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Search: Posts Made By: swsc
Forum: Living with a birthmark - my story 03-09-2012, 02:41 PM
Replies: 3
Views: 4
Posted By swsc
chuli - My name is Glenda and I'm a member of the...

chuli - My name is Glenda and I'm a member of the VBF and the Sturge-Weber Syndrome Community chapter. I have a grandson with SWS. I will try to email you through this board, but you can contact me...
Forum: Port Wine Stain Help and Resources 06-01-2010, 08:30 PM
Replies: 4
Views: 5
Posted By swsc
Hi Thuhuyen. I'm sorry you are having some...

Hi Thuhuyen. I'm sorry you are having some problems with your laser treatments. My 16 year-old grandson has facial pws. I can tell you what works for him. The best tip is to keep your skin from...
Forum: Port Wine Stain Help and Resources 07-27-2009, 06:16 PM
Replies: 3
Views: 652
Posted By swsc
Hi. I believe the Perfecta is the VBeam laser...

Hi. I believe the Perfecta is the VBeam laser made by Candela. Did you have treatment done at U of L or at UK Med Center in Lexington? They have the most up to date equipment in the state. They use...
Forum: Help and Resources for Hemangiomas 04-08-2009, 02:41 PM
Replies: 3
Views: 563
Posted By swsc
On this page is a picture of Saige and her mom at...

On this page is a picture of Saige and her mom at the Gala in New York this past November (scroll down to see pictures after the article):
http://www.birthmark.org/08gala.php
Forum: Help and Resources for Hemangiomas 04-07-2009, 11:44 PM
Replies: 3
Views: 563
Posted By swsc
Jessica: Another foundation/group uses burgundy...

Jessica:

Another foundation/group uses burgundy bracelets for their awareness campaign (Well - really, I know at least 3 groups that use the burgundy birthmark bracelets).

But since the VBF logo...
Forum: CMTC 04-06-2009, 05:47 PM
Replies: 9
Views: 2,466
Posted By swsc
Meet Ashley - VBF's CMTC Parent Rep.

Meet Ashley and her son Gavin.
Ashley is the new VBF parent representative for Cutis Marmorata Telangiectatica Congenita (CMTC). Read "Gavin's Story" to learn more about CMTC and a mother's search...
Forum: Port Wine Stain Help and Resources 04-06-2009, 05:41 PM
Replies: 2
Views: 674
Posted By swsc
Hi. My grandson sees Dr. Henry Vasconez at UK Med...

Hi. My grandson sees Dr. Henry Vasconez at UK Med Center in Lexington, and I would highly recommend him.

Have you tried the University of Louisville Hospital's plastic surgery department?

Please...
Forum: Port Wine Stain Help and Resources 06-22-2008, 08:47 PM
Replies: 0
Views: 737
Posted By swsc
Register Now For VBF 2008 Conference And Gala

REGISTER NOW FOR VBF 2008 CONFERENCE AND GALA
Sturge-Weber Syndrome Community Friends - Register early for the 2008 VBF Conference and Mark of Beauty Gala in New York City. There are a limited...
Forum: Living with a birthmark - my story 03-05-2008, 02:38 PM
Replies: 17
Views: 4,044
Posted By swsc
Shai: I sent you an email, so please let me know...

Shai:

I sent you an email, so please let me know if you received it.

Again, thank you so much for sharing you story!

Glenda, VBF Chapter Director
Forum: Port Wine Stain Help and Resources 10-13-2007, 08:09 PM
Replies: 13
Views: 2,363
Posted By swsc
Laura: Email me at swsc @ swscommunity .org ...

Laura:

Email me at
swsc @ swscommunity .org (no spaces)
and I will give you the contact information for my friend in Metaire.

I tried to email you, but received a notice that you aren't...
Forum: Port Wine Stain Help and Resources 10-11-2007, 03:26 PM
Replies: 13
Views: 2,363
Posted By swsc
Melissa: The VBF has a Chapter in Australia, and...

Melissa:

The VBF has a Chapter in Australia, and you might want to contact the Chapter Rep., Eloisa Evangelista. She might have some information that would be helpful to you and your son.

Also, VBF...
Forum: Port Wine Stain Help and Resources 10-11-2007, 03:10 PM
Replies: 13
Views: 2,363
Posted By swsc
Hi Laura. Let me add my congratulations on the...

Hi Laura. Let me add my congratulations on the birth of your daughter. I have a grandson with facial pws. If you ever want to talk, just let me know.

Also I have a friend with pws/sws who lives in...
Forum: Port Wine Stain Help and Resources 10-05-2007, 05:38 PM
Replies: 13
Views: 1,952
Posted By swsc
The VBF has a Chapter in Australia. Perhaps they...

The VBF has a Chapter in Australia. Perhaps they can be of some help.

Here is the website link: http://vbfaustralia.org/index.php and here is the contact page link:...
Forum: Port Wine Stain Help and Resources 05-21-2007, 10:19 PM
Replies: 7
Views: 1,243
Posted By swsc
Happy Birthday

Happy Birthday to Hank!
Forum: Port Wine Stain Help and Resources 05-20-2007, 07:35 PM
Replies: 0
Views: 878
Posted By swsc
SWSC Volunteer Rep. - Awareness Day Article

Kathy Wyrick was featured in her local newspaper. Thanks for supporting VBF Day of Awareness!

Read the article online here:
http://www.lakecityreporter.com/articles/2007/05/14/news/local/news02.txt
Forum: Port Wine Stain Help and Resources 01-01-2007, 12:08 AM
Replies: 0
Views: 1,007
Posted By swsc
OT - Happy New Year

Happy New Year to everyone!

Love,
Glenda
Forum: Port Wine Stain Help and Resources 12-19-2006, 02:01 AM
Replies: 0
Views: 972
Posted By swsc
On TV - Evan and Donna Ducker - Buddy Booby Authors

Evan and Donna Ducker, authors of Buddy Booby's Birthmark, will appear on the CBS Early Show with Hannah Storm tomorrow morning - 12/19 at 7:40 a.m. ET. Be sure to watch!
Forum: Port Wine Stain Help and Resources 12-08-2006, 06:24 PM
Replies: 0
Views: 1,132
Posted By swsc
VBF/SWSC-Canada Volunteer Representative Tabitha Dunphy

Tabitha Dunphy, Volunteer Representative for VBF/SWSC-Canada, is being featured in a documentary to air on Canadian television.
Website: http://www.tabithasjourney.ca/
See notice below:

Canada...
Forum: Port Wine Stain Help and Resources 09-04-2006, 10:26 PM
Replies: 4
Views: 1,341
Posted By swsc
VBF Conference

If you are going to the VBF All Birthmarks Conference in October, please let me know. We would like to have a get-together for SWS/PWS/KT/CMTC.

Glenda
Forum: Port Wine Stain Help and Resources 08-23-2006, 08:38 PM
Replies: 0
Views: 1,021
Posted By swsc
Glen's Gang - local newspaper

Glen was featured in a local newspaper article. Here is the link:

They shouldn't be ashamed' Boy starts support group for kids with...
Forum: AVM Help and Resources 07-13-2006, 12:25 AM
Replies: 6
Views: 2,581
Posted By swsc
bryandylan - Is there any news on your son yet?...

bryandylan - Is there any news on your son yet? Please let us know what you find out. I hope he is doing well.
Glenda
Forum: Port Wine Stain Help and Resources 07-13-2006, 12:23 AM
Replies: 2
Views: 1,296
Posted By swsc
Thanks for the update. I'm so sorry he had a...

Thanks for the update. I'm so sorry he had a rough time. Tell him we are all thinking of him.

(Also make sure to keep the treated area well lubricated with the ointment the doctor recommended.)...
Forum: AVM Help and Resources 06-29-2006, 09:43 PM
Replies: 6
Views: 2,581
Posted By swsc
Hi - I hope your son is doing well. Is the lesion...

Hi - I hope your son is doing well. Is the lesion actually leaking clear fluid? Did anyone mention the possibility of a lymphatic malformation? Like Kristie suggested, I would contact the doctors on...
Forum: Port Wine Stain Help and Resources 06-29-2006, 04:54 AM
Replies: 4
Views: 1,572
Posted By swsc
Beth: I hope your husband is feeling better. Did...

Beth:

I hope your husband is feeling better. Did he endure the treatment without any numbing cream or pain management?

My grandson is put to sleep for the treatments, so he has never had to use...
Forum: Port Wine Stain Help and Resources 06-29-2006, 04:23 AM
Replies: 1
Views: 1,099
Posted By swsc
Hi - If you are looking for laser treatment for...

Hi - If you are looking for laser treatment for PWS, check the physicians list here:
http://birthmarks.com/OrgGroupList.cfm?StateID=57&orgsub=0&orgfirst=0&bullets=1&orggrouptype=Doctor

If you need...
Showing results 1 to 25 of 81

 
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