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Search: Posts Made By: cherie
Forum: Help and Resources for Hemangiomas 08-22-2008, 12:48 AM
Replies: 17
Views: 2,162
Posted By cherie
My daughter's "h", or whatever it is,...

My daughter's "h", or whatever it is, is both superficial and deep and it HURTS. The doctors have said that the pain is probably caused by the "h" touching nerves. When she is active or gets hot,...
Forum: Help and Resources for Hemangiomas 08-18-2008, 12:25 AM
Replies: 6
Views: 1,253
Posted By cherie
I am sorry for what you are going through and I...

I am sorry for what you are going through and I understand. My daughter is 23 months old and has had, since birth, a, what they think is a, hemangioma that is both superficial and deep. It is being...
Forum: Help and Resources for Hemangiomas 08-17-2008, 05:19 PM
Replies: 17
Views: 2,162
Posted By cherie
Hi! I am so sorry that your son is suffering. ...

Hi! I am so sorry that your son is suffering. Your best bet is to take him to a vascular anomalies clinic. From experience, most pediatricians prefer the wait and see method. Unfortunately so do...
Forum: Help and Resources for Hemangiomas 08-12-2008, 05:56 PM
Replies: 4
Views: 1,119
Posted By cherie
I can understand your frustration with not...

I can understand your frustration with not knowing what to do. If you feel like getting another opinion, then get one. It is your baby and you have to do what is best for her.
Good Luck!
Cherie
Forum: Help and Resources for Hemangiomas 08-11-2008, 12:51 AM
Replies: 4
Views: 920
Posted By cherie
Hopefully someone at Children's in Arkansas will...

Hopefully someone at Children's in Arkansas will actually look at the new MRI soon. They have had it since Tuesday and no one had bothered to look at it as of Friday afternoon. The baby has an...
Forum: Help and Resources for Hemangiomas 08-08-2008, 11:24 PM
Replies: 4
Views: 920
Posted By cherie
Just wondering

I have posted on this site before so some of you might know that my daughter, who is 22 months old, has had a "something" inside her thigh since birth. Looking at last year's MRI and comparing with...
Forum: AVM Help and Resources 08-02-2008, 03:14 AM
Replies: 0
Views: 1,020
Posted By cherie
Someone please help!

My 22 month old daughter has had a "growth" in her thigh since birth. It has over the past several months been hurting her and it swells when she is active. The pain also increases with activity. ...
Forum: AVM Help and Resources 07-09-2008, 07:49 PM
Replies: 1
Views: 1,036
Posted By cherie
Because I am having to take my daughter out of...

Because I am having to take my daughter out of state, I just called and asked if they took her insurance and since they did, we had no problem. However, since your's is a pre-existing condition, you...
Forum: AVM Help and Resources 07-09-2008, 07:46 PM
Replies: 2
Views: 1,248
Posted By cherie
I have never found anything that says that VM's...

I have never found anything that says that VM's are hereditary but I also have not seen anything that says they are not. If you are worried about it, get it checked be a vascular anomalies...
Forum: Help and Resources for Hemangiomas 06-19-2008, 04:20 PM
Replies: 7
Views: 1,219
Posted By cherie
Kaylin, Thanks so much for the email. I really...

Kaylin,
Thanks so much for the email. I really appreciate it. Right now, I feel so lost and scared for my baby. Honestly, because of the way Danni's "h" is behaving, we don't even know if that is...
Forum: Help and Resources for Hemangiomas 06-17-2008, 11:32 PM
Replies: 7
Views: 1,219
Posted By cherie
Just wondering if anyone has ever had a first...

Just wondering if anyone has ever had a first appointment with a specialist and would be willing to give advice on what to expect and questions to ask???
Forum: Help and Resources for Hemangiomas 06-16-2008, 01:09 AM
Replies: 7
Views: 1,219
Posted By cherie
upcoming appointment with Dr. Buckmiller

Well, Danni's hemangioma has started growing again and is hurting as well. So, we are finally going to Arkansas to see Dr. Buckmiller to hopefully do something for her.
Does anyone have any...
Forum: Help and Resources for Hemangiomas 06-04-2008, 03:14 PM
Replies: 2
Views: 986
Posted By cherie
Congratulations on your referral! I didn't go...

Congratulations on your referral! I didn't go there (we are in Louisiana). but at the clinic in New Orleans, your first appointment is with one doctor who decides if they will even take you on as a...
Forum: Help and Resources for Hemangiomas 06-04-2008, 03:11 PM
Replies: 8
Views: 999
Posted By cherie
I didnit have an amnio but did have 2 surgeries...

I didnit have an amnio but did have 2 surgeries for kidney stones while pregnant. Radiation was used and I think that could be a factor in Danni's "h".
Cherie
Forum: Help and Resources for Hemangiomas 06-03-2008, 06:23 PM
Replies: 5
Views: 1,016
Posted By cherie
It hasn't ulcerated or scabbed. The superficial...

It hasn't ulcerated or scabbed. The superficial part is not bad at all. Mostly spots. It is mostly deep. I have never seen any pictures of anything that even comes close to how her "h" is.
Cherie
Forum: Help and Resources for Hemangiomas 06-03-2008, 01:50 AM
Replies: 5
Views: 1,016
Posted By cherie
Corinne, When we have noticed her "picking...

Corinne,
When we have noticed her "picking at" it, we always tell her it is a beauty mark and it means she has pretty legs and then kiss it. So, she started touching it and saying "pretty".
We she...
Forum: Help and Resources for Hemangiomas 06-02-2008, 01:01 AM
Replies: 5
Views: 1,016
Posted By cherie
hemangioma hurts when touched

Hi! I have not posted on here in a really long time. My daughter Danni was born with a superficial/deep hemangioma on her thigh. We, at the advice of doctor's decided to wait and see. The growing...
Forum: General Resources 05-29-2007, 04:50 AM
Replies: 10
Views: 3,794
Posted By cherie
When my daughter had her MRI done last month,...

When my daughter had her MRI done last month, they did it with and without contrast. She was 7 months old at the time. The reason they did it was because you can often see things more clearly with...
Showing results 1 to 18 of 18

 
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