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Search: Posts Made By: Ginorocco1
Forum: Help and Resources for Hemangiomas 08-08-2015, 01:14 PM
Replies: 10
Views: 3,038
Posted By Ginorocco1
You can contact me at a2016r@yahoo.com

You can contact me at a2016r@yahoo.com
Forum: Help and Resources for Hemangiomas 08-08-2015, 01:12 PM
Replies: 10
Views: 3,038
Posted By Ginorocco1
Hello all! My son 5 yr old son has a lower lip...

Hello all! My son 5 yr old son has a lower lip AVM! They thought it was an hemangioma but it was an AVM! I would love to share our journey if anyone needs help!
Forum: Help and Resources for Hemangiomas 08-08-2015, 01:10 PM
Replies: 4
Views: 5
Posted By Ginorocco1
We live in PA! Dr.'s at CHOP told us it was a...

We live in PA! Dr.'s at CHOP told us it was a hemangioma! Well it is an AVM! I would see an AVM specialist and have an angiogram to get a better look at it!
Forum: AVM Help and Resources 08-16-2013, 02:48 PM
Replies: 5
Views: 3,016
Posted By Ginorocco1
Also his lip seems to be growing back:(Dr. Low...

Also his lip seems to be growing back:(Dr. Low his plastic surgeon said he will probably need multiple surgeries! Also he has a bicuspid valve and aortic stenosis. When doing his yearly echo they...
Forum: AVM Help and Resources 08-16-2013, 02:35 PM
Replies: 5
Views: 3,016
Posted By Ginorocco1
That is the thing the dermatologist at chop send...

That is the thing the dermatologist at chop send us a letter saying follow up in a year! No avm's in brain and meeting with neurologist and plastic surgeon on sept 12th! No one seems to want to give...
Forum: AVM Help and Resources 08-15-2013, 02:55 AM
Replies: 5
Views: 3,016
Posted By Ginorocco1
3yr old with cm-avm

My 3 yr old was just diagnosed with cm-avm after his lower lip was debulked because of a vascular malformation! He has multiple vascular markings with new ones popping up:( working at chop in pa! So...
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