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Search: Posts Made By: JeZouMaarIrisHeten!
Forum: AVM Help and Resources 06-27-2007, 12:08 PM
Replies: 1
Views: 2,100
I guess it have something to do with the blood...

I guess it have something to do with the blood pressure. When you're active your blood flows faster, and the vains get wider. It often bleeds.

When the temperature outside is high, the same thing...
Forum: Port Wine Stain Help and Resources 05-22-2007, 02:44 PM
Replies: 7
Views: 1,243
Where's Hank? Ooo I see... He still has a...

Where's Hank?

Ooo I see... He still has a hangover from the party.... ;)
Forum: Port Wine Stain Help and Resources 05-21-2007, 10:18 PM
Replies: 7
Views: 1,243
Happy Birthday Dear Hank!!!!!!!

Happy Birthday Dear Hank!!!!!!!
Forum: Port Wine Stain Help and Resources 05-10-2007, 03:54 PM
Replies: 12
Views: 2,986
Have you seen Hanks (www.hankspws.com) website?...

Have you seen Hanks (www.hankspws.com) website? It's with lots of information about PWS and treatment.

Looking for doctors/ treatment isn't bad at all, I have a lymphagioma on the left side of my...
Forum: General Resources 05-09-2007, 07:16 PM
Replies: 3
Views: 2,497
It's called Amsterdam (my place of birth), Is is...

It's called Amsterdam (my place of birth),

Is is close to the VBF?
Forum: Youth and Teen Support 05-08-2007, 02:26 PM
Replies: 7
Views: 4,984
I have a CLM, it hurts doing cardio fitness and...

I have a CLM, it hurts doing cardio fitness and heat. Not every day but every other day I think.

Hopely I'll have a surgery to remove the cystes, the suficial LM is fading away. It 'll disappear...
Forum: Adults Living with Birthmarks 05-07-2007, 05:12 PM
Replies: 8
Views: 3,122
Hi! I've seen the picture's, the're great!...

Hi! I've seen the picture's, the're great! Awesome :).

That's a long time from now
Forum: Living with a birthmark - my story 04-30-2007, 04:24 PM
Replies: 8
Views: 3,566
I disagree, the V-beam hurts a little bit (it...

I disagree, the V-beam hurts a little bit (it feels like electric shokes on your skin, like pinches), if it isn't cooled you'll feel some heat.
If it is cooled, it will feel hot and cold at the same...
Forum: Living with a birthmark - my story 04-28-2007, 11:59 AM
Replies: 3
Views: 2,370
Another update about me: I've seen a surgeon...

Another update about me:

I've seen a surgeon past week, he will do a surgery to remove my cystes, if he had dicussed it with my dermatologist. I know the answer 8th of may.
The surge will be this...
Forum: General Resources 04-14-2007, 06:59 PM
Replies: 5
Views: 2,531
Maybe there is a parent or person here who knows,...

Maybe there is a parent or person here who knows, I'll make and appointment after I've been to the surgeon, to check it, I need a first opinion before I need a second!

If they don't speak English: I...
Forum: General Resources 04-12-2007, 03:37 PM
Replies: 5
Views: 2,531
Thank you! Do they speak English there? I'll...

Thank you!

Do they speak English there? I'll call ASAP, thanks a lot!
Forum: General Resources 04-06-2007, 06:14 PM
Replies: 5
Views: 2,531
How to make an appointment?

I'm very embaressed to ask this, but I really don't know it:

How can I make an appointment with Dr Waner in Berlin? Shall I call, or email? And which phone number/ emailadress?

I'll maybe go to...
Forum: Adults Living with Birthmarks 04-05-2007, 10:23 AM
Replies: 24
Views: 13,974
Maryjane: I'll keep my fingers crossed for you...

Maryjane: I'll keep my fingers crossed for you ;).
Macklo: I'm sorry to read this. I'll hope you will be better soon, and that you will be fine again shortly.

Doctors told me yesterday that my...
Forum: General Resources 03-26-2007, 03:33 PM
Replies: 10
Views: 4,631
Thank you :). I speak English since I was three,...

Thank you :). I speak English since I was three, I haven't spoke it in a few years, but with serveral forums I will train my English :).

I'll let you know after my treatment, in june. So, I have to...
Forum: Living with a birthmark - my story 03-26-2007, 11:06 AM
Replies: 3
Views: 2,370
Thanks for your reply and answers, Hank! :D Very...

Thanks for your reply and answers, Hank! :D Very wise answers ;). You really seem to be a experienced young man, and very social.

I always cover my belly, and in the dressingrooms of school people...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 03-25-2007, 03:41 PM
Replies: 9
Views: 4,785
I haven't read anything simulair like this...

I haven't read anything simulair like this before: I have an CLM (cystic lymphatic malformation), and I dind't knew that stress and hormones can let the (C)LM shrink or grow.

I currently been...
Forum: General Resources 03-25-2007, 01:01 PM
Replies: 10
Views: 4,631
Thank you! I'm currently seeing a dermatologist...

Thank you!

I'm currently seeing a dermatologist in Holland, he's treating my CLM with the Pulsed Dye Laser. Maybe, if the treatment doens't help (I hope not so!) I'll see Dr Waner for another...
Forum: General Resources 03-24-2007, 06:51 PM
Replies: 10
Views: 4,631
Wow, large bills! I'm thinking of going to see...

Wow, large bills!

I'm thinking of going to see Dr. Waner in the near future (stupid question: Does he speaks English? His name seems to be German, and he's in Germany a lot), I hope the insurance...
Forum: Living with a birthmark - my story 03-23-2007, 04:57 PM
Replies: 3
Views: 2,370
The way my life goes

Hi!

My nickname is Dutch, it says: ''Your name should be Iris!'
I'm born 16 years ago with a strange spot on the left side of my belly. I have a micro-macrocytic lymphatic malformation. I'm also...
Showing results 1 to 19 of 19

 
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