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Search: Posts Made By: Ginorocco1
Forum: AVM Help and Resources 08-16-2013, 02:48 PM
Replies: 6
Views: 7
Posted By Ginorocco1
Also his lip seems to be growing back:(Dr. Low...

Also his lip seems to be growing back:(Dr. Low his plastic surgeon said he will probably need multiple surgeries! Also he has a bicuspid valve and aortic stenosis. When doing his yearly echo they...
Forum: AVM Help and Resources 08-16-2013, 02:35 PM
Replies: 6
Views: 7
Posted By Ginorocco1
That is the thing the dermatologist at chop send...

That is the thing the dermatologist at chop send us a letter saying follow up in a year! No avm's in brain and meeting with neurologist and plastic surgeon on sept 12th! No one seems to want to give...
Forum: AVM Help and Resources 08-15-2013, 02:55 AM
Replies: 6
Views: 7
Posted By Ginorocco1
3yr old with cm-avm

My 3 yr old was just diagnosed with cm-avm after his lower lip was debulked because of a vascular malformation! He has multiple vascular markings with new ones popping up:( working at chop in pa! So...
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