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Search: Posts Made By: chuli
Forum: Port Wine Stain Help and Resources 03-28-2012, 12:50 PM
Replies: 9
Views: 10
Posted By chuli
Thank you for the well wishes, I hope and wish...

Thank you for the well wishes, I hope and wish you and your baby the best too.

All this testing is all a loooong process, hopefully the MRI will give you a definite answer of what it is. I would...
Forum: Port Wine Stain Help and Resources 03-27-2012, 12:54 PM
Replies: 3
Views: 4
Posted By chuli
I'm in New York City, no I haven't written to Dr....

I'm in New York City, no I haven't written to Dr. Comi. Thanks!!
Forum: Port Wine Stain Help and Resources 03-26-2012, 01:10 PM
Replies: 3
Views: 4
Posted By chuli
Can someone refer me to a pediatric neurologist...

Can someone refer me to a pediatric neurologist that is not from Columbia-Presbyterian, I want to seek a 2nd opinion about my daughter's MRI. this doc doesn't really know what the findings are. Every...
Forum: Port Wine Stain Help and Resources 03-26-2012, 01:06 PM
Replies: 9
Views: 10
Posted By chuli
Hi, I'm new here too!! My daughter recently had...

Hi, I'm new here too!! My daughter recently had an MRI, I was a nervous wreck too, and it came out not as bad as I thought. I've learned to take it easy and stay positive. We need to be strong for...
Forum: Living with a birthmark - my story 03-09-2012, 02:29 PM
Replies: 3
Views: 4
Posted By chuli
Her MRI is for this tuesday the 13, she also has...

Her MRI is for this tuesday the 13, she also has a very light mongolian spot in her right side of the forehead that goes into the scalp. Don't know how this would affect her. I cant wait for this to...
Forum: Port Wine Stain Help and Resources 03-09-2012, 12:44 PM
Replies: 3
Views: 4
Posted By chuli
Unhappy pws questions

Hi,my baby girl (now 2yrs old) was diagnosed with port wine stains and Mongolian spots. She also has glaucoma and underwent trabeculectomy surgery to correct it. (dont know if she will need more)
I...
Forum: Living with a birthmark - my story 03-08-2012, 06:30 PM
Replies: 3
Views: 4
Posted By chuli
my Baby girl

Hi,my baby girl (now 2yrs old) was diagnosed with port wine stains and Mongolian spots. She also has glaucoma and underwent trabeculectomy surgery to correct it.
I don't know how common it is but as...
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