!

Hi Megs,

Thanks for the reply--I'm glad to know that what I am feeling is normal!!

I am also worried about how close the H is to her eye. I have asked the experts, Dr. Fay and Waner, and am...
Forum: Help and Resources for Hemangiomas 06-07-2009, 04:27 PM
Replies: 14
Views: 1,497
Posted By crofte
Cool Anyone have a child with a deep H?

Hi,
My daughter has a deep hemangioma, and it seems like most of the information that I find deals primarily with superficial H's--can any body share their personal experience about whether it...
Forum: Help and Resources for Hemangiomas 06-06-2009, 03:56 PM
Replies: 4
Views: 971
Posted By crofte
We are located in Western Nebraska--about 4 hours...

We are located in Western Nebraska--about 4 hours from Denver, Co.
Forum: Help and Resources for Hemangiomas 06-06-2009, 05:01 AM
Replies: 4
Views: 971
Posted By crofte
Deep H advice needed..please!!

Hello,

I'm a first time parent and my 4 month old daughter has a deep tissue hemangioma on her right eyebrow. It was not present at birth and made its appearance around 7 weeks.

Initially, we...
Showing results 1 to 12 of 12

 
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