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Search: Posts Made By: CYM
Forum: Adults Living with Birthmarks 05-21-2011, 03:21 AM
Replies: 4
Views: 5
Posted By CYM
facial skeletal hypertrophy

Just found out the all bones in face under PWS demonstrating overgrowth (nose, cheek bone, maxilla) and face assymetric. Anyone else experiencing this? I am in mid-30s. Any treatments suggested...
Forum: Port Wine Stain Help and Resources 05-06-2011, 03:08 AM
Replies: 25
Views: 26
Posted By CYM
Not always easy, but I have decided not to wear...

Not always easy, but I have decided not to wear make up and I have darker PWS covering close to half of face. Depending on my mood, there are some days I get irritated with stares. But I do my best...
Forum: Port Wine Stain Help and Resources 05-06-2011, 03:03 AM
Replies: 1
Views: 2
Posted By CYM
PWS and oral involvement

I am 33-year-old with PWS on left side of face (nose, check, around eye) and recently learned from CT scan that experiencing maxiallary/jaw overgrowth most likely due to PWS. I am first trying to...
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