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Search: Posts Made By: missy
Forum: General Resources Today, 03:04 PM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! Where are you located? Missy

Hi and welcome!

Where are you located?

Missy
Forum: AVM Help and Resources 10-08-2014, 06:28 PM
Replies: 13
Views: 2,171
Posted By missy
Dr. Yakes' contact information is as...

Dr. Yakes' contact information is as follows:

Dr. Wayne Yakes, Director
Dr. Nick Yee
Vascular Malformation Center
Interventional Radiologist
Swedish Medical Center
Englewood, CO 80110
...
Forum: Port Wine Stain Help and Resources 10-05-2014, 05:53 PM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! I have never heard of any home...

Hi and welcome!

I have never heard of any home remedy to treat pws. Since the vascular system is involved, rather than just skin, it's unlikely that any home remedy would help much.

Missy
Forum: Port Wine Stain Help and Resources 10-03-2014, 03:09 PM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! Start here: ...

Hi and welcome!

Start here: http://birthmark.org/node/33

After that, get in touch with Basia via http://birthmark.org/experts.php She can help you if you live in the United States.

Where are...
Forum: Help and Resources for Hemangiomas 09-24-2014, 01:10 AM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! No, hemangioma do not appear...

Hi and welcome!

No, hemangioma do not appear past infancy, certainly not at five years old!

Could it be something else? Small blood blister? Scratch? Anything? Can you post a photo?

Missy
Forum: Help and Resources for Hemangiomas 09-07-2014, 01:50 PM
Replies: 5
Views: 6
Posted By missy
Gorgeous baby!!

Gorgeous baby!!
Forum: Help and Resources for Hemangiomas 08-25-2014, 01:31 PM
Replies: 1
Views: 2
Posted By missy
I have heard of patients that recovered from foot...

I have heard of patients that recovered from foot drop, but it depends on what is causing it. Is it muscle damage or nerve damage? I think you might just have to wait and see how your daughter...
Forum: General Resources 08-24-2014, 06:53 PM
Replies: 1
Views: 2
Posted By missy
Hi and welcome back, Where are you? I would...

Hi and welcome back,

Where are you? I would have her leg evaluated by a specialist.

Yes, I have heard of vascular malformations "just crop up." Don't know if they were always there and just grew...
Forum: AVM Help and Resources 08-23-2014, 02:02 AM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! If you haven't already, get in...

Hi and welcome!

If you haven't already, get in touch with Dr. Tombris via http://birthmark.org/experts.php and ask him to recommend someone.

Missy
Forum: AVM Help and Resources 08-04-2014, 01:49 PM
Replies: 7
Views: 8
Posted By missy
Hi and welcome! I wish I could answer your...

Hi and welcome!

I wish I could answer your questions. I've been looking around for someone who might have experience, especially at Sick Kids, and can't find anyone.

You can probably call the...
Forum: AVM Help and Resources 08-02-2014, 11:17 PM
Replies: 2
Views: 3
Posted By missy
Hi and welcome! I have never heard of a link...

Hi and welcome!

I have never heard of a link between calcium and vascular birthmarks, but I'd love to hear more and do some research.

How much shrinkage?

Missy
Forum: Help and Resources for Hemangiomas 07-10-2014, 04:11 PM
Replies: 12
Views: 13
Posted By missy
Here you are! She sure is cute! Missy

Here you are!

She sure is cute!

Missy
Forum: Help and Resources for Hemangiomas 07-10-2014, 01:45 AM
Replies: 12
Views: 13
Posted By missy
Hi, Yes, just email pictures to that email...

Hi,

Yes, just email pictures to that email address and I'll be happy to add them to your post.

Missy
Forum: Port Wine Stain Help and Resources 07-06-2014, 02:07 AM
Replies: 3
Views: 4
Posted By missy
That is a good sign! Good news! Let us know how...

That is a good sign! Good news!

Let us know how things go with you.

Missy
Forum: Port Wine Stain Help and Resources 07-04-2014, 11:14 AM
Replies: 3
Views: 4
Posted By missy
Hi and welcome! You should call your insurance...

Hi and welcome!

You should call your insurance company and make sure it's covered first. I'd hate to get surprised by a large bill from the hospital.

Missy
Forum: Adults Living with Birthmarks 06-30-2014, 02:29 PM
Replies: 1
Views: 2
Posted By missy
Hi Kaykay, You've always been so eloquent about...

Hi Kaykay,

You've always been so eloquent about sharing your experiences. It's no wonder that people do look, but most of all ... they are helped by your journey.

Keep it up!

Missy
Forum: Port Wine Stain Help and Resources 06-27-2014, 08:27 PM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! I wouldn't know if the two...

Hi and welcome!

I wouldn't know if the two things are related, but if your physician thinks so, be sure to ask for additional resources for information. But I can't think of even another parent...
Forum: Adults Living with Birthmarks 06-17-2014, 01:36 PM
Replies: 4
Views: 5
Posted By missy
Hi and welcome, Tiffany! Thank you for coming by...

Hi and welcome, Tiffany!

Thank you for coming by and sharing your story here. Please, drop by and support other patients here... you have a very good outlook on your life.

Missy
Forum: Port Wine Stain Help and Resources 05-30-2014, 11:57 PM
Replies: 3
Views: 4
Posted By missy
Hi and welcome! Many patients with pws on their...

Hi and welcome!

Many patients with pws on their extremities report that they are larger than the non-affected arm or leg. Have you asked Dr. Rosen (our expert) what you should look for and...
Forum: Port Wine Stain Help and Resources 05-23-2014, 12:16 PM
Replies: 2
Views: 3
Posted By missy
Hi there! You should write to Dr. Nelson via ...

Hi there!

You should write to Dr. Nelson via http://birthmark.org/experts.php and ask him. I do know that laser will help prevent cobbles and blebs from forming, but I don't know about existing...
Forum: Port Wine Stain Help and Resources 05-08-2014, 10:41 AM
Replies: 2
Views: 3
Posted By missy
Hi and welcome! That sounds like port wine...

Hi and welcome!

That sounds like port wine stain. Where are you located?

Missy
Forum: AVM Help and Resources 04-09-2014, 12:45 AM
Replies: 2
Views: 3
Posted By missy
Hi You should have gotten an answer from Dr....

Hi

You should have gotten an answer from Dr. Rosen by now. I will look into that.

In the meantime, try writing to the European expert, too.

Missy
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 03-30-2014, 01:28 PM
Replies: 22
Views: 23
Posted By missy
Hi and welcome Go to...

Hi and welcome

Go to http://birthmark.org/experts.php and get in touch with Dr. Levitin. If he can't help you, he will recommend someone who can.


Missy
Forum: Help and Resources for Hemangiomas 03-25-2014, 02:27 PM
Replies: 8
Views: 9
Posted By missy
Hi and welcome! Different children and different...

Hi and welcome!

Different children and different birthmarks are going to need different treatment lengths, so I don't think this is something anyone else can tell you. I've known of children who...
Forum: Announcements 03-24-2014, 01:58 PM
Replies: 0
Views: 1
Posted By missy
Happy 20th Anniversary to VBF!

http://birthmark.org/node/278
VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

On Friday, October 10,...
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